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05-21-2008, 01:33 PM | #1 | ||
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I have placed a thread on the Myasthenia Gravis site, but thought I would share on this site as well....I was diagnosed with mild sleep apnea in the early 90's as I took a sleep study at a Desert Storm physical. I was diagnosed with Myasthenia Gravis in November of 2006, three months before retiring from 41 years of military service. My apnea has gotten much worse in the past year. I have had two sleep studies in the past month that diagnosed central and obstructive sleep apnea and received my Bi-Pap last week. The physician has started me off with a pressure of 10/18. I have documents from Mayo Clinic that state that Myasthenia Gravis can be a cause of central sleep apnea. Has anyone else had diagnoses that suggest that a neurological disease/disorder can cause central sleep apnea?
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06-23-2008, 08:37 PM | #2 | |||
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NO, I have never heard of this but will study up.
I not only just got dx with mild apnea but more so that I dont remember to breathe during the DAYTIME !! My neuro thinks it may be narcolepsy but I am not sure. Hope more respond to this post. Good luck to you though!! Jan |
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06-29-2008, 10:48 PM | #3 | ||
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Go to CPAPTALK.com for more help. Nothing on Neurological disorders, but lots of help with
Sleep Apnea. I have severe problems and they took me off the Respironics BiPap Auto and put me on the Respironics BiPap Auto SV unit. It can handle a lot more problems than the BiPap Auto. You may not need the SV, but you will find a lot of knowledgeable people about the machines and symptoms. Again, no doctors there, no Neurological experts, but it is a good resource. Best wishes for you and hope your 41 years nets you some good treatment. The Air Force screwed me on my last flight physical in '87 and the VA is still at it. Long story. My daughter works for the VA. She was a Ratings Specialist, says the huge push right now is to get the Iraq claims taken care of. WWII, Korea, Vietnam be damned. That is politics. Best wishes for you. You deserve it.
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Things could always get worse!! Sure enough, things got worse. . |
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07-08-2008, 01:02 PM | #4 | ||
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05-27-2011, 11:29 PM | #5 | |||
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05-31-2011, 09:52 PM | #6 | ||
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I have known that I have Myasthenia Gravis since June 2007.
Now I suspect that my fatigue before 2007 was from MG. I was in Kuwait and Iraq in 2004 with the US Army. I will retire on permanent disability on 05 June 2011. My biggest problem now is the tooth decay that the immunosupressents cause. My immune system is deminished and the bacteria causes havoc in my mouth. Yes, I brush,floss and use a germ killing mouth wash twice a day. I've been on Imuran since 2008 plus regular PLEX treatments. I've adjusted to the fatigue and my limitations but this dental thing is really bumming me out. I'll get through this I know but this is my current challenge. |
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07-08-2008, 12:58 PM | #7 | ||
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02-01-2009, 07:08 PM | #8 | ||
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I too have central OSA (diagnosed 1987) and MG (since 2006 or before) and my neurologist informed me that there is research to tie the two together. You may want to contact the Myasthenia Foundation Of America () for more information. They also have a spring seminar where all of the experts speak and the latest state of the art treatment info is disseminated. My problem is getting the VA to consider this service connected (medic in Vietnam 1970-71 in I Corps with 1/6th Infantry, 198th INF Bde, 23d INF DIV. (Americal, aka "Metracal Division"). Exposed to agent orange, C-rats, VC, ARVNS, NVA and lead. Has anyone had any luck getting service connection from DVA? Check out the MGFA and stay well. Tom |
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04-17-2009, 09:49 PM | #9 | ||
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I am pretty sure that some of the chemicals we have been exposed to cause a lot more problems than the VA wants to admit. I may be lucky as Myasthenia Gravis is a VA presumptive condition for Gulf War vets. Getting them to agree that MG is the cause of the apnea is probably going to be a lot more difficult. Keep in touch as my neuro is aware of the research to tie the two afflictions together. If she comes up with some rock-solid evidence, I'll certainly share it with you. Thank you very much for your service. I was in the infantry in the mid-60's but lucked out and got sent to the 8th Infantry Division in Germany for three years.
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02-19-2010, 01:29 AM | #10 | ||
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