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Old 01-29-2007, 12:20 AM #1
Chasta Chasta is offline
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Chasta Chasta is offline
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Default Hello

Hi I am 32 years old and was diagnosed with Myasthenia b/w 18 months and 2 years of age. It wasn't until I was in my 20's I was told I actually had Congenital Myasthenia. I have controlled most symptoms with Mestinon other than the occasional double vision and weakness.
In 1998, our first son was born. I developed post pardum cardiomyopathy after his birth. I am not sure if the pregnancy weakened me or the PPCM itself did, but every two years since I have gone back in the hospital with a MG crisis.
Due to having the congenital type of mg, a Thyectomy (I know I didn't spell that right) would not benefit me. I am glad to have found this board!
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Old 01-29-2007, 02:41 PM #2
urnotme urnotme is offline
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urnotme urnotme is offline
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Hello, Chasta!

Welcome to the board! Sorry, to hear about all your trouble, but you've come to the right place, to talk about things, or just share your troubles.

Good Luck, and hope to get to know you better!
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Matthew 6:34


Therefore do not worry about tommorrow, for tommorow will about itself. Each day has enough trouble of its own.
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Old 01-30-2007, 09:44 PM #3
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Idealist Idealist is offline
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Smile Hi Chasta!

Welcome to these forums. I am very glad that you found us here. I'm not really familiar with your condition, or what it means for you, but I do believe that all sufferers of chronic illness have something very much in common. The pain and disruption it causes in their lives.

I hope you find a lot of information on this site, and make yourself some good friends to talk to who can relate to your condition. Good luck!

Idealist
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