NeuroTalk Support Groups - *Joins the "banned from Healthboards" band-wagon"*

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- - *Joins the "banned from Healthboards" band-wagon"* (https://www.neurotalk.org/social-chat/1545-joins-banned-healthboards-band-wagon.html)

You're welcome. I think it's nice that you want to go back to help others. :)

Geez, I changed my IP address and was banned again. Looks like I'll hang out here for the duration. Those Health boards are now giving me the creeps.

Quote:

Originally Posted by ridesthewind (Post 343495)

I couldn't believe they banned me so I emailed the administrator. There were three exchanges. They said, "Shame Shame on you for not following the rules" I asked what it was that I did after suppling my email URL etc. They replied that I didn't follow the rules. I emailed back that their lock step mentality, vague rules and dispassion for people newly diagnosed with life threatening issues could hurt someone. They emailed back saying to never email them again.
Power heads and its so sad because that forum is filled with people in great need. Luckily I found a real forum dealing with the cancer we are facing. These people are contemptable and should not be placing themselves on the internet at compassionate and helpful. In fact they should be banned from even running that sham of a site!
Thank you all for allowing me to vent.

I need to vent too about my experience with Health Board. After recommending the Nat.Osteop.
Foundation to one of the people on the web - they banned me too in the sharpest hostile way.
Subsequent communication from them to me was stunningly personal, not professional and
neutral. It appears as if they are out to get you instead of helping with empathy and compassion.
I let them know how I felt about their manner of communication and they now write they would
consider a reply from me "internet harassment" - well I consider what they do "harassment".
I will try to find out who is behind this threatening communication. This is shocking behavior
from a website which solicits consumers with medical needs! I certainly will never visit the
website of HEALTH BOARD again after this terrible experience! Thank you for letting me
vent on this website. your shocked consumer!

Congratulations, Idi17, and welcome to NeuroTalk! Hop on up to the intro section and let everyone know you're free at last!;)

Feel free to join right in anywhere your heart desires. Hang out with us for awhile, we're the cool kids and our admins have a remarkable resemblance to real human-type people!:eek:

Glad you came!:)

Ah... I just got banned... I posted a "commercial" website... that is - the magic foundation - which is just a website that helps kids with rare endocrine disorders... but I guess the name sounds like ... oh well.
I managed to hang in for a while. Rat b%st%rds.

Quote:

Originally Posted by rumpled (Post 365649)

Oh brother.

Well, here's your booby prize, your medal of honor, official t-shirt and decoder ring.

Congratulations!:cool:

Why thank you! I will wear that proudly! *blushes*

I argued with them... so I guess I will remain banned. Hah.

"that helps kids with rare endocrine disorders."

who sponsers that web site? boycott them all

I never had the chance to getting banned, as soon as I started get censored, i sent them a rather sharp crossed and direct letter and for most part told them to stuff a sock in it, Sandy and I, had a mutual friend and she contacted me and much to my happiness I was directed here, let me see If I can remember sandys quote, oh yeah " hey you get your butt over here" best thing that happened to me regarding my MS, Thanks NT and friends:grouphug::grouphug::grouphug:

that place is amazing...

How anyone finds help without links totally confuses ME!

I read a post on the Neuropathy forum there recently...which
blocked out the word Google with ****** !

One long post is about the Rebuilder (which we discuss here sometimes).

Since the Rebuilder is often found on Google ads, and other advertising. I guess they allow its name to be used. Rebuilder must be one of their paid advertisers!
There was some dancing around the "name"until page 3. I guess a communication with the mods there finally allowed it?
That was my impression.

The ads there are very very irritating. There is a major ad that appears after each question. The one I saw was for a Mesothelioma foundation!

I personally as an individual would suspect any advice that is not documented by the poster. That is why I put so many links in my posts to illustrate validity of what I suggest.
Some anon person from nowhere...telling you stuff --how can that be safe?
People like to know where their information comes from...so I think totally blocked info
is not a great thing for all.

There also was another censor of a 4 letter word with ****...
and the only thing that made sense was "post". So they have filters in place for non-obscenity words!

The word draconian was used here to describe the style..
The word that came to my mind was FASCISM:

Quote:

American Heritage Dictionary - Cite This Source - Share This
fas·cism (fāsh'ĭz'əm) Pronunciation Key
n.

1. often Fascism
1. A system of government marked by centralization of authority under a dictator, stringent socioeconomic controls, suppression of the opposition through terror and censorship, and typically a policy of belligerent nationalism and racism.
2. A political philosophy or movement based on or advocating such a system of government.
2. Oppressive, dictatorial control.

I suspect their "policy" is dictated by DOCTORS...
since WEBMD appears to be the major thrust of that site.

Being RUDE to members, especially people who are ill, confused and seeking solutions to that suffering is just beyond the pale. While I can understand and agree that spammers are irritating, there are ways in dealing even with them, that do not include the rest of the posters. It is done very well here, for example!

Just my opinion!