[joeyphoenix21]

Hi there,

Was wondering if anyone here has had a spinal cord stimulator implanted.

I have severe burning neuropathy in my legs and feet. I also suffer from thermal allodynia (temperature changes cause pain) and tactile allodynia (pain from clothing, bedsheets). The cause of my neuropathy is lyme disease. My pain levels average between 6-8. I am unable to tolerate any clothing on my legs at all.

Does anyone out there have similar symptoms and get relief from a stimulator??

I have tried many drugs for this condition including antidepressants, anticonvulsants, narcotic pain meds, topical medications, etc. While some drugs have offered relief, the side effects are unbearable. So now I am at a point where the stimulator seems like my only option.

So, if you have a spinal cord stimulator, I would love to hear of any success you have had with it. Sorry, but I would rather not get messages from people who did not get relief or any horror stories. I am looking for some encouragement as I feel very hopeless.

Thanks for reading

[Jomar]

Are drs totally sure the pain is from Lyme?
No mention of possible RSD /CRPS?

RSD/CRPS forum for info if curious -
http://neurotalk.psychcentral.com/forum21.html

[joeyphoenix21]

It's a combination of Lyme mediated/medication induced.

[ShaggyChic_1201]

Originally Posted by joeyphoenix21

Hi there,

Was wondering if anyone here has had a spinal cord stimulator implanted.

I have severe burning neuropathy in my legs and feet. I also suffer from thermal allodynia (temperature changes cause pain) and tactile allodynia (pain from clothing, bedsheets). The cause of my neuropathy is lyme disease. My pain levels average between 6-8. I am unable to tolerate any clothing on my legs at all.

Does anyone out there have similar symptoms and get relief from a stimulator??

I have tried many drugs for this condition including antidepressants, anticonvulsants, narcotic pain meds, topical medications, etc. While some drugs have offered relief, the side effects are unbearable. So now I am at a point where the stimulator seems like my only option.

So, if you have a spinal cord stimulator, I would love to hear of any success you have had with it. Sorry, but I would rather not get messages from people who did not get relief or any horror stories. I am looking for some encouragement as I feel very hopeless.

Thanks for reading

I have an SCS for the same symptoms and it works quite well. Do not go into expecting to be pain free, b/c you won't be, but at least I can wear clothes on my arm again. I don't find that the SCS covers the temperature allodynia and I miss that I cannot go out in the sunlight for more than a minute. Still that symptom bothers me the least because temp fluctuations don't occur but a few times a day and I wear clothes all day long.

I hope you are not still taking the medications that you think caused the problem