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Old 08-17-2012, 08:00 PM #31
Bobby17 Bobby17 is offline
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Echoes, have your reviews been right on time?

I wish ss would throw me a bone one time and forgot about me for 5 years. lolll

I think i will look into seeing neurologist, becuase i sort of feel guilty not letting my ortho do another surgery. Just want to hold off as long as i can, using meds.

Does there ever come a time in Social Securities eyes, when basically theres nothing more doctors can do and a person just has to live what they got?

bobby
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Old 08-17-2012, 08:10 PM #32
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Default social security reviews

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Echoes, have your reviews been right on time?

I wish ss would throw me a bone one time and forgot about me for 5 years. lolll

I think i will look into seeing neurologist, becuase i sort of feel guilty not letting my ortho do another surgery. Just want to hold off as long as i can, using meds.

Does there ever come a time in Social Securities eyes, when basically theres nothing more doctors can do and a person just has to live what they got?

bobby
bobby,this usually is the case with people who are either terminally ill or who's condition is not expected to improve.
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Old 08-17-2012, 09:03 PM #33
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i just had one short form sent in june. so no mine was not on time. i posted that i had just gotten the short form but no one posted anything back...ha
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Old 08-17-2012, 10:37 PM #34
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How late were they with you and what is your review diary set at?

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i just had one short form sent in june. so no mine was not on time. i posted that i had just gotten the short form but no one posted anything back...ha
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Old 08-18-2012, 12:11 AM #35
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mine was 3 years but came 4 years later.
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Old 08-18-2012, 12:30 PM #36
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Default Hi Bobby

Hi bobby. I feel the same way you do. I do not want to do any more surgery, no matter what happens. I am done with spinal fusions. I don't want to be forced into more treatment, just because I fear loosing my disability if I don't. that is not how I want to live my life either. I know my neck isn't gong to get better. We should not be made to feel this pressure on top of what is already wrong. don't feel guilty. Just get a check up, and don't be forced to do more than you want to do. I think I would go before a judge and tell him the same thing. It is our bodies...not ss. I wish you all the best. I feel guilty because I worry about going down on my medications. I really want to try. Is this going to tell ss that I am getting better? I don't want to stay on the high doses if I can get by with less... same issue. ginnie
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Old 08-19-2012, 03:00 AM #37
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Damn Ginnie, your post feels like i wrote it myself. That is 100 percent how i feel. I know SS has a job to do and need to check people, but there should come a point, where they realize a person isnt gonna suddenly become better 3 or 5 years from their last review. They shouldnt think that your improved just because a person doesnt have more surgeries that might not even help anyways. They shouldnt approve people in the first place, if they think people could somehow be improved years later. I know that if i never got my injury in life, my overall health at age 50 is going to less then it was at age 38. Thats just common sense.
and with our doctors, we do have to fear that they might write in the SS review, that they recommended surgery but the patient choose not to have, so maybe the patient is improved, which then opens a whole can of worms.
I want to live with what i got for as long as i can, holding off on more surgery.
Even if that means somedays wasting the day away in bed. I wont lie, i have good days and then i have bad days, but i know that i still could never work a job.
Really who would want to hire a person with limited pyshical and mental abilities, when there are so many people out of work who are 100 percent healthy.
I mean i wont even hire myself if i was the boss.

So just wanted to say, i loved your post. If i was you, i wouldnt reduce your med strengths, because it could just open a can of worms for you.
Your better off just breaking the meds in half, if you want to take less.
I know you want to be honest, but they will use honest against you

Bobby


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Hi bobby. I feel the same way you do. I do not want to do any more surgery, no matter what happens. I am done with spinal fusions. I don't want to be forced into more treatment, just because I fear loosing my disability if I don't. that is not how I want to live my life either. I know my neck isn't gong to get better. We should not be made to feel this pressure on top of what is already wrong. don't feel guilty. Just get a check up, and don't be forced to do more than you want to do. I think I would go before a judge and tell him the same thing. It is our bodies...not ss. I wish you all the best. I feel guilty because I worry about going down on my medications. I really want to try. Is this going to tell ss that I am getting better? I don't want to stay on the high doses if I can get by with less... same issue. ginnie
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Old 08-19-2012, 12:37 PM #38
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Default Hi Bobby

Next time I go into my pain doc. I am going to bring up my fears. The trouble is the kind of medication I am on, you can't break in half. Morphine ER goes down usually in 15mg. doses. I so do not want to be on as much as I am on. The depencancy is there, and that is just the way it is. I am holding steady nothing more, nothing less right now. I did several activities I never thought I could do again, (short ones) and that convinced me, to try and lower the morphine once again. I had no additional pain from the activity. Yes I am afraid to do anything. I also have pre-cancer in my throat, and there is no way I could hold down any job, standing or sitting. I can't look up or down well all. So this does leave the patient in fear, as we have been talking about. I don't want to live my life every day in bed either. Like you, I have good and bad days. Being "forced" to take more medication simply because of the fear of SS. is like a police state. I think if it came to it, I would again go before a judge. I do not like being controlled by the fear of the health situation. I don't have an answer either.
Just lowering the med. isn't real fun. Does social security even know how hard it is to withdraw? I don't think so.
Bobby, this whole issue with the health care, private, or medicare/medicade is out of hand. I think maybe they are going broke, and wish to get as many people off the rolls they can, even if they need the health care. I also see people that are in desperate need of medicare, being denied with very very serious conditions. I know they have their rules and all, but those who sit in judgement, will someday be patients themselves. I don't know anyone who isn't a bit nervous about health care. I am sorry you are going through these kinds of issues with your health too. You are also right, that I am honest. 99% of the people with health issues are. Those in true need should not be made to fear as we have subjected to, just to live your life decently. Just do the best you can do Bobby. I will keep you in my thoughts and prayers too. ginnie
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Old 08-20-2012, 12:26 AM #39
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Well said again Ginnie.
It sucks having to live life now constanty having a knot in your stomach about SS and having the govt send you money instead of working and earning your own money. Am sure the majority of people on ss would rather be out working a job and being around people instead of being home living in pain and doing nothing at all.
On top of that not only do we lose our ability to work, most endup losing their hobbies and activities that they loved to do. I used to play basketball and volleyball almost every night, havent done that in 12 years and never will be able to again.


For some reason people think you won the lottery if you tell them you are on SS and now able to travel the world. Its not like SS is sending us all extra money to be able to do such things. In most case we endup making less on ss then when we working.

I also agree with your thinking about SS wanting to dump people for the slightest thing, due to the funds not being there.

All we can do now is, hope some day things at SS change, until then take care of yourself

Bobby


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Originally Posted by ginnie View Post
Next time I go into my pain doc. I am going to bring up my fears. The trouble is the kind of medication I am on, you can't break in half. Morphine ER goes down usually in 15mg. doses. I so do not want to be on as much as I am on. The depencancy is there, and that is just the way it is. I am holding steady nothing more, nothing less right now. I did several activities I never thought I could do again, (short ones) and that convinced me, to try and lower the morphine once again. I had no additional pain from the activity. Yes I am afraid to do anything. I also have pre-cancer in my throat, and there is no way I could hold down any job, standing or sitting. I can't look up or down well all. So this does leave the patient in fear, as we have been talking about. I don't want to live my life every day in bed either. Like you, I have good and bad days. Being "forced" to take more medication simply because of the fear of SS. is like a police state. I think if it came to it, I would again go before a judge. I do not like being controlled by the fear of the health situation. I don't have an answer either.
Just lowering the med. isn't real fun. Does social security even know how hard it is to withdraw? I don't think so.
Bobby, this whole issue with the health care, private, or medicare/medicade is out of hand. I think maybe they are going broke, and wish to get as many people off the rolls they can, even if they need the health care. I also see people that are in desperate need of medicare, being denied with very very serious conditions. I know they have their rules and all, but those who sit in judgement, will someday be patients themselves. I don't know anyone who isn't a bit nervous about health care. I am sorry you are going through these kinds of issues with your health too. You are also right, that I am honest. 99% of the people with health issues are. Those in true need should not be made to fear as we have subjected to, just to live your life decently. Just do the best you can do Bobby. I will keep you in my thoughts and prayers too. ginnie
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"Thanks for this!" says:
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Old 12-14-2012, 07:00 PM #40
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Default WHich Doctors do you see?

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I got approved for ssdi in 2001 based on a neck and back injury i got on the job as a firefighter. I have a cage in my neck and still got bad discs in neck and back.
Every 3 years i have gotten the review like clock work.
In 2010 i got the 6 question thing, whcih got spit out and i ended up getting the longer form.
I filled that out and even added new health problems. Mental health issues which have been going on since after i got approved for ss. I also added my heart and diabetes problems.

Whats bugging me for the last 2 years is the letter i got back from them. Heres what is said

"we recently reviewed the evidence in your social security disability claim and find that your disability is continuing. We have also enclosed information about working that explains some of the terms we use.
The doctors and other trained staff who decided that you are disabled expect your health to improve. Therefore, we will review your case in december 2013. we will send you a letter before we start the review."



The first thing that really ****** me off is that they expect my health to improve. Lets even throw out my new heath problems and just go with neck and back problems which is what i got approved for. How could they possibly believe that these problems are going to be any better 12 years from when i first went on ssdi? Just the fact of 12 years later, makes a person less healthy.

So does this mean in 2013 iam gonna have to go for the full doctors review based on this letter? Or is this basically the same thing written on everybodys letter?

On top of having to deal with all my health problems daily, this letter has been driving me completely insane. I have already wasted 2 years worrying about it and dont want to waste until dec 2013 worrying about it. So please can anybody give me their opinions and thoughts on this, it would be greatly appreciated.

Thank you
Bobby

p.s. and when i sent in the long form, i even added my medicine printout from the drugstore for the year. Total amount of drug costs were 54,000 dollars. I guess thats how much drugs healthy people use,lolllllllllll
Hi,
Which doctor did you see that put you out on disability? If the doctor who put you out on disability i saying you are improving that might be a problem. What I have learned is that most doctors put you out on disability and eed to show you are improving in order to get paid. However, if you have a good doctor who put you out on disability and there is no way you will improve the doctor should give you a letter to state that so you should give to ssdi. If the doctor does not want to then any other doctor with any conditions being treated can continue your disability. Hope this helps
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