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Old 12-01-2007, 04:15 PM #21
moonstar moonstar is offline
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Join Date: Sep 2006
Location: brentwood,ny
Posts: 310
15 yr Member
moonstar moonstar is offline
Member
 
Join Date: Sep 2006
Location: brentwood,ny
Posts: 310
15 yr Member
Default hi to all...

it has been some time since i have written..so much more is going on with me and everyday something new is found ...so many tests and no answers.. the machine i finally got didn't work..the mask did not fit correctly..i called the respitory therapist and never got my calls returned..went to see the dr again and told him that my calls (all7 of them) wwe not returned and he said he would call them..still no response!! after waitiing for months i finally made another appointment with another sleep clinic..this one is furtheer away from my home but at least they return calls and have a great reputation..my appoiintment is for this tuesday and then another overnight test on friday. i know my apnea has gotten worse..if i sleep and one of my pillows falls i stop breathing..i can feel it happening..my throat closes up and i start gasping for air. i don't sleep much these days..seem to have insomnia at night and am up past 4-6 am..then sleep for 2 hrs and the alarm goes off--i have to get my autistic brother (terry) up to go to program at 8 am ...he leaves at 9..and i try to go back to sleep for another 2 hrs..when i get up i feel like i have slept thru the day and don't remember getting terry up--this can't last much longer..i have black bags under both eyes--and do my best to cover them up with makeup to get thru my 6 hrs of work..i am working from 4:30 pm to 10:30 pm...if i make it to work 3 out of 5 days it is a miracle..my pain level is 10 + almost all day and night . i started to take different meds for the last 10 days..time released morphine,lyrica and oxycodone for my pain..now diagnosed with rsd,fibromyalgia...sorry got to stop now..my hands are killing me each time i hit a key...peaceful days and nights to everyone..i will let you know how things turn out....monnstar (linda)
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