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Old 09-12-2008, 08:50 AM #241
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OH BOY.... They got mad that I replied without my user name and email (which was my email) and when my user name was part of my email they told me it was STRIKE 2!!!!

Now, can you figure out my internet provider by just me giving the first part? Now, maybe if I had aol, it may be easy and if I gave hints (after all, personal contact is a no no on that board!!!) but I never did.

I am not sure I am going back. It just makes me so made - I managed to post over 400 times and just telling some poor woman to look for a doctor and perhaps contact the magic foundation got me banned.

I only started to post over there after a friend of mine asked me to support her on a thread where an MRI tech was telling someone that ALL pituitary tumors show up on scans - that it was pretty much fool proof. I explained how one of my tumors hid for 12 years, that the scans make 3mm cuts and that the tumors are often the same size and that documentation exists that up to 40% are missed. But I cannot post links to good sites to prove my point which is annoying. I can understand the ban not to sell anything but good info...

They told me even experts disagree. That I agree with but put out some rational, supported information.

Do you know that if you search for healthbook in google, this thread comes up, almost above the board... ROFL...
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Old 09-12-2008, 08:58 AM #242
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Yep, Rump, the googlebot is a pretty tough cookie. You and your server can be identified by your IP address, so if they're looking for it, they can catch a fresh registration from a banned member.

Personally, with all we've learned about this, I would not want my name associated with theirs in any way. Membership with such a slipshod outfit can't help anyone's credibility.

I agree that abuse of this perceived power is rampant with that group and it serves only to hurt the reputations of its sponsors. The strongest effort would be in notifying those sponsors of the second-rate operations that seem to be their only hallmark.
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Old 11-09-2008, 12:19 PM #243
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Ahh, I found my home!

I got banned from HealthBoards like many of you, for posting links to 2 threads on their very boards with a user lying about their history on a DMD, and praising another DMD for MS.

Now, I can understand being excited about your current DMD. But that bugged the heck out of me that for so long, it went on that they were blacklisting a DMD they admitted on HB 2 years earlier THEY NEVER TRIED. They flat out lied and said they had allergic reactions to the DMD in question, sending them to hospital etc.

I told the admin who emailed me regarding the ban and asked "Do you think it looks good to have someone telling untruths on your boards, hurting other users potentially, who seems almost endorsed in their behavior by the pharmaceutical company in question?" The admin didn't like that and went all Big Brother "Your opinion means nothing" on me.

I'm actually glad they banned me. The email responses I received from there are unreal, beyond the actual issue at hand.
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Old 11-09-2008, 04:24 PM #244
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ever get a case of de ja vue
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Old 11-09-2008, 04:40 PM #245
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Quote:
Originally Posted by weegot5kiz View Post
ever get a case of de ja vue
LOL Frank, you're going to stalk me with that sauce aren't ya?
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March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 12-05-2008, 01:39 AM #246
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I was suspended for telling a member to do a search on an author of a book. I did not know that this is not allowed. I asked for reinstatement, I posted the e-mail chain. This is absurd, the moderator is totally going against the rules just to show their authority I suppose. What a loser, I am so annoyed!
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Old 12-05-2008, 10:42 AM #247
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I think this thread has run its course and I'm going to close it.

I'd really rather we focus on the positive and leave our gripes about other online communities at the door. Thanks muchly!

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