YUP. Ditto.

The Ungulate said it all.:)

(mouthy broad that she is!) :p

OMG..... you're gonna scare him off by calling me an Ungulate. And if he's read anything on the MS forum.....we're BOTH in trouble.

So definitely read the Vibration thread and the What you sleep in thread! :D:D:D

it is nice to know that im not the only one who feels slighted by MS. not so much in the 'misery loves company' context, but it makes me feel like less of a freak.i guess i skipped the denial stage and went straight to anger. or in my case ****** off.

FluteMaker,

I did the same thing! I never denied it. I just got angry!

It effectively cancelled a job I had for a very long time that I TRULY loved, shut down all my extra income, took me away from a volunteer job that I loved, and cancelled the solution I had for education (free paid training and CEHs that spread across all my jobs) It turned me into a stiff, fat, aging woman instead of the human dynamo that I used to be.

(can you tell i am still ****** after 4 years?):p

I had a lovely day with a friend who also has MS yesterday. We walked and talked and laughed and it put some things in perspective for me yet again!

You're not alone with this crap!:hug:

Flutemaker:

You said:
"we checked with copaxones 'shared solutions' people to see about getting financial aid and were turned down. it seems my wife makes too much money.according to the folks at SSDI, im still capable of working. obviously not in my chosen field of the building trades,but i can still do something."

This is just a thought but I've heard of MANY couples who have done what I am going to suggest to you. There is no right or wrong in doing this. It's a matter of finance and getting the meds that you need without breaking the bank.

I knew a couple where one of the partners had an illness. They made TOO MUCH of an income to qualify for what the guy needed. So what did they do? They got a divorce (only on paper). They still lived together, they were a family, they were a couple. But on paper they were not man and wife.

So what happened? Well, he qualified for whatever he needed to qualify for and he got whatever he needed. He never would have gotten ANY of this if he had continued to be married.

Does this stink? Of course. But it is what it is. So if there are no religious barriers for you (this is just a suggestion), did you ever even consider doing this?

If this had happened to me and my husband and the only thing standing in the way of one of us getting the meds we needed, or being able to participate in a program, well we would do what needed to be done. AND THEN WE WOULD HAVE A PRIVATE COMMITMENT CEREMONY, that would mean more than any piece of paper.

See where I'm heading?? I am just wondering if either of you has even considered this option? I tried to read all the responses to your post but I don't think anyone came up with this suggestion.

Years and years ago (in my grandmother's time), if a widow remarried, she lost her husband's pension, so what did the older ladies do?
They lived with the guy and still collected the pension.

They did what they had to do.

If circumstances stand in the way of your getting WHATEVER you need to get, THEN JUST KICK THOSE CIRCUMSTANCES TO THE CURB. Your wife will continue to be your wife. She will be the wife of YOUR HEART!!

At least that's how I look at life.

I hope I'm not offending you by this alternative but I read your heartfelt posting and yes, I agree, LIFE DOES SUCK, now doesn't it?

But since we have to go on, buck up, face this and face that, well... if you find that NOT BEING MAN AND WIFE, is economically better than BEING man and wife, well ........

Have you ever thought of this??

Fondly,

Melody

yeah, we considered a paper only divorce. for about 20 seconds.
10 seconds of which included a trip to the kitchen for sodas and chips.we decided that the idea of ' for better or worse, in sickness and health' fell squarely in line with what was going on. to our minds it wasnt just a simple vow that we took. it was a kind of promise that you just dont break. for any reason.

Understood!!

and I respect your feelings.

You take care and I do hope things work out for you.

Melody

I know this is a bit "older" thread now, but here's a link where you can look for some assistance with Rxs:
http://www.benefitscheckup.org/

well folks, i seem to be working my way out of my funk. a little bit at least. back on the 20th i was at the neuro and had some good news i needed. my neuro is pleased with the progress ive made with the LDN and is going to keep me on it. at my appointment on sept 8th he told me that if i was going to get 'anything' back id have most likely gotten it back by then and RX'd for PT and OT 3times a week and marked my edss at 4 -4.5
on the 20th he re-evaluated that and changed it to < 1. (less than 1)
i still put alot of concentration into my walking and pretty much everything else i do, but im feeling good enough to have asked for my spot back on the schedule at work.