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-   -   Treats after treatments? (https://www.neurotalk.org/social-chat/38623-treats-treatments.html)

tovaxin_lab_rat 02-10-2008 07:54 PM

Quote:

Originally Posted by Koala77 (Post 212545)
:Excited: :I-Agree: If only postage wasn't so darned expensive.! :eek:

Am reading an old (1979) Mary Higgins Clark book that I hadn't read before .............found it at the library last week ("Pretend You Don't See Her"). I think I must have read nearly all of hers now as well.

Edit: Oops! That's 1997, not 1979. :)

Postage isn't a big deal...it would only be me sending it to you...and no return postage! LOL!

;)

Koala77 02-10-2008 07:57 PM

Quote:

Originally Posted by Av8rgirl (Post 212552)
Postage isn't a big deal...it would only be me sending it to you...and no return postage! LOL!

;)

That is so very sweet of you FG. As much as I'd love to receive them you're probably like me, existing on a tight budget, and I can't allow you to do that.

Thank you from the bottom of my heart though. I really appreciate the thought. :hug:

braingonebad 02-10-2008 08:02 PM

Quote:

Originally Posted by Koala77 (Post 212556)
That is so very sweet of you FG. As much as I'd love to receive them you're like me, existing on a tight budget, and I can't allow you to do that.

Thank you from the bottom of my heart though. I really appreciate the thought. :hug:

I think since she offered, you ought to let her send you at least one book.

(Now if everyone sent a book, you'd be in BIG trouble!)

Koala, buried in books, lol....

Koala77 02-10-2008 08:05 PM

Quote:

Originally Posted by braingonebad (Post 212563)
..................(Now if everyone sent a book, you'd be in BIG trouble!)............Koala, buried in books, lol....

As a genuine book worm, that'd be almost fantasy stuff :D

And that was not a hint!

ckepi 02-11-2008 12:00 PM

I agree we definately deserve treats after txs!

We give up so much and we should be rewarded for the fact that we keep fighting and trying things to keep ourselves healthy despite this disease.

Especially given that there aren't any treatments as of yet that are "guarenteed" to help, every time we step up to the plate even thought it "may or may not" help we should be rewarded!

Some times I think that's the hardest thing for others to understand, we don't know which treatment really is making a difference verses "our" natural disease course. Further more any treatment can just stop helping us at any time.

Yet many of us keep the faith that "it", meaning what ever tx you choose, will help even if others have failed.

Some times I wonder if even we realize how truly hopefull and opptimistic we all are. After all we keep trying despite the odds, we persevere.

We take those daily, weekly, monthly shots, we join medical studies, we donate blood for research, we answer questionaires, we come here to help each other and answer questions.

We continue to fight despite a lack of concrete evidence that we are making a difference, in the face of dissapointment when that new "wonder drug" turns out not to be so wonderful, we don't give up.

So yes we deserve a treat every now and then!

Sorry I've been forim jumping and was thinking I was in MS social chat, so alot of my post refers to my feelings on MS. But every one else deserves a treat too!!!

Tootsie 02-11-2008 12:18 PM

Quote:

Originally Posted by Koala77 (Post 212053)
Hmmmmmm! I go for my next MRI on Tuesday, and I do so hate those! I think I'll deserve a treat if I'm brave.

I'm not a chocolate person, or an icecream person, infact I don't have a sweet tooth at all.

I'm on dissability so can't afford a new book!

Oh my! What a dilemma! :(

I have a sweet tooth and LOVE chocolate. I think you are lucky that you don't.

Have you tried going online to your library site? If your library is small, find out what the nearest big one is and go to theirs.

Some libraries will mail you a book. You can mail it back. I'm just suggesting this in case you can't get out.

Garage sales have cheap books (usually 10 or 25 cents; occasionally a bit more).

I also use Amazon and do the 'used' book thing. I got my DH a book for a penny. Of course i still had to pay shipping and handling, but that still made the book cheap.

I also dislike the MRI. I'm not afraid of it, I just don't like to lay there with a 'dead' mind listening to the grinding of the MRI. So I ask for earphones and I take a book on cd or a music cd I like. That helps.

If you can't do that then ask for a sedative and go to sleep.

Tomorrow I go for a nerve conduction test (I've never had one before). I just hate tests and I am always wary of the unknown.:confused:

Tootsie

braingonebad 02-11-2008 07:13 PM

Quote:

Originally Posted by ckepi (Post 212952)
I agree we definately deserve treats after txs!

We give up so much and we should be rewarded for the fact that we keep fighting and trying things to keep ourselves healthy despite this disease.

Especially given that there aren't any treatments as of yet that are "guarenteed" to help, every time we step up to the plate even thought it "may or may not" help we should be rewarded!

Some times I think that's the hardest thing for others to understand, we don't know which treatment really is making a difference verses "our" natural disease course. Further more any treatment can just stop helping us at any time.

Yet many of us keep the faith that "it", meaning what ever tx you choose, will help even if others have failed.

Some times I wonder if even we realize how truly hopefull and opptimistic we all are. After all we keep trying despite the odds, we persevere.

We take those daily, weekly, monthly shots, we join medical studies, we donate blood for research, we answer questionaires, we come here to help each other and answer questions.

We continue to fight despite a lack of concrete evidence that we are making a difference, in the face of dissapointment when that new "wonder drug" turns out not to be so wonderful, we don't give up.

So yes we deserve a treat every now and then!

Sorry I've been forim jumping and was thinking I was in MS social chat, so alot of my post refers to my feelings on MS. But every one else deserves a treat too!!!

Remember (now i'm gonna date myself) that old song,

On and on
She just keeps on trying
And she smile when she feels like crying
on and on, on and on....

Your post brought that to mind.

:rolleyes:

I ask myself why I do it.

My pessimistic side does not want another *experiment*. :(

My daredevil side says *You can't win if you don't play*. :cool:

And the daredevil wins.

At any rate it's an adventure.

I'm not brave, optimistic or so much hopeful, I don't think. I don't know what anybody else's motives are. I try the meds and the shots and whatever because they seem like the lesser of the evils. Feels like I have nothing to lose and I'll never know if it'll help if I don't try.

Scary, sucky way to live.

Thing is, after an LP 4 ESIs etc - I can let a lot of other stuff slide where before I never could. People talking on cell phones in the grocery is just not that bad after the needles in the neck. Annoying, but not painful, you know?

When I say "I've had worse days" - the days with the needles are the ones I'm usually referring to.

:p

That said, there are scarier, suckier ways to live than the needle days too and I'm dang glad I don't have to live those.


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