ever since this began, I have never found any Medical or Neuros that knew what was going on, or able to diagnose me correctly. Which I have had to do on my own. I have been harrassed and humiliated verbally by the local Neurologic Clinic for not taking their Zombie Meds, (which I dont need, and cannot take due to my condition)

Now that I am a senior and having complications with the "system", I am not getting any results or answers of any kind to any emails, phone calls, or postal mail for several years. One of which being my Social Worker who has just stopped my Food Card without explanation. I have applied for 4 years for Energy Assitance and never gotten a reply

Since I have become a Senior, my benefits are being whitteled away to the point of being homeless. I have been trying to contact dozens of "help and support agencies". But everytime I ask what kind of services are available, all they say is they dont do what they claim in various catalogs or directories of such Help Agencies......... (imagine that)

my main target has been to locate an Advocacy to guide me thru appropriate services to discover what is available

any suggestions or any experiences with anything that works ? Is it possible to get out of this maze ?

Have you gone in person to any of these places? Since this is a Social Security forum, you should be aware that SSA is open to the public 9-4, M, T, Th and F; and 9-12 on W. Do you have a specific SSA question?

I doubt that you will find one place that has access to making decisions about all government assistance programs.

Omicron,
I think for food, and basic services assistance, your county offices should be the place to go..

Are you here for SSDI or SSI info & questions, or TBI and general assistance?

We have a TBI forum -
http://neurotalk.psychcentral.com/forum92.html

And a main page you can look through to see if other sections fit better for your needs.
http://neurotalk.psychcentral.com/index.php

after so many failures of the system and Medical Zoo, the humility of my condition.... (which is actually TBI Sequelea) is a clear assault of my condition by the system itself

I have no idea where to go because of all the bashing and anytime I call, or respond to anything, my benefits, disability and living conditions continue suffer for opening my mouth. I am mostly fed open ended issues that have no solutions with. (endless loops)

I dont need any Forum on my condition, I am definitely clear on that after 35 years. (except for what to expect or prevent as I get older) I am not the only one faced with these similar issues.

I am seeking an advocate to address the SS System to meet the needs of my Aging Disability, not abuse them for 20 more years. I am not the only Brain Injured Victim.

my system does not process Chemicals or Meds, or Junk Food. I need a strict Diet (to maintain) which has just been taken away from me where Housing does not exist...... I had to leave a RADON House where the Crime and surrounding Enviromnment became too Hostile to manage

I can go on and on about problems which is not why I am here. I am asking for a qualified Advocate to address my issues and find solutions where my Social Security Disability is the issue.

If anyone knows of such an individual. I would like a name or a title that I can pursue in my area...... All the Bleeding Noble Heart Agencies are not what the claim to be. Once again I am not the only person saying this

I am on SS and SSI. I dont know anything about SSDI. I have no idea if it makes any difference or what.

My ID was stolen 10 years ago and SS and Medicaid was used in a Hospital in Ohio and St Paul..... no one from SS has ever responded to anything. I went to an Office in SF to ask to see my records because someone was shilling my benefits and the Lady behind the Counter started slapping the Counter with a Brass Ruler screaming at me over some unrelated topic..........

I started having Blackout Spells in Public and went to the Emergency Room and they kicked me out ........

this is a (nother) physical assault on my condition

Check to see if you have a Center for Independent Living in your area. They can assist with you supporting through the process of social security while directing to other assistance in your area.

If you do not have that contact your local city officials and request what other agencies offer assistance.

Best of luck!

Hello and welcome to the Forum.

I hear you on the poor treatment meted out to TBI patients. However, as a Canadian, I can't offer any advice on navigating the American system. I'm sure other, more knowledgeable souls, will be along to help.

If you haven't done so, you might find some useful info through the Brain Injury Association of America. www.biausa.org

My best to you.

I think the answer you are looking for is, In looking for an Advocate to help me navigate the system. Due to my Aging Disabilities, my Physiological System does not cope with navigating the BIA and Independent Living type Agencies. Been trying for 35 years.... the despair is too much for me

In all of these groups represented here. I just am wondering if anyone has ever known of Advocates as I am describing. What if I was quadrapalegic ? Wouldnt I have an Advocate or an Agent to manage my needs ? What is different ? What is this called and why is my situation any different ?

I do not need a Personal Care Attendant, or a Rest Home. I am just looking for a consultant to help me find which programs are available that apply to my needs. Occasionally I have falls and cant manage things for month or more. I cant make it for Food. I need a Caregiver maybe couple times a year, like winter. I know they are out there but have No Clue where to find one... No one will answer me, I dont need that kind of treatment.

of course in 35 years I have visitied with all kinds of these Agencies, dont be silly... I have directories of such Agencies that refuse to help. Most never answer phone, messages, mail or email

So, what I am asking to the SS Disability Board, if anyone has ever seen or know of this Advocate approach ? 60yo sometimes immobilized and cant get to Food, Laundry or Water. There is helpers available, but where ?

I am not staring at the TV with my mouth hanging open on 10 different MEDS....... I am quite sober, almost homeless with winter approaching and losing everything I have, just teetering.... with limited mobility. My Food Card has just been cut off without any explanation, triggering a Sequelea avalanche as I get flushed on to the streets with the zombies.....

I believe this is a very significant SS Disability Issue . This system is not meeting my needs, and people need to know.

I am technically being abused and assaulted by the very system that is supposed to be offering Aid. I am not able to navigate this system which is starting to look like discrimination to me. My Disability is not being treated or aknowledged.

When I go to the Agencies, they want me to take an Evaluation. This Form goes in a basket to the Philanthropists for the next Grant. This is all they have to do to look busy enough to justify another Grant.... I know handfuls of people who have been thru the same thing !

Have you tried contacting your local Red Cross? They can tell you where local food pantries are and they might have a referral for an advocate. Meals on Wheels might be something to check out.

I have struggled thru the BIA and Independent Living Centers and been thru Directories of Agencies for at least 30 years. They just kind of mumble off and collect their Pay Check and do whats necessary (shuffle mock evaluation forms) to keep the next Grant floating. (for any sense I can make out of it) I would really love to be proved wrong. You should see how Voc Rehab handled this.

When I call Human Services in other areas, many of them dont know about any Agencies in their respective areas at all. There is no practical navigation or structure of any kind. This Advocate is obviously what I need because I sure cant do it myself. If you would kindly consider my Disability and the open ended nightmare of dealing and navigating the SS System once. Oh yes I am in the right group !

I have tried to get them to help me locate affordable Housing because I have a few special needs. I cannot live in crowded areas or in a Project, in some Apartment full of invalids, or Group Home. I cannot even spend more than 2 hours in town, because of the Traffic and Crime. I have POST TRAUMA, many people are not clear on this and confuse it with PTSD.

My Sequeleated System does not process any Chemicals or MEDs or DOPE. Sensitive to Diet and Environmental. Many people have this, why not me ? I have been humiliated and abused by the Local Neuros for not taking their Zombie Meds, which I cannot process in the first place. All I did was ask for any info what typically happens to Survivors as they Age. I did not go looking for any treatment. My condition cannot be diagnosed with an MRI. If they know so much, all they need to do is read their School Books. I did.

Why will no one answer me, but give me* talk ?

Where is SS when you need qualified Medical Assistance ?

BIA and Independent Living is a fantastic idea in theory, but not in practice that I know of. I had the same expectations that you do too, for 35 years. The let down and humility is too much for me to just keep doing. This is why I am asking for an Advocate, because I cant do the struggling and fighting anymore. It will kill me.

I am a "Severe TBI Survivor" with Sequelea. PTSD is for sissies, I have what the Brain Injured call POST TRAUMA....... I can only take so much dysfunction from the system before I go into Overload Seizure.... not even the BIA has had much compassion for this at all. No one is old enough to know what its like for a survivor except for me, that I know of and would be an excellent Case Study.

After a life threatening 'wrong prescription horror story' lasting 3-4 yrs. I Holistically solved this without Meds and pretty much by Clean Diet and Nutrients. Mega Vitamin Therapy... by going to the University Libraries in California.

there are a number of Vital Health Issues I need addressed that I am at a point where I need an Advocate that will guide me thru the system here. Because I sure cant follow the Crossed Signal open-ended rules. I am a Senior with TBI Sequelea limited mobility. Trying to stay active. *edit* I am not alone. The state of Medical Affairs in this country are atrocious *

I dont understand why none of you would think after 35 years that I havent tried all these Agencies. I have done all the study and research to Cure my Severe TBI myself... I did this 20 years on Crutches. *

Do you have any idea what its like to go to the SS Office and see one of these Guards toting a Pistol ? It means they have a reason to do this? , , , or are they just making it up? Is one any better than the other ? Is there something we need to be concerned about going to one of these offices ??

Do you have any idea what its like for a 'POST TRAUMA' to see Cars going thru Stop Signs/ Lights, people on Cellphones weaving into Head On Traffic, Road Rage and people driving Nascar 75mph in a 35 ? What about being harrassed, mugged and shot at by the Law Enforcement ?

I am rightfully asking for an Advocate. There are Agencies such as the BIA and Independent Living that claim to do this for the Elderly and Disabled. When I call them on it, then its a Trail of Smoke thru a House of Mirrors. Whats up with this ?

I would like to ask this of an Grantor or Philanthropist of the BIA in front of a room full of Brain Injured.

They have Home Care Givers. Why is having an Advocate or a Backup of some kind, so much different ?

For 35 years I have asked what am I supposed to expect (Healthwise) as I get older ? No one has answered me once.

I do not have the capability to manage a dysfunctional system.

Do you ?

West Glacier, Montana