NeuroTalk Support Groups - OTR and still waiting after 2 months....

Quote:

Originally Posted by finz (Post 1001360)

"mind your business"
"Excuse me ?"

I prefer not to be spoken to in that way. I'd appreciate it if you would not do that again.

I'm sorry that I seem to have offended you and for thinking that you were looking for input about your situation. I misunderstood your inclusion of facts about your case, thinking you were looking for comments on your case and was just trying to help you get that. I apologize for suggesting that if you wanted advice on your own case that you start a your own thread to keep the discussion on topic in each thread. I made a misassumption. I'm sorry.

I also referred to your comment about your RFC's. When I see posts that contain possibly misleading info, which may be because the poster misunderstands the subject matter or may just be because the poster didn't explain the situation fully, I comment on it......not to insult the person if they were just too brief and didn't realize how others could be misled. If the poster really doesn't know or understand a point, I want to help them understand it better. I also want to help all of the forum members who read those comments now and in the future who could be misled by that info. I think it's important to clarify that type of thing, so as not to lead others astray. I want newbies to the SSDI/SSI process to understand that statements like "This all with 3 RFC's and an additional form filled out from doctors stating that I can never work again" and "I have the use of only 1 arm and no legs (SSDI/SSI can see from your application that you have legs and you should be having double knee replacements, which means that the functioning of both legs IS expected to improve).... So yes, I can never work again" are NOT proof of disability.

Please understand that I am not suggesting that you are not truly disabled or that your docs and PT's did not document the proof of your disability correctly. I am simply pointing out that what you have said in your posts in this thread regarding what's on your RFC's, does not prove disability.

I've read so many posts here from people who don't realize that documentation from a doc simply stating "can not work" is not proof of total disability to the SSA.....or they list all of their diagnoses to "prove" their disability, not realizing that it's NOT about the diagnosis or diagnoses, it's about how the symptoms that came with the diagnoses affect them and limit their ability to sit, stand, walk, and mentally process things. You may understand all of that. The comments in this thread could reinforce the misunderstanding of the process that so many people have and I want to prevent that from happening.

Oddly enough, some of this does relate to a point that I want to make for nic......so it's back to the regularly scheduled programming now......

Finz, like I said I was only answering the initial post. They asked for anyone that had gone through the process and I answered. With brief details. You must not have read what I wrote because you are referring to knee replacements.... Knee replacements are out of the question for me. I have gone to 5 top orthopedic doctors in 2 different states and not one single doctor will touch me. I have a blood clotting disorder plus active MRSA that they can not get to go away. I am told that an infection to the bone or blood stream could be fatal. Same reason I can't get a spinal block for RSD and back problems. So it isn't just as easy as replace your knees and feel better. 2 different pain management doctors have turned me away for spinal blocks. I had a c-section 2 years ago and the skin on my stomach is still hanging open because of MRSA as well as gash on my shin. Which I got from falling from bad knees giving out on me. Also ended up in the hospital from falling with a concussion and was knocked unconscious for 30 minutes.
This which I am still treating with a neurologist for short term memory loss from the fall. So the answer is not that simple. SSD has all the medical records on file and I have read every page. They have MRI reports, CT scans, Lab results, ER visits, Hospital admissions, EEG reports from memory loss. All this with favorable RFC's. And was still turned down. Not to mention I had to turn in a 2 page list of current medications that I am taking right now.... Oh yes I said 2 pages... And guess what they still turned me down.

50 mg of Oxycontin daily
10 mg of Oxycodone Daily
40 MG of Prozac Daily
3 mg of Ativan Daily
600 MG of Neurontin Daily
30 MG of FLexeril Daily
100 MG of Lebetalol Daily
150 MG of Seroquel Daily
40 MG of Protonix Daily
1500 mg of Metformin Daily
1200 mg Of Bactrum Daily
225 MG of Lyrica Daily
3 Lidoderm Patches Daily
Albuterol For Asthma
Bactraban cream for MRSA site 4 times a day
150 mg of Meclizine Daily
The doctor also had an ointment mixed in a pharmacy with ketamine, lidocane, gabapentin and 3 other medications included--- this to be applied 4 times a day.
I also have to take prescription Vitamin D
2400 MG of Motrin daily
And I am currently taking an asprin to help thin my blood in place of the coumidan I had to stop for 6 weeks to have a special protein test. Which I am normally on 9 mg of coumidan daily.

All this and they expect you to be able to function and do a job.

So yes I have a right to be upset. And then and when I try to give my feedback to someone else and I am spoken to like you stated " a newbie". it is highly offensive. I make me feel as if my experience doesn't have weight in this group nor does it matter.