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Old 09-09-2013, 05:42 AM #1
DeidreJay DeidreJay is offline
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Join Date: Sep 2013
Posts: 2
10 yr Member
DeidreJay DeidreJay is offline
Newly Joined
 
Join Date: Sep 2013
Posts: 2
10 yr Member
Default Living with thought of REM sleep disorder leading to Parkinson's

Hi I'm currently going through investigations for REM behaviour disorder and having a sleep study on 20th Sept. But pretty sure I have it. Have slept walked in REM sleep for around 7 years (aged 51 now) and talk, shout etc in sleep. Also wake up sleep walking, standing beside bed so forth about once a month but many times when I don't wake up whilst sleep walking.
I had heard of link between REM disorder and Parkinson's and the sleep specialist has confirmed this saying I have a 50% chance of developing it within next 5 to 20 years. That is freaky so how does one deal with that?
I called the Parkinson's body who said if I have REM disorder I should ask for a referral to a neurologist who specialises in Parkinsons.
What happens once I'm diagnosed? What tests does the neurologist run? Do I need to have regular check ups or more go back if I develop a symptom?
Thanks DJ
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