advertisement
Reply
 
Thread Tools Display Modes
Old 02-28-2016, 12:19 AM #1
Carrie Ann Carrie Ann is offline
Junior Member
 
Join Date: Feb 2016
Posts: 7
8 yr Member
Carrie Ann Carrie Ann is offline
Junior Member
 
Join Date: Feb 2016
Posts: 7
8 yr Member
Default Narcolepsy

Does anyone else here have Narcolepsy?
Carrie Ann is offline   Reply With QuoteReply With Quote

advertisement
Old 02-28-2016, 12:27 AM #2
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 10,984
15 yr Member
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 10,984
15 yr Member
Default

Hi Carrie Ann,

Welcome to the NeuroTalk Support Groups!

While you are waiting for any replies, you could check in the

Forum Search Feature

for any past posts or threads regarding narcolepsy.

I just did that myself and there are quite a few posts across various forums here.
Lara is offline   Reply With QuoteReply With Quote
Old 02-29-2016, 12:23 PM #3
Carrie Ann Carrie Ann is offline
Junior Member
 
Join Date: Feb 2016
Posts: 7
8 yr Member
Carrie Ann Carrie Ann is offline
Junior Member
 
Join Date: Feb 2016
Posts: 7
8 yr Member
Default

Thank you, I will do that.

I have a diagnoisis of Narcolepsy with cataplexy and was curious if there was anyone else with the same diagnoisis.

If there is anyone who has questions about Narcolepsy and or cataplexy feel free to ask me. There are a lot of sterotypes with this diagnoisis.
Carrie Ann is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (02-29-2016)
Old 03-16-2016, 09:27 PM #4
reedrube reedrube is offline
Junior Member
 
Join Date: Jan 2016
Posts: 14
8 yr Member
reedrube reedrube is offline
Junior Member
 
Join Date: Jan 2016
Posts: 14
8 yr Member
Default

I have narcolepsy without cataplexy. where do you get treatment?
reedrube is offline   Reply With QuoteReply With Quote
Old 06-02-2021, 01:20 AM #5
perfectlypeg perfectlypeg is offline
Junior Member
 
Join Date: May 2010
Posts: 9
10 yr Member
perfectlypeg perfectlypeg is offline
Junior Member
 
Join Date: May 2010
Posts: 9
10 yr Member
Default Yes to Narcolepsy

I have had narcolepsy for over 25 years give or take a few. But the cataplexy is a new ingredient for me, I just had my first incident last week. After blacking out, and falling on the concrete floor I had a huge hemotoma on my eyebrow. Yikes. I didn't even try to catch myself. I had just had a stress released conversation with a surgeon and I was feeling very good. Wham.
But for the past four or five years I have had trouble finding doctors to help me. I also have severe sleep apnea and the machines don't work. Now I have complex sleep apnea. Impossible to find the doctors now willing to help. They don't want to write the scripts for the stimulant meds but I can't control the narcolepsy with out them. They don't get it. So very frustrating. I'm not trying to run any race or even to engage with the world. I am in my late sixties and am isolated. I just want to live the best way that I can. Is that so wrong? I didn't ask for this burden but am trying the best I can. I can't manage on my own anymore.
Best of luck to you
perfectlypeg is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Narcolepsy anyone? Mom_2_4 Sleep Apnea & Sleep Disorders 2 06-08-2015 04:55 PM
Narcolepsy and MG StephC Myasthenia Gravis 1 04-27-2015 07:33 PM
I did not see Narcolepsy listed.... dllfo Community & Forum Feedback 5 01-17-2011 10:32 PM
PD and narcolepsy linked. Ronhutton Parkinson's Disease 0 05-07-2007 01:38 AM


All times are GMT -5. The time now is 05:10 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.