NeuroTalk Support Groups - 'Work attempts' while SSDI is in appeals

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- - 'Work attempts' while SSDI is in appeals (https://www.neurotalk.org/social-security-disability/225488-attempts-ssdi-appeals.html)

Quote:

Originally Posted by canifindagooddr (Post 1169091)

What do I do wrong to cause my formatting to look as it does above? I pick a color. I type a paragraph or two and then I highlight the paragraph and pick a color for the text. Then I move on and repeat the above process until my comments are complete - but generally just the first paragraph is the only one that has the colored text. Thanks.

You're cutting off /not copying all of the brackets [ ] - that is what messes up the quotes & the color/font parts..

Just be more careful when adding into a quote

[QUOTE=Jo*mar;1169099]
[COLOR="Purple"] color test /COLOR]

You're cutting off /not copying all of the brackets [ ] - that is what messes up the quotes & the color/font parts..[/QUOTE

here is a sample I did on purpose, left out a bracket in the bolded area one missing on the front & one missing on the back..

Just be careful when adding text to not cut off those brackets.

[QUOTE=Hopeless;1168972]I am a bit perplexed by the number of times you mention that a physician is informing you of what you are capable and not capable of doing.

^^^Could it not be seen as a TX plan? A doctor is telling me what I must do to get BETTER? Namely, allow my nerves to REST. And not flare them up with too much exercise.

You above all others should be the one to KNOW what you are capable of and what you are NOT capable of doing physically.

[COLOR="rgb(72, 61, 139)"]Is it really that black and white? A kid breaks his arm. It is in a cast for six weeks. The cast gets removed. The kid wants to go out and ran and play again. The doc says, 'no running for at least 4 more weeks'. Is the kid capable of running? Most certainly. Would it be a good idea to let him run just as soon as his cast was taken off? Most certainly NOT. Most likely he will trip and re-injure it.

If I do not post 'a doctor said such and such . . . ' then I, 'get that is just your opinion Dean... only a doctor can make such statement.'

If I say a doctor said, 'such and such' then I get what I have gotten in this post. How can one 'win'? Seems like a Catch-22 to me.

I know that if I stand for over an hour, my feet will become very uncomfortable. I know if I sit over an hour - my feet will become uncomfortable. And I know that when they are really bad (at least twice a week) that the ONLY way I get a measure of relief is by laying on my bed. Not merely putting my feet up. Sometimes that makes the problem worse due to circulation of blood issues. Echoes 'gets it' because he has pn. If one does not have pn, they will never get it. Just like I will never 'get' a condition you have, unless I have personally experienced it myself. Do you know something exist within the world of pn called 'cold-pain'? I didn't until I got sfn. Then one day while reading an article on sfn, the term 'cold-pain' was used. I was like, "YEAH! Validation! I know EXACTLY what these authors are writing about."
[/COLOR]

You also seem to self impose activities that will exacerbate your pain.

[COLOR="rgb(72, 61, 139)"]^^^I did not run a marathon. I did not run a 10K or a 5K. I didn't even jog for one minute. I simply ventured out of my apartment for a rare, rare occasion and did a VERY minimal amount of 'work'. I just wanted to see if I had gotten better or worse. I just wanted to see if I could establish a 'baseline' for walking. My farthest walk was a mere 12 minutes.
[/COLOR]

I just don't understand. Maybe I am just different and not as brave but I try to avoid activities that will only make my pain worsen. Maybe I am just a wimp but I am one that will not touch a hot stove the second time.

[COLOR="rgb(72, 61, 139)"]^^^I think I explain it well above. After shuffling around my apartment for months on end . . . like an 85 year old man . . . I merely went for a very short walk, in the cool of the morning . . . to see if I have gotten better or worse. My goal is always to try to stop BEFORE or just as SOON, as pain begins. Hence some of my walks being just six minutes and others being just 12 minutes. And, I just tried it for a week. Well, it actually turned out to be just four days because I had to abort the experiment. When my doc says, "How are you doing?" Now I have something solid to tell him rather than my 85 year old man - 'apartment shuffle'.[/COLOR]

Im pretty sure that Hopeless has peripheral neuropathy also

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Quote:

Originally Posted by LIT LOVE (Post 1168994)

Dean, the problem that's going to come up is that you were capable of working as a PE teacher within the last year, which is a much more physically demanding job than sitting behind a desk. Since your BP was also a factor in why you were unable to continue working, that also will make such a claim appear less credible.

^^^How 'capable' I was was not VERY capable. I used FMLA on 2/28/15 and never returned to work. And that whole year school, I did a lot of sitting and moaning while 'teaching'. Then at the end of the day, I would wait for the clock to hit 350pm . . . .stumble to my car . . . struggle to drive home (its a 2.5 mile drive one way) . . . get home and go straight to my bed for an hour or two rest of my feet/ankles . . . then I'd get up and try to do some housework (no go), then get up and start it all-over again the next day. My quality of life was very poor. And it has been every since the onset of this stuff 2.5 hours ago. Every time a school-break came up (Christmas, Spring, Summer, etc) I would think, "OK. Rest. Learn. GET BETTER." It never happened. I soldiered on until I just could not take it any more.

^^^Before officially declaring my FMLA . . . I called my brother. I hoped he would give me a script for narcotics so I could finish another school year. "ABSOLUTELY NOT!" he said. Then he went on, "You have nerve damage. If you keep on working you are going to cause permanent nerve damage, if you have not done so already. You have PN. It is progressive, painful and often times debilitating. If you're head is hurting, and you have been hitting yourself in the head with a hammer, you might want to put down the hammer." I continued to plead for meds. He continued to repeat what he said. After 45 minutes and many tears from me . . . I agreed with his conclusion.

It makes no sense that you don't have a placard, at least for medical appointments if walking is causing you problems.

^^^It makes sense to me. I have not applied for one. I live in a small town (less than 30K) and I rarely get out.

If you haven't been posting in the PN forum which includes SFN, here is the link: http://neurotalk.psychcentral.com/forum20.html

^^^I am going to do what a wise person on this forum suggested I do - post LESS and read about step 5 of the 5 step sequential model. I thank that person for the that wise counsel. I agree. At this time, I think that is my best course of action.

[QUOTE=LIT LOVE;1168994]Dean, the problem that's going to come up is that you were capable of working as a PE teacher within the last year, which is a much more physically demanding job than sitting behind a desk. Since your BP was also a factor in why you were unable to continue working, that also will make such a claim appear less credible.

^^^I don't understand you BP link/comment. Could you please explain it more? To me, it is not that complicated. My BP is most commonly triggered by stress. As the stress of my life events and illness grew increasingly worse... the kindling was lite on my BP mind. BTW, I am BP2, not BP1. There is a world of difference between the two.

the meaning of your last sentence?

Quote:

Originally Posted by Hopeless (Post 1169011)

The poster specifically stated that he had trouble with balance, albeit about taking a bike ride outside. See post #15 in this thread. To me, the balance problem, may not only relate specifically to the bike.

Could you please elaborate on the meaning of your last sentence above please?

Quote:

Originally Posted by canifindagooddr (Post 1169097)

My limited experience in looking for the jobs as you have described above has not been promising. If one googles it, many of the articles it pulls up are to the effect of: "Watch out for SCAM 'work at home' jobs . . . most make pennies a day . . . not dollars a day." With that being said, if you could lead me and/or provide a list of jobs that meet or exceed your first paragraph - please do so. I would be eternally appreciate! Thanks.

Voc Rehab Services may find you legitimate work from home--some people report more success than others, each location is different.

There are certainly academic teaching positions that can be taught online, but I'm not sure if you've taught other subjects than PE.

Quote:

Originally Posted by LIT LOVE (Post 1169142)

I am certified to teach health or PE in grades K-12. I love reading and feel confident that I can teach others how to read. I have tutored struggling readers for years. Thanks for the above advice about 'Voc Rehab Services'. I have it saved on my PC and will look into it.

^^^Could it not be seen as a TX plan? A doctor is telling me what I must do to get BETTER? Namely, allow my nerves to REST. And not flare them up with too much exercise

[COLOR="rgb(72, 61, 139)"]^^^I did not run a marathon. I did not run a 10K or a 5K. I didn't even jog for one minute. I simply ventured out of my apartment for a rare, rare occasion and did a VERY minimal amount of 'work'. I just wanted to see if I had gotten better or worse. I just wanted to see if I could establish a 'baseline' for walking. My farthest walk was a mere 12 minutes.
[/COLOR]

[COLOR="rgb(72, 61, 139)"]^^^I think I explain it well above. After shuffling around my apartment for months on end . . . like an 85 year old man . . . I merely went for a very short walk, in the cool of the morning . . . to see if I have gotten better or worse. My goal is always to try to stop BEFORE or just as SOON, as pain begins. Hence some of my walks being just six minutes and others being just 12 minutes. And, I just tried it for a week. Well, it actually turned out to be just four days because I had to abort the experiment. When my doc says, "How are you doing?" Now I have something solid to tell him rather than my 85 year old man - 'apartment shuffle'.[/COLOR][/QUOTE]

font colors info -
not sure where this part is coming from?? - [COLOR="rgb(72, 61, 139)"]
usually it is the actual name of the color - red , blue , navy , etc and no extra numbers , I think that is why the font color is not showing correctly for you.

above where the blue font color worked it has this & at the end of the line.

maybe use the bold for your replies in quoted parts, that might be easier than font colors.

Or you can skip the quoting completely and reply in order of the questions/topics asked... 1,2,3 etc..
The quotes with text mixed in can get confusing for everyone...