advertisement
Reply
 
Thread Tools Display Modes
Old 11-05-2011, 03:23 PM #31
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Re: got it

[thanks, I got it now. I am slow about these things I guess. Now i know. appreciate it. ginnie
ginnie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
LIT LOVE (11-05-2011)

advertisement
Old 06-17-2012, 05:31 PM #32
Vjustice Vjustice is offline
New Member
 
Join Date: Jun 2012
Posts: 2
10 yr Member
Vjustice Vjustice is offline
New Member
 
Join Date: Jun 2012
Posts: 2
10 yr Member
Default

Trudi,

I am printing off your blog to read it thoroughly. My husband has a vp shunt due to hydrocephalus at age 2. He is now 45 and has has six subsequent revisions. He is have significant cognitive issues, but has been denied social security for four years. His last denial essentially said "You have a Master's Degree, you can do something". His memory and personality have changed significantly since his last shunt revision in 1997.

We now have an attorney and an appointment with an Administrative Law Judge on July 24, 2012. My husband has issues that resulted from the shunt. . .they believe that during the initial shunt placement he had a stroke in the right visual cortex which left him with no right perpherial vision in either eye, he cannot drive.

I am so thankful for this group it is comforting for me to be able to find out that we are all subjected to the same thing from the government.

Virginia
Vjustice is offline   Reply With QuoteReply With Quote
Old 06-17-2012, 06:52 PM #33
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hello Vjustice

I hope the attorney can help. Seems to me if he cannot drive, and only has part of his vision, and has had a stroke, should be enough to qualify. It makes me sad, when folks that really can't work are denied time and time again. Please give your husband my best. ginnie
ginnie is offline   Reply With QuoteReply With Quote
Old 06-19-2012, 11:43 PM #34
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
Default

Hi VJustice !

I would really focus on what has happened since the last shunt revision in 1997.

While I, and most people I know, would be DEVASTED by not being able to drive at all and having vision problems, you need to consider that MANY people who can't drive can work.

A stroke sounds awful to most people, but Tedi Bruschi of the New England Patriots returned to PROFESSIONAL football after his stroke.

Some of your husband's issues have been going on since childhood, but since then he has gotten married and completed an education through the Master's level.

While his history of health issues must have obviously presented huge challenges, he has proven that he could overcome many of those. That's why I would focus more on the more recent changes. What impact did the 1997 revision have on his functionality ? Did he complete his education before that and has more issues now ? I don't mean that you should necessarily answer that here.....more think about it and address those issues in your communication with SSA.

I think a lot of people make the mistake, when applying for SSDI, of thinking that 'listing the diagnoses' will speak for itself. It doesn't. One person can have a stroke and be disabled and TOTALLY dependent on others for care, while another can regain function and have minimal or no disability.

Focus on documentation (from you/your husband AND his healthcare team) that says why HE can't work.....ie....maybe he can focus on a task for 15 minutes, but no more, maybe he can't be relied apon to have the cognitive ability to complete ANY tasks during a workday. Maybe he can sit or stand for a few hours one day, but could have to lay down and rest AT ANY TIME making it impossible for him to sit up and do a simple task at any reliable time. Maybe he requires assistance to do anything, etc

This is such a hard process. He is lucky to have someone who 'has his back' to help him through it. Best of luck to both of you !
__________________

.


Gee, this looks like a great place to sit and have a picnic with my yummy bone !
finz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (06-20-2012)
Old 01-21-2014, 06:54 PM #35
rogerssamnnik11's Avatar
rogerssamnnik11 rogerssamnnik11 is offline
New Member
 
Join Date: Jan 2014
Posts: 1
10 yr Member
rogerssamnnik11 rogerssamnnik11 is offline
New Member
rogerssamnnik11's Avatar
 
Join Date: Jan 2014
Posts: 1
10 yr Member
Default

I'm gonna try and make this short and sweet,I'm 38yrs old with many health condition from not taking care of my diabetes.been trying to get sssd,the lawyer I have [I]STINKS,been to 2 hearing and still been denied,my attorney appealed the last unfavorable decision,denied for that to.tryed contracting my attorney on what to do and pretty much seem like he lost interest in it.Learn something about my insured date ran out so I can now only apply for ssi,what should I do.Lost plus going thru withdrawls from pain ,that I was on after open hearth surgery,So I'm pretty shrewed up right now.HELP!!!!!
rogerssamnnik11 is offline   Reply With QuoteReply With Quote
Old 01-22-2014, 02:33 PM #36
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default

Quote:
Originally Posted by rogerssamnnik11 View Post
I'm gonna try and make this short and sweet,I'm 38yrs old with many health condition from not taking care of my diabetes.been trying to get sssd,the lawyer I have [I]STINKS,been to 2 hearing and still been denied,my attorney appealed the last unfavorable decision,denied for that to.tryed contracting my attorney on what to do and pretty much seem like he lost interest in it.Learn something about my insured date ran out so I can now only apply for ssi,what should I do.Lost plus going thru withdrawls from pain ,that I was on after open hearth surgery,So I'm pretty shrewed up right now.HELP!!!!!
Best to start a new thread. The more detailed your description of WHY the ALJ denied you would be helpful. Did you simply not appeal the last decision?
LIT LOVE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Echiyona (08-21-2014)
Old 02-20-2014, 08:10 AM #37
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default Prescription Meds

options for those needing discounted/free meds

http://www.mendosa.com/financial_aid.htm
LIT LOVE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mz Migraine (04-03-2015)
Old 04-03-2015, 11:22 AM #38
Mz Migraine Mz Migraine is offline
Member
 
Join Date: Mar 2010
Posts: 496
10 yr Member
Mz Migraine Mz Migraine is offline
Member
 
Join Date: Mar 2010
Posts: 496
10 yr Member
Default

Another source for free and/or discounted meds.....

NEEDY MEDS

"Prescription assistance can be offered in the way of Patient Assistance Programs (PAPs), which are created by pharmaceutical companies to provide free or discounted medicines to people who are unable to afford them. Each program has its own qualifying criteria."


You can also call the rx manufacturer directly to find out if they have a Patient Assistance Program. If so, they will mail you the application w/in 48 hrs. This process is much faster than going through NeedyMeds.


TIP: ALWAYS ASK YOUR DOCTOR FOR SAMPLES OF YOUR RX. THEY ARE ALWAYS FREE!!!!!






HTH


__________________
"Invisible" Disability
.
Mz Migraine is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
LIT LOVE (04-25-2015)
Old 05-14-2015, 08:16 PM #39
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default

Excellent Washington Post article explaining the SSI/SSDI backlog

http://www.washingtonpost.com/sf/nat...ent/?tid=sm_fb
LIT LOVE is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mz Migraine (05-15-2015)
Old 05-15-2015, 12:55 PM #40
Mz Migraine Mz Migraine is offline
Member
 
Join Date: Mar 2010
Posts: 496
10 yr Member
Mz Migraine Mz Migraine is offline
Member
 
Join Date: Mar 2010
Posts: 496
10 yr Member
Default

Quote:
Originally Posted by LIT LOVE View Post
Excellent Washington Post article explaining the SSI/SSDI backlog

http://www.washingtonpost.com/sf/nat...ent/?tid=sm_fb
"The backlog got bigger. The office is now 1 million cases behind."



__________________
"Invisible" Disability
.
Mz Migraine is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Helpful Info for New Members of the NeuroTalk Community Chemar New Member Introductions 11 08-18-2019 06:12 PM
SSDI... helpful info.. keep smilin Reflex Sympathetic Dystrophy (RSD and CRPS) 15 08-12-2012 02:26 PM
Useful info & southernlady's PC tips kimmydawn Computers and Technology 9 10-10-2011 10:11 PM
Just to catch you up... Momma's Kids Social Chat 8 06-21-2009 10:16 PM
It's been a while, and just to catch up.... bluedahlia Parkinson's Disease 4 12-29-2006 09:41 PM


All times are GMT -5. The time now is 02:26 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.