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Old 05-14-2010, 04:40 PM #1
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I have done some editing here to keep this thread from veering off at a tangent and so that we can keep the information more clear for those seeking assistance

the discussion part is now on the board here
http://neurotalk.psychcentral.com/thread122123.html

thank you
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Old 04-12-2011, 10:53 AM #2
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I'm glad I found your post. Housing is the next big issue for me to tackle. In Los Angeles the waiting lists are very long, so I might have to rent a room in someone's house. My mortgage is now in default and I can't possibly afford to stay here. I will check out the HUD link.
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Old 04-26-2010, 06:21 PM #3
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Default Catch 22- Tips & Helpful info

I just finsihed an article on the Adult Function Report Becaise there seems to be a lot of questions about it. If anyone has the time to read it and give me feedback I would be very very grateful. I take criticism well so be honest. Thank you, Trudi

Function Report – How to Complete It

If you after you applied for SSDI and received an Adult Function Report it’s good news, it means your application is under active consideration. If you are just now applying for SSDI it’s best to complete the Adult Function Report and submit it with you application. **
There’s no getting around the fact that it’s a long form with three sections, a total of 21 main questions and 50 sub questions. But, taken a step at a time it’s not as overwhelming as it appears.
SSDI’s purpose for having you complete this form is to compare your daily activities with typical mental and physical job activities. They are looking for consistency between your application and the Adult Function Report to determine if your responses are consistent with your disability. The reality is that they are trying to justify that you can do other work and deny your benefits.
Your goal is to prove that the limitations caused by your disabilities are severe enough to significantly impact activities of your daily life. Always be honest but use the worst day scenario to explain your limitation. Give the SSDI sufficient evidence to ensure they understand your inability to function normally.

General Rules for Answering Questions.

1. Follow the instructions on the front page of the application. Do not leave and field blank, if a question does not apply to you write NA and strike a line through it. If you have already answered a question write “See Question X”.
2. Many times your answers are too lengthy to be answered in the space provided. Write your response on a separate piece of paper with the Question being answered at the top of the page and write in the question’s field “See attachment Question X”
3. Answering the question in depth with as much detail as you can manage is the best approach to this form. Your goal is to paint a picture for the case examiner how horrific your daily life can be.
4. Always be honest but use the worst case scenario when answering the question.
5. It is critical you describe what you cannot do, detail how you are dysfunctional, how your illness limits your ability to function.
6. When describing a symptom use the three characteristics: frequency (how often does it happen), duration (how long does it last) and severity (how bad is it).
7. Use descriptive (adjectives and adverbs) language when writing about your functional limitations.
8. Give related answers even if they don’t specifically relate to the question.
9. Keep in mind to compare your life before your illness with what you’re capable of doing now.
10. And don’t worry about repeating yourself.

Psychological Perspective

Our behaviors are initiated by our psychological perspectives. With a disability almost everyone is affected by psychological disturbance. Some of them include: disorientation to time and place, memory impairment, perceptual or thinking disturbances, change in personality, disturbance in mood, emotional labiality and impaired impulse control and loss of intellectual ability. Mood disturbances include loss of interest in almost all activities, appetite disturbances, increased feeling of guilt, thoughts of suicide and easy distractibility.
Another aspect of the psychological perspective is cognitive impairments which refers to mental processes of perception, memory, judgment and reasoning. It relates to the interaction of the brain and functioning problems such as calculation difficulties, special disorientation, transposition of words, memory disturbances, decision making, confusion, short and long term memory loss and difficulty reading and writing.
Consider each of the disturbances or changes to your psychological perspective and write examples of how they affect you so your can incorporate them in your answers. Using these concepts in your responses corresponds with the SSDI ‘mindset’. They readily understand these symptoms. The use of these concepts enhances your responses.

Critical Questions

Question 6
Question #6,” Describe what you do from the time you wake up until going to bed.” Is an intimidating question and should be the last question answered. The remaining questions on the form will give you a lot of information to use to answer what you do all day. When you do respond to the question consider physical and mental aspects of your life.
Begin with sleeping habits and disturbances and how you feel (emotional & physically) when you get up. Daily patterns vary so don’t hesitate to say “Some days I…and other days I….” Characterize the activities you can’ do comparing them with what you used to be able to. Typical days include eating which can include a wide variety of reaction from lack of appetite, to binging to lacking energy to prepare meals. Consider how you fill your time; do you watch TV because you have no motivation for anything else? Do you read but constantly have to reread passages because you lack focus? Do you start projects and not finish them? Do you just sit and stare at the walls? How has your social life changed due to your illness? It’s okay to go off on tangents. Don’t forget the use of medication and the reactions you may have to it.
You may want to make a list of things you want to describe before you begin answering the question. Do not worry about repeating yourself. The answer to this question should be long enough to require a separate page or attachment

Question 10

Question #10 “What were you able to do before your illness, injuries or conditions that you can’t do now?” is another critical question. Unbelievably, the form gives you a single line to respond to this question, so obviously because of the serious and complicated nature of your answer you’ll need to submit an attachment.
Before you start to respond to the question take a separate piece of paper and make notes so that your answer is more coherent. The two basic categories of changes are physical and mental. Whichever type of disability you have, your functionality is impaired in both categories and related to one another. This is not a work related question but rather a question about daily activities. Here are some suggestions to get you started
Can you maintain a regular schedule or is your day dictated by your limitations?
What are your physical limitations and how do they effect you, what were like before your disability?
What are your mental limitations and how do they affect you and what were you like before your disability?
What aspects of your disability bother you the most?

Question #20

Question #20 has 12 sub questions, (a) though (l). The more important questions have explanations and the less critical questions are listed.
Question 20 “(a) Check any of the following items that your illnesses, injuries or conditions affect: [there is a list of 19 physical and mental items] Please explain how your illnesses, injuries or conditions affect each of the items you’ve checked.”
A person with a severe disability will have checked off numerous items and the space provided on the form is insufficient to write a detail answer. Besides the physical items like bending, standing and sitting there are several important cognitive functioning items like memory, completing tasks, concentration, understanding (verbal instructions of concepts), following instructions [verbal or written] and getting along with others. You can readily see how these items are directly related to work activities but you need to describe incidents of how these items affect you daily life.
As an example with my cognitive dysfunction I get easily confused when I’m driving a car and can’t understand the easiest of verbal instructions so I have them written down and still have difficulty arriving at my destination. (This one example shows impairments to memory, understanding and following instructions.) Before I was disabled I was an easy going person rarely showing anger, since my disability I frequently fly off the handle at a check out clerk for checking to slow or a complete stranger who parks too close to my car.
It’s important to think through your experiences to find examples of how your disability limits your ability to function in the items the SSDI mentions.
Other questions include:
(d) For how long can you pay attention?
(e) Do you finish what you start?
(f) How well do you follow written instructions?
(g) How well do you follow spoken instructions?
These questions deal with your ability to focus which is part of the cognitive function of the brain. The root cause can be many factors including anxiety, depression, fearful, anger, and self-esteem. Regardless of the root case, it manifests in the inability to adequately function in one or all of questions d through g. Other cognitive function causing the inability to focus include self-restraint, working memory, emotional control, task initiation, planning and prioritizing, organization, time management, defining and achieving goals..
(h) How well do you get along with authority figures?
(i) Have you ever been fired or laid off from a job because of problems getting along with other people?
*(j) How well do you handle stress?
*(k) How well do you handle changes in routine?
(l) Have you notice any unusual behaviors or fears?
The * next to questions j and k signifies these are important questions. Most people get denied because SSDI determine they are able to do other work or they can do past work. The inability to handle stress or handles changes in routine eliminates you from doing sedentary (other) work. Always be honest but describe as many examples of your inability to handle stress, (getting easily frustrated or angry) and your attitudes towards changes in your daily schedule or environment.
Conclusion
Despite the length of the report, it is important to write detailed answers using descriptive language and objective measurements when possible. Be honest, but use your worst days as examples.
Keep in mind that SSDI is not your friend or advocate. There is a culture of denial that exists within SSDI and they are looking for reasons to deny you benefits. Describe to the best of your ability the limitations to your daily activities.
Make a copy before you mail it to SSDI. I wish you the best of luck.
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Old 01-21-2014, 06:54 PM #4
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I'm gonna try and make this short and sweet,I'm 38yrs old with many health condition from not taking care of my diabetes.been trying to get sssd,the lawyer I have [I]STINKS,been to 2 hearing and still been denied,my attorney appealed the last unfavorable decision,denied for that to.tryed contracting my attorney on what to do and pretty much seem like he lost interest in it.Learn something about my insured date ran out so I can now only apply for ssi,what should I do.Lost plus going thru withdrawls from pain ,that I was on after open hearth surgery,So I'm pretty shrewed up right now.HELP!!!!!
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Old 01-22-2014, 02:33 PM #5
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Quote:
Originally Posted by rogerssamnnik11 View Post
I'm gonna try and make this short and sweet,I'm 38yrs old with many health condition from not taking care of my diabetes.been trying to get sssd,the lawyer I have [I]STINKS,been to 2 hearing and still been denied,my attorney appealed the last unfavorable decision,denied for that to.tryed contracting my attorney on what to do and pretty much seem like he lost interest in it.Learn something about my insured date ran out so I can now only apply for ssi,what should I do.Lost plus going thru withdrawls from pain ,that I was on after open hearth surgery,So I'm pretty shrewed up right now.HELP!!!!!
Best to start a new thread. The more detailed your description of WHY the ALJ denied you would be helpful. Did you simply not appeal the last decision?
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Old 02-20-2014, 08:10 AM #6
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Default Prescription Meds

options for those needing discounted/free meds

http://www.mendosa.com/financial_aid.htm
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Old 04-03-2015, 11:22 AM #7
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Another source for free and/or discounted meds.....

NEEDY MEDS

"Prescription assistance can be offered in the way of Patient Assistance Programs (PAPs), which are created by pharmaceutical companies to provide free or discounted medicines to people who are unable to afford them. Each program has its own qualifying criteria."


You can also call the rx manufacturer directly to find out if they have a Patient Assistance Program. If so, they will mail you the application w/in 48 hrs. This process is much faster than going through NeedyMeds.


TIP: ALWAYS ASK YOUR DOCTOR FOR SAMPLES OF YOUR RX. THEY ARE ALWAYS FREE!!!!!






HTH


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Old 08-30-2011, 09:26 PM #8
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Quote:
Originally Posted by LIT LOVE View Post
You're too ill to work, but the SSDI process takes so long for approval how can you survive while waiting?

The SAD truth is after personal resources run out, the disabled often become financially dependent on their family, or worse yet, they end up homeless. I've met both varieties over the years.

I can't tell you how many healthy people have told me they couldn't stop working if they became disabled--as if it's a choice--as if they could somehow tough it out, so to speak. Are there people who are approved for SSDI who can work? YES. Are there people who can't work, even PT, that are denied for SSDI. YUP!

Is the difference an evil judge? A bad attorney? A crazy vocational expert? It can feel that way at times. In hindsight, I substantially lengthed the approval process by not doing adequate research my first go around when I was being represented by an attorney. My best advice is to hire the best attorney you can find, but be prepared as if you were representing yourself. Know what is in your file! (I brought a friend who did all the copying for me.) At the ALJ hearing level you do not want to be blindsided by documents from experts you've never met. Read. Research. Repeat.

ASSUME the SSDI approval process will take years! Utilize any other resources available in your area.

Is there a waiting list for housing assitance in your area? The list might seem absurdly long, but it might happen faster than a Fully Favorable SSDI decision. Some housing programs will even bump you to the top if you're disabled.

I made a rather costly blunder of not filing an application for state disibility after I was injured since it was a Worker's Comp claim. There was a window of more than a year when I had zero income and wished I had known to preserve those state benefits.

Check to see if your community has a transportation program for the disabled. An aquaintance I knew was getting rent money from her church while using child support for SUV payments, it still was repo'd, just many months and several thousand dollars later. Argh. Once the car was gone she was less stressed and as it turned out, her doc had her license yanked anyway.

The YMCA has warm water classes that amount to physical therapy which are free or low cost for households with low incomes.

If you're too ill to be proactive regarding your local resources ask a friend and/or family to help. And, I'm sure others on the board have better suggestions than I, so please add your two cents!
Thanks for your post, are you aware of a good attorney in southern CA for SSDI? I was just denied on my appeal and am truly at my wits end. Thought it might be easier to just let myself fall apart and get "taken away". I have lost my entire life in the past year since I fell. They are wearing me down, when I'm already too weak to fight.
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Old 09-08-2011, 05:11 PM #9
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If you go here https://secure.ssa.gov/apps6z/FOLO/Controller and then enter your zip code, an option at the bottom of the page comes up for other local agencies that might be able to help you with housing, welfare, etc.
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Old 06-17-2012, 05:31 PM #10
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Trudi,

I am printing off your blog to read it thoroughly. My husband has a vp shunt due to hydrocephalus at age 2. He is now 45 and has has six subsequent revisions. He is have significant cognitive issues, but has been denied social security for four years. His last denial essentially said "You have a Master's Degree, you can do something". His memory and personality have changed significantly since his last shunt revision in 1997.

We now have an attorney and an appointment with an Administrative Law Judge on July 24, 2012. My husband has issues that resulted from the shunt. . .they believe that during the initial shunt placement he had a stroke in the right visual cortex which left him with no right perpherial vision in either eye, he cannot drive.

I am so thankful for this group it is comforting for me to be able to find out that we are all subjected to the same thing from the government.

Virginia
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