Hi can I find a good dr,

You asked that I not use your name and I had an administrator edit my posts which used it.

That is what was discussed in this post. I was thanking the administrator for taking care of that for me.

Hopeless

Now you have me a bit at a loss. Lit Love made NO mistake. She did mention that she was "capable" of one and that others would catch it IF one was to be made.

No one is perfect but when it comes to SSDI information, she is as close to that perfection as one can be and still be human.

The ONLY error I have seen in any post to this thread is my using your name and that has been corrected. I may have stated some things that were not applicable but Lit Love expounded and explained them for me.

Hopeless

I'm sorry I have gotten lost. What was the info that Lit put out that she is now calling a mistake and/or is in need of correct? Thank you.


Quote:
Originally Posted by Hopeless View Post
Hi Lit Love,

Thanks. That is exactly why I warned D of the sources of information he might gather. I guess I was thinking only of the grid rules.

Thanks for explaining where my thinking goes a bit off kilter, especially, for the sake of the person that began the thread, and me, too. (And all others that might read the posts.)

I would feel really bad about disseminating erroneous information.

As I mentioned in my first post in the thread, I was hoping someone like you would fix my info.

Thanks.

Lit Love made NO mistake. The conversation was my way of asking Lit Love to monitor MY comments so that I would not steer you wrong. She is looking out for you and helping me to be sure my comments are not erroneous.

I think Lit Love knew what I meant. Sorry, you did not follow that particular interaction between Lit Love and me (Hopeless).

Lit Love has expounded on things I have posted to keep me on track with your particular situation and not over generalize or get too unorganized in my thoughts.

Sorry for any confusion this may have caused you.

You need to be prepared that this might be a very long process. You might need to consider moving in with family if you don't have another source of income.

^^^OK. Thank you for the tip. I cannot image how hard that would be on my girls AND me. My family is 2 to 3 hours away. But, I understand your point.

No, it does not appear your PN will qualify you with a Listed Impairment at this time. Becoming a klutz does not rise to the level of severity needed. The same thing with having body twitches a few times a day.

^^^Understood. But, the pain and weakness of my calves . . . hard to be nice and sweet and productive when one feels that their pain level is in a 6-8 range.

^^^I read an article from the NIH about small fiber neuropathy and the number one word is the article was PAIN. And I finally saw in print, what I have been dealing with for over two years now. "COLD PAIN".

Your current Neuro is increasing your meds to hopefully reduce your symptoms and give you the highest degree of function possible,

^^^My bro said the way he increased my GabaP was not correct. That it should have been gradually bumped up. Not a starting dose of 900mgs total for the day to 2,400 total for the day just six weeks later with no gradual build up. AND, this was with me calling in almost two months early than he had originally had me scheduled to come in. After the first visit, it was the 'see ya in three months' deal. After 3 weeks, the Gaba honeymoon was over and I was in to see him in six weeks rather than the 12 weeks that he had me down for.

^^^At the conclusion of yesterday's meeting, he had it in my charts to see him in SIX MONTHS! It is a two hour drive from my small town to see my shrink and my neuro. So, I try to 'double dip'. Stay the night with a friend. See one doc one day and see the other doc the other day. So, instead of six months like he put down on my chart - his nurse told the scheduler to put me down for a two month follow-up so we could do the double dip thing.

^^^Even my meeting yesterday - no change at all in meds. He tried to call my shrink while I was there with him. He could not speak with my shrink today. He said he would consult with my shrink and THEN they would change my meds. At least the AD I take. Makes since. But, all that really happened yesterday with the neuro was, "You got to have some talk therapy. We will try to help you find one in your area. AND, you STILL need to do LESS. Work for 15 minutes - rest for 30 minutes. Continue that pattern until bed-time.

^^^So, at this time - nothing in my meds have been changed.

that's not necessarily inconsistent with him thinking you may be capable of working.

^^^Understood. But there is that subjective area of PAIN. How is that handled?

The skin biopsy proves you have PN, not what your functional limitations are.

^^^Understood.

This might be a good time to request a referral for a Functional Capacity Evaluation. It will help provide your Neuro with objective test results regarding your abilities and limitations, as well as providing SS with the same.

^^^One has to walk at least a day in the shoes of the other to get an idea what the other's day is like. Is the above going to do that?

--And he is right, if he just guesses what he believes are your functional abilities, SS may or may not give it any weight. (Those forms your attorney asked your docs to fill out, and that were maybe even customized specifically for you, were probably a version of an RFC form.)

^^^Understood.

Did you give the Neuro a copy of the form that you had already filled in? If so, that was not a good idea IMO.

^^^I gave it to him as my brother suggested and I also told him he was free to throw it in the toss can if he so desired. I stated the reasons I gave them to him. Why do you think my bro's plan was a 'not a good idea'.

BTW, it is possible SS will determine you are no longer capable of teaching PE due to your PN, and perhaps not teach any subject due to your BP disorder, but they might claim you are capable of a less stressful desk job.

^^^Which cannot be found . . . and if I sit for longer than an hour - my feet get naughty (painful). Remember neuro doc said MORE rest. That I do TOO MUCH. I said, 'all I do is pittle around my apt doing housework, paying bills, etc...

In all my lengthy postings to you, the one thing I've forgotten to say is that qualifying for SSI/SSDI is a complex medical/legal evaluation.

^^^I understand.

One last thing, your brother can write a letter on your behalf, but unless he's a treating source, it will be the same as a letter from any other family member. His medical opinions might be 100% accurate, but they won't help you prove your SSDI claim, which needs medical documentation.[/QUOTE]

^^^Since I had him listed as a contact person, unbeknownst to me - they sent him a function report that is identical to mine . . .for him to fill out on me. He was not a 'happy camper' but he understands the importance of his filling it out in a timely manner and getting it back to SSA.

Sure. Thanks for letting me know. I'll try to keep my comments on TOP or very BUTTOM on less lengthy replies. Thank you and every one else for your help/interest/concerns. Much appreciated.

Did you read the link regarding PAIN that I listed for you? It goes into a lot of detail about how to deal with the subjectivity of pain.

Hopeless

I used my own name and I want it deleted out but I cannot find the area/icon to contact admin on. Thanks.

I sent a message to admin to help you with that. There is an icon REPORT that you click on and send them a message regarding the posts involved.

It is on the left of the screen.

You may want to locate any posts YOU made that include your name and send a message so they don't have to look for them.

Hope this helps.

Interspersing is FINE. Actually that works well. I just wish you would use a different color ink, like red or something.

I like the interspersing so that it is easy to see exactly what you are referring to in your response, just not easy to see which are quotes and which are responses. The color change would be ideal.

Thanks

If you can PM the specific post # - or report the post where the name is we can edit it out..