NeuroTalk Support Groups - Just got my machine WOO HOO!

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Sleep Apnea & Sleep Disorders (https://www.neurotalk.org/sleep-apnea-and-sleep-disorders/)

- - Just got my machine WOO HOO! (https://www.neurotalk.org/sleep-apnea-and-sleep-disorders/17743-machine-woo-hoo.html)

Quote:

Originally Posted by Pamster (Post 98204)

Oh moonstar I feel just terrible for you that they took SO long to get your machine out to you. I guess I was just lucky my doctor was able to get a medical supplier to get one out to me that same day he went over the results. It sounds like it's the same thing I have happening too. I drool a lot and it's all over my chin strap, :p but also the breathing thing, when you swallow, my ears pop and my throat feels funny, like it's constricting against the air. You might want to try the CFlex feature on the machine moonstar, it's supposed to 'ramp up' slower so you're asleep by the time it starts blowing the full incriment of air.

I have found I feel less depressed after a few solid nights using the machine. I do notice I am waking up and it feels like the machine's not working but then when I open my mouth a little bit the tornado of wind rushes out so I know it's working, it just doesn't feel or sound like it is at 3 am. I tried to take a nap today and couldn't, laid there for an hour and just could NOT nodd off. :p

I hope you start feeling better moonstar, stick with the machine, I know it's no fun looking like you're about to go deep sea diving, but it's to help you breathe and to help your body get the rest it needs to heal itself from the stresses of the day. :)

Pam,

I agree with Beckyboo--get the heated humidifier. It's great, and makes a huge difference. Tell you doctor you are getting blood out of your nose every morning. That's what finally worked for me (and it was true.) I also use Flonase every night just before bedtime.

DJ

it has been some time since i have written..so much more is going on with me and everyday something new is found ...so many tests and no answers.. the machine i finally got didn't work..the mask did not fit correctly..i called the respitory therapist and never got my calls returned..went to see the dr again and told him that my calls (all7 of them) wwe not returned and he said he would call them..still no response!! after waitiing for months i finally made another appointment with another sleep clinic..this one is furtheer away from my home but at least they return calls and have a great reputation..my appoiintment is for this tuesday and then another overnight test on friday. i know my apnea has gotten worse..if i sleep and one of my pillows falls i stop breathing..i can feel it happening..my throat closes up and i start gasping for air. i don't sleep much these days..seem to have insomnia at night and am up past 4-6 am..then sleep for 2 hrs and the alarm goes off--i have to get my autistic brother (terry) up to go to program at 8 am ...he leaves at 9..and i try to go back to sleep for another 2 hrs..when i get up i feel like i have slept thru the day and don't remember getting terry up--this can't last much longer..i have black bags under both eyes--and do my best to cover them up with makeup to get thru my 6 hrs of work..i am working from 4:30 pm to 10:30 pm...if i make it to work 3 out of 5 days it is a miracle..my pain level is 10 + almost all day and night . i started to take different meds for the last 10 days..time released morphine,lyrica and oxycodone for my pain..now diagnosed with rsd,fibromyalgia...sorry got to stop now..my hands are killing me each time i hit a key...peaceful days and nights to everyone..i will let you know how things turn out....monnstar (linda)