Hi Everyone,

These photo's look so much like RSD to me. Their is no accurate test to rule out something like this out. 99.9 percent of the MD's I have seen say RSD, but I really believe something broke the Blood Brain Barrier. I really could use your opinion on wheather this look's like RSD photo's to you. Much Love, Roz xxx

http://www.dermis.net/dermisroot/en/35111/diagnose.htm

Acrodermatitis chronica atrophicans is a dermatological condition that takes a chronically progressive course and finally leads to a widespread atrophy of the skin. Involvement of the peripheral nervous system is frequently observed, predominantly a sensory polyneuropathy. Acrodermatitis chronica atrophicans follows a peculiar geographical distribution forming clusters of high prevalence in certain regions. Acrodermatitis chronica atrophicans is a clinical manifestation of borreliosis, an infectious disease transmitted by ticks. Clinical manifestations of borreliosis are multiple. They most often affect the skin, nervous system, joints and heart. Cutaneous pseudolymphomas, erythema chronicum migrans of Afzelius, acrodermatitis chronica atrophicans of Pick-Herxheimer, meningo-radiculitis and various arthropathies are the most commonly encountered diseases

I really need your opinion I really feel like I have some Chronic wasting disease, does anyone else feel this way? Jo what do you think as well? Much Love, Roz

PS My rear end is fine.

[tayla4me]

Hi Roz,


They are certainly interesting photos with many features that look like the atrophied skin of RSD.
Because we all have such different signs and symptoms it would be too hard to just give an accurate diagnosis based on photo. Parts of my RSD looks like this at times but for me it is not so patchy but more generalised and somewhat transient in a couple of areas.
There is clear damage to the dermis in these photos and many RSD patients would not get to the point where that exists. For me also, oedema is more of a feature than in these photos .
If your RSD looks exactly like these Roz and you feel you could be part of the demographic who may be susceptible to this infection then I would defnitely ask for a tissue culture to be done to eliminate the fact that all your symptoms are in fact caused by this bug.
I have just read an article on it and I do agree there are some very similar features.
Perhaps when a doctor is investigating the possibility of RSD/CRPS in people that ACA should definitely be ruled out.
Very interesting stuff Roz----thanks for that
Cheers and luck
Tayla

[wakegirl]

i cant say for certainty but some appear to present the more general appearance than others

Dear Tayla,

Thanks for your wisdom. My RSD looked so much like these photos about 2 years ago. Of course my right limb looks worse now.

Tayla, to me none of these photos look exactly alike either. I had a tissue culture biospy, but like I said nothing will show up. Big Hugs, Roz

[tayla4me]

Originally Posted by buckwheat

Dear Tayla,

Thanks for your wisdom. My RSD looked so much like these photos about 2 years ago. Of course my right limb looks worse now. Big Hugs, Roz

Roz,

Have you presented this possibility to your doctor ? Gosh, how easy would it be if there were some definitive tests for RSD as there are for most other diseases. At this point in time it seems that RSD is really only diagnosed on a huge assortment of different of confusing signs and symptoms that vary in aetiology in everyone.
I would love the day when a pathology slip could be written with the request
"bloods for RSD/CRPS diagnosis" and then of course to have an abundance of well learned doctors to treat it.
I often wonder why for our 20 million population here in Australia the percentage of doctors who are nominating themselves as Pain Management Doctors who specialise in RSD and are willing to throw everything they can at getting you better, seems higher than in many other countries.
Having said that there are definitely some states here which are better served than others.
Heaps of luck Roz
Tayla

[tayla4me]

Originally Posted by buckwheat

Dear Tayla,

Thanks for your wisdom. My RSD looked so much like these photos about 2 years ago. Of course my right limb looks worse now.

Tayla, to me none of these photos look exactly alike either. I had a tissue culture biospy, but like I said nothing will show up. Big Hugs, Roz

Hi again Roz,

Is there no test that can confirm ACA?--I guess they must at some stage have been able to culture borreliosis----perhaps once the damage is done and the infection has died then all is left is the damage it has caused?
Tayla

Hi Wake,

This is not a photo of the same person. Much Love, Roz

Dear Tayla,

I have every SX of RSD except for the bone pain. Their are several strains of this through out the world. I am in the States now, which causes bone pain with this related organism. I do have a sharp MD that does believe me that something broke the BBB. She thought Euro, and had no clue I have a English background. Much Love, Roz

[tayla4me]

Roz,

I guess if you have ever been to the area that this monster tick is then there will always be that thought
I reckon if you haven't ever been anywhere near "mr borreliosis" then you are probably not one of his victims-----Oh so confusing for you
Tayla