[canifindagooddr]

CONTINUED REMARKS FROM: SECTION C - INFORMATION ABOUT DAILY ACTIVITIES

The 'question' is: Describe what you do from the time you wake up until going to bed.

I get up between 8am to 11am. I usually do not shower. It is too much work and I am concerned that my balance issues might cause a fall. I rarely eat breakfast or lunch.

Due to the severity of pain caused my peripheral neuropathy (PN), I spend a lot of time laying on my bed, as this is usually the only way I can obtain pain relief from my PN. Due to this isolating and limited life, I am severely depressed.

While on my bed, I try to read. However, due to my greatly decreased ability to focus and concentrate (ie. daily I will find myself reading the same sentence over and over in an effort to understand it), I find myself not able to comprehend what I have just read and this in turn leads to a cycle of depression/ anxiety as this used to be my one of my strongest sources of joy before the severe pain of PN entered my life, more than 2 years ago.

My neurologist has increased my pain management meds over 125% in just three short months. He has told me, “No more 30 minute walks. No ten minute walks.” I used to enjoy playing Wii video games on my TV. Especially the Wii tennis (since I am no longer able to play real tennis outside like I used to do at least once a week during the warm seasons of the year). The doc has told me, “No more Wii Tennis.” I used to enjoy biking outside for at least 30 minutes a day. This to, the doctor has taken away from me. I am not even allowed to bike inside my apartment, with my bike on a stand. Every appointment I have had with my KU neurologist, he continues to decrease the things I enjoy (namely active movement), while ordering me to get more bed-rest. My last appointment (7/8/15) he told me that my new treatment plan was going to be, “For every 15 minutes that you are on your feet, I want you to spend 30 minutes on your bed. This is the ratio. If you are on your feet for an hour, then you immediately need to spend two hours laying on your bed.”

All my life I have enjoyed actively moving. That is why I chose the career I did. I taught elementary Physical Education for 25 straight years before the pain of PN, which greatly reduced all my cognitive functions (concentrating, following simple directions, completing tasks) required me to resign my teaching position late in May 2015.

So, what do I typically do all day? Household chores and paperwork, followed by time on my bed in accordance with my doctor’s orders provided above. Sometimes I will try to watch TV. This rarely last more than 30 minutes due to the severe pain of my PN. I rarely eat breakfast or lunch. I just don't seem to have an appetite since getting unexpectedly getting tossed out of my own home back in Sept. of 2014 as my EX-wife began our divorce. At one time, about a month after this event, my weight went from 165 pounds down to 140 pounds.

And what do I do during the time on my bed? Try to read. Get on the internet and try to socialize a bit. The pain of PN elevates my depression and anxiety to an extent, that I rarely leave my apartment. In fact if it was not for the visitations that I have with my three daughters – I would probably leave my apartment about once a month. Back in Dec. of 2014 – I was so low with depression and anxiety, that I asked an old friend if he would please go grocery shopping for me. Thankfully he agreed and then I once again had some food in my apartment as I had just about ran out of everything.

So, in a nutshell my typical day is household chores and organizing/filling out paper, brief and few visitations from my three young daughters (ages 12, 10 and 8), and lots of time laying on my bed to get relief from the extreme pain that my PN causes. And, while on my bed – I try to read. I surf the internet. This pattern continues with me usually going to bed by 8pm, due to the fatiguing nature of this depressing lifestyle.

I wake up the next morning and repeat all the above. As my world continues to shrink in this manner, I find myself growing more depressed and anxious. I am currently seeking additional talk therapy and other community services that may be able to help me.

[LIT LOVE]

You've repeated yourself at least 3 times. It's up to you if you wish to leave it as is.

Will SS believe you spend the majority of your time in bed doing nothing? Probably not. Most people will listen to the radio, read, watch tv, be on their laptop, and talk on the phone for several hours per day, even if in bed.

If you're sleeping more or less than 8 hours per day that is relevant.

[Hopeless]

You mention "household chores". WHAT household chores? Be specific.

This may be too late to mention to you since you must mail your form tomorrow.

[canifindagooddr]

** It said my message was too short. So I am adding filler here. Abe Lincoln sure was a great President!

Originally Posted by LIT LOVE

You've repeated yourself at least 3 times. It's up to you if you wish to leave it as is.

WHAT things are repeated three times?


Will SS believe you spend the majority of your time in bed doing nothing? Probably not. Most people will listen to the radio, read, watch tv, be on their laptop, and talk on the phone for several hours per day, even if in bed.

I already answered your question regarding what I day while on my bed: And what do I do during the time on my bed? Try to read. Get on the internet and try to socialize a bit.

*** Thanks.

** It said my message was too short. So I am adding filler here. Abe Lincoln sure was a great President!



If you're sleeping more or less than 8 hours per day that is relevant.

[canifindagooddr]

I got plenty of time. PO doesn't close until what - 4 or 5 pm? And needful and small edits just take a minute or two. I wanted it all done last night but run out of energy. Thanks for the suggestion below!

Originally Posted by Hopeless

You mention "household chores". WHAT household chores? Be specific.

This may be too late to mention to you since you must mail your form tomorrow.

[LIT LOVE]

Originally Posted by canifindagooddr

CONTINUED REMARKS FROM: SECTION C - INFORMATION ABOUT DAILY ACTIVITIES

The 'question' is: Describe what you do from the time you wake up until going to bed.

I get up between 8am to 11am. I usually do not shower. It is too much work and I am concerned that my balance issues might cause a fall. I rarely eat breakfast or lunch.

Due to the severity of pain caused my peripheral neuropathy (PN), I spend a lot of time laying on my bed, as this is usually the only way I can obtain pain relief from my PN. Due to this isolating and limited life, I am severely depressed.

While on my bed, I try to read. However, due to my greatly decreased ability to focus and concentrate (ie. daily I will find myself reading the same sentence over and over in an effort to understand it), I find myself not able to comprehend what I have just read and this in turn leads to a cycle of depression/ anxiety as this used to be my one of my strongest sources of joy before the severe pain of PN entered my life, more than 2 years ago.

My neurologist has increased my pain management meds over 125% in just three short months. He has told me, “No more 30 minute walks. No ten minute walks.” I used to enjoy playing Wii video games on my TV. Especially the Wii tennis (since I am no longer able to play real tennis outside like I used to do at least once a week during the warm seasons of the year). The doc has told me, “No more Wii Tennis.” I used to enjoy biking outside for at least 30 minutes a day. This to, the doctor has taken away from me. I am not even allowed to bike inside my apartment, with my bike on a stand. Every appointment I have had with my KU neurologist, he continues to decrease the things I enjoy (namely active movement), while ordering me to get more bed-rest. My last appointment (7/8/15) he told me that my new treatment plan was going to be, “For every 15 minutes that you are on your feet, I want you to spend 30 minutes on your bed. This is the ratio. If you are on your feet for an hour, then you immediately need to spend two hours laying on your bed.”

All my life I have enjoyed actively moving. That is why I chose the career I did. I taught elementary Physical Education for 25 straight years before the pain of PN, which greatly reduced all my cognitive functions (concentrating, following simple directions, completing tasks) required me to resign my teaching position late in May 2015.

So, what do I typically do all day? Household chores and paperwork, followed by time on my bed in accordance with my doctor’s orders provided above. Sometimes I will try to watch TV. This rarely last more than 30 minutes due to the severe pain of my PN. I rarely eat breakfast or lunch. I just don't seem to have an appetite since getting unexpectedly getting tossed out of my own home back in Sept. of 2014 as my EX-wife began our divorce. At one time, about a month after this event, my weight went from 165 pounds down to 140 pounds.

And what do I do during the time on my bed? Try to read. Get on the internet and try to socialize a bit. The pain of PN elevates my depression and anxiety to an extent, that I rarely leave my apartment. In fact if it was not for the visitations that I have with my three daughters – I would probably leave my apartment about once a month. Back in Dec. of 2014 – I was so low with depression and anxiety, that I asked an old friend if he would please go grocery shopping for me. Thankfully he agreed and then I once again had some food in my apartment as I had just about ran out of everything.

So, in a nutshell my typical day is household chores and organizing/filling out paper, brief and few visitations from my three young daughters (ages 12, 10 and 8), and lots of time laying on my bed to get relief from the extreme pain that my PN causes. And, while on my bed – I try to read. I surf the internet. This pattern continues with me usually going to bed by 8pm, due to the fatiguing nature of this depressing lifestyle.

I wake up the next morning and repeat all the above. As my world continues to shrink in this manner, I find myself growing more depressed and anxious. I am currently seeking additional talk therapy and other community services that may be able to help me.

You've said the same thing in different ways.

[canifindagooddr]

Originally Posted by LIT LOVE

You've said the same thing in different ways.

I'll see if I can clean that up a bit. It does read in an annoying why when you point it out as you did with the underlining - thank you.

[LIT LOVE]

Originally Posted by canifindagooddr

CONTINUED REMARKS FROM: SECTION C - INFORMATION ABOUT DAILY ACTIVITIES

The 'question' is: Describe what you do from the time you wake up until going to bed.

I get up between 8am to 11am. I usually do not shower. It is too much work and I am concerned that my balance issues might cause a fall. I rarely eat breakfast or lunch.

Due to the severity of pain caused my peripheral neuropathy (PN), I spend a lot of time laying on my bed, as this is usually the only way I can obtain pain relief from my PN. Due to this isolating and limited life, I am severely depressed.

While on my bed, I try to read. However, due to my greatly decreased ability to focus and concentrate (ie. daily I will find myself reading the same sentence over and over in an effort to understand it), I find myself not able to comprehend what I have just read and this in turn leads to a cycle of depression/ anxiety as this used to be my one of my strongest sources of joy before the severe pain of PN entered my life, more than 2 years ago.

My neurologist has increased my pain management meds over 125% in just three short months. He has told me, “No more 30 minute walks. No ten minute walks.” I used to enjoy playing Wii video games on my TV. Especially the Wii tennis (since I am no longer able to play real tennis outside like I used to do at least once a week during the warm seasons of the year). The doc has told me, “No more Wii Tennis.” I used to enjoy biking outside for at least 30 minutes a day. This to, the doctor has taken away from me. I am not even allowed to bike inside my apartment, with my bike on a stand. Every appointment I have had with my KU neurologist, he continues to decrease the things I enjoy (namely active movement), while ordering me to get more bed-rest. My last appointment (7/8/15) he told me that my new treatment plan was going to be, “For every 15 minutes that you are on your feet, I want you to spend 30 minutes on your bed. This is the ratio. If you are on your feet for an hour, then you immediately need to spend two hours laying on your bed.”

Being able to ride a bike, play tennis or play Wii will not effect your ability to work or perform basic daily functions like making simple meals or dressing yourself.

All my life I have enjoyed actively moving. That is why I chose the career I did. I taught elementary Physical Education for 25 straight years before the pain of PN, which greatly reduced all my cognitive functions (concentrating, following simple directions, completing tasks) required me to resign my teaching position late in May 2015.

This has nothing to do with daily activities.

So, what do I typically do all day? Household chores and paperwork, followed by time on my bed in accordance with my doctor’s orders provided above. Sometimes I will try to watch TV. This rarely last more than 30 minutes due to the severe pain of my PN. I rarely eat breakfast or lunch. I just don't seem to have an appetite since getting unexpectedly getting tossed out of my own home back in Sept. of 2014 as my EX-wife began our divorce. At one time, about a month after this event, my weight went from 165 pounds down to 140 pounds.

Second mention of not eating. Your divorce has nothing to do with activities of daily living.

And what do I do during the time on my bed? Try to read. Get on the internet and try to socialize a bit. The pain of PN elevates my depression and anxiety to an extent, that I rarely leave my apartment. In fact if it was not for the visitations that I have with my three daughters – I would probably leave my apartment about once a month. Back in Dec. of 2014 – I was so low with depression and anxiety, that I asked an old friend if he would please go grocery shopping for me. Thankfully he agreed and then I once again had some food in my apartment as I had just about ran out of everything.

So, in a nutshell my typical day is household chores and organizing/filling out paper, brief and few visitations from my three young daughters (ages 12, 10 and 8), and lots of time laying on my bed to get relief from the extreme pain that my PN causes. And, while on my bed – I try to read. I surf the internet. This pattern continues with me usually going to bed by 8pm, due to the fatiguing nature of this depressing lifestyle.


No reason to repeat yourself.

I wake up the next morning and repeat all the above. As my world continues to shrink in this manner, I find myself growing more depressed and anxious. I am currently seeking additional talk therapy and other community services that may be able to help me.

It is unlikely you'll be approved without a longitudinal history of appropriate treatment for impairments that you claim keep you from being able to work at the SGA level (Significant Gainful Activity is $1090 per month in 2015), but drawing additional attention to it is ill advised. I would delete everything I've underlined as a start.

[canifindagooddr]

I have had 10 PT sessions with ultra sound. Prescribed meds/topicals. Prescribed compression stockings. Hot/cold packs. Electronic massagers. Custom-made orthotics. Prescribed use of a barstool (not to drink - but to use when teaching school, brushing teeth, doing dishes - etc) -- are those the type of things you mean by "a longitudinal history of appropriate treatment for impairments"? I make mention of them on page 7 question 21 on my Fun Report. What else can be done to improve this area on a fun report? Thanks!

Originally Posted by LIT LOVE

It is unlikely you'll be approved without a longitudinal history of appropriate treatment for impairments that you claim keep you from being able to work at the SGA level (Significant Gainful Activity is $1090 per month in 2015), but drawing additional attention to it is ill advised. I would delete everything I've underlined as a start.

[LIT LOVE]

Originally Posted by canifindagooddr

I have had 10 PT sessions with ultra sound. Prescribed meds/topicals. Prescribed compression stockings. Hot/cold packs. Electronic massagers. Custom-made orthotics. Prescribed use of a barstool (not to drink - but to use when teaching school, brushing teeth, doing dishes - etc) -- are those the type of things you mean by "a longitudinal history of appropriate treatment for impairments"? I make mention of them on page 7 question 21 on my Fun Report. What else can be done to improve this area on a fun report? Thanks!

I had underlined what I was referring to: "I am currently seeking additional talk therapy and other community services that may be able to help me."