You are the first human being that has listened to me. This trust stuff nobody wants to hear about, but it controlls my life. I was hopeing somebody someday would kinda understand what this trust did. People should not have to loose all they have in order to receive health aid. I did loose all, and it is kind of you to respond and tried to understand this lonely mess I am in. Thank you ever so much for your resonces. ginnie

I am guessing that you are thanking me even though I haven't been a pillar of support, if so, you are are welcome.

But now I am confused again. If you worked 30 years and paid FICA/SS taxes while working and then became eligible for disability benefits, it should have been SSDI and then you would also have Medicare after 24 months. With Medicare, you have premiums, deductibles and co-pays but the bulk of your medical bills would be covered. This would be SSDI not SSI. Something is missing in your explanations.

However, at this point, you need to stay calm and not get agitated before your surgery. Do good things for yourself. A nice meal. A walk or drive in a pretty area. Talk to a good friend. Watch children play. Read a good novel.

Stay away from this site for awhile.

Truely, from the beginning, this trust has been confusing. I know right now, I get two checks, one is from disability SSD, and another that started just a few months ago, from Social Security income. The SSDI together, I was not told about. I didn't have any help to get the government help. I did use all the moneis that were mine, I ran out of money. I could not get any SSI intil all the money was gone. The social Security income one is the one that is not getting it very well, even though they have the document, telling them what I am suppose to do. I can't spend what isn't mine, I must fulfill what mom said. It is so very hard to find help for yourself, knowing full well that the money you have is down to nothing. I was granted dissability first, I had to pay the 20% of what I owe for my medical care. That came out of the trust, Sean my son had to OK this each time I drew money out for my care.As long as that money was in there, I was told I could receive no more help. I ran out of money that was mine to use last year, and then started with my church to find out how I can get more help. I was granted medicade/medicare duo. Then I got the SSI very quick after that. All these agiencies have their heads spinning over the trust, and they come to me asking what it means. I also found out while I had medicare, that you must pay your 20% or you could loose your dissability. So I was a good girl and paid the doctors the 20%. What is left in the trust belongs to a beneficiary of the trust,my son. He should not have to pay for my dissabilites. They money left belongs to him. I must do as my mother asked and distribute what she said. I cannot access this account ever. It is my sons call on what happens. So I actually cannot use what is left anyway. He had to sign as c0-trustee every thing that happened. We tried to hold on to the money as best we could, but my mothers money was not really that much considering what hospital costs are. I had six surgerys in 4 years, now another this monday. Mom didn't want me to spend it on medical cause she knew it would run out very quickly, in fact that is exactly what happened. She wanted me to keep my home, a soft place to fall. Nothing has been easy for me. I will get through the surgery on monday, but I am shakey, cause I know there will be pain for awhile. Thanks for all you did in listening to me, these agencies sure don't very well. Its been a long journey, and it is time I closed this ridiculas document, do what I can to be free of it. I am grateful for the help I get now, but I am always worried they will take it away, and put me out of here altogether. I would have to walk away from the house if I received nothing. The 20%'s and the cost of living, did indeed cost all my folks had. thanks again, ginnie