NeuroTalk Support Groups - Migraines & SSDI

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Social Security Disability (https://www.neurotalk.org/social-security-disability/)

- - Migraines & SSDI (https://www.neurotalk.org/social-security-disability/231189-migraines-ssdi.html)

Quote:

Originally Posted by Savha1 (Post 1195958)

I was just approved, but mine was a long 5 year process. I was denied at initial, reconsideration and first hearing. I then went to the appeals counsel which sent it back for another hearing, and because the requested neurologist was not provided for that hearing ( just a regular M.D.) the judge had to stop the hearing and I had to wait for a supplemental hearing which I just had on January 25, 2016.

But I was APPROVED!! Just on the migraines issue alone, I do not have any other conditions. The main reasons for my approval was that I was consistent on the frequency, duration and limitations. The judge also asked the dr. At the hearing if I was credible and complying with treatment.

I was under the care of a neurologist at all times and I had tried several, and I mean several medications. I am currently on eight prophylactics all for migraine, 3 rescue medications and I also get Botox, which has stopped working.

Oh I am 43 years old. I say even if you get denied keep trying. And keep the dr. Visits and all ER visits. And when you go into the dr. Make sure to tell him/her that you have a headache if you do and to note it in your chart. I went to my dr. Several times with a migraine and it was never noted in my chart. The judge questioned me on this at my first hearing. (This was one deciding factor for my being denied at the first hearing)

Glad to hear you were finally approved. Just curious, how do you cope?? Not sure how many migraines you have a month. I have them every day for almost 10 years now. Is there anything that helps you at all, even the slightest? Everything I have tried has stopped working.

Quote:

Originally Posted by alayna81 (Post 1199502)

I have them every day for almost 10 years now.

FWIW my 2¢

If with the same dr those 10 yrs, you need a new dr and/or a 2nd or 3rd opinion.
Are you being treated by a neurologist that specializes in headaches & migraines? Headaches & migraines are 2 different medical conditions.

Quote:

Is there anything that helps you at all, even the slightest?

For me yes. However, your treating dr should advise you that what works for one migrainer does not work for others. Treating migraines is a trial & error procedure.
All migrainers should keep a migraine diary.

Took my dr 5 yrs to find the right & correct combinations of drugs to avoid being over medicated. My case was a little difficult to treat as I suffer from 2 different kinds of migraines.

Quote:

Everything I have tried has stopped working.

What has your dr prescribed that did not work? There are quite a few meds & natural treatments out there for you to try. Again, it is a trial & error to find the right/correct combination.

For the past 15 yrs, I have been on a Migraine Preventative Program.....
Timolol Maleate 5mg - Daily (1 1/2 tabs)
Butal-Acet-Caff (Fioricet) 50 325-40 mg - As needed
Sumatriptan Nasal Spray (Imitrex) 20mg - As needed
Promethazine 25mg - As needed
**Bryers Vanilla Ice Cream**

**The ice cream must be NATURAL & vanilla. In my neck of the woods, it's Bryers. You eat it during the migraine. The effect is temporary but I do have relief for at least an hour (must be the black dots in the ice cream :D ).

Strongly suggest that you visit the migraine forums if you have not already done so for suggestions on how to manage same w/drugs or naturally: Headache/Migraine forums

:hug: