FAQ/Help |
Calendar |
Search |
Today's Posts |
09-11-2006, 09:06 AM | #11 | |||
|
||||
In Remembrance
|
I've been wanting to move out of here since I graduated high school, but
I never had the money to do it. My father and I have both brought up the issue of second hand smoke, but my mother's attitude is, "That's too bad." She didn't say it that way, but that's the attitude. Now, follow me on this: she tells me that I can't live on my own because I "can't take care of myself". She tells me that I can't live by myself because "something might happen." So, I've lived with my parents for 40 years and something is happening: I'm suffocating-literally! Oh, and all these medical conditions that make it "impossible" for me to live by myself are hereditary. The problem with public transportation is that I don't live near a bus stop-I'd have to be driven to one. I don't see any volunteers in this house. When I have a shunt failure, there are certain signs, but they can be misdiagnosed-when I had the shunt failure last year, they thought it was a stomach virus (because of the nausea and vomitting), until they did some tests. Also, back in '94, when my shunt failed, the signs were totally different. That's when my vision problems started, for example, and my seizures increased. I'm not sure if Life Alert would work for me or not. I think I'm going to mention Life Alert to the Hydro board and see what they think. Thanks!
__________________
Gina congenital hydrocephalus, porencephalic cyst, epilepsy, lumbar spinal stenosis, degenerative disc disease |
|||
Reply With Quote |
09-11-2006, 12:35 PM | #12 | ||
|
|||
Member
|
ABSOLUTELY go for it. You deseve to breathe clear air! (I bet that would help with the headaches as well. (Just a theory.) Keep us posted. We care about you!
|
||
Reply With Quote |
09-11-2006, 12:46 PM | #13 | |||
|
||||
In Remembrance
|
I checked out the site for LifeAlert and found this:
Home Emergencies Help, I've Fallen and I Can't Get Up® In a home fall emergency, or in case of a seizure, heart attack, stroke or other serious illness, a senior usually cannot reach the telephone. She or he may lie on the floor for hours or days, disconnected from any help. This injury can become life threatening. How can Life Alert® help? A simple press of a button will instantly activate Life Alert's small base unit located in the house. This unit will immediately communicate with our Monitoring Center, initiating amplified two-way voice communication between the senior and our emergency operators, who will contact neighbors, Paramedics, the Fire Department, Police and/or relatives as needed. ************************************************** ******* It mentions being helpful for people with epilepsy, but it only mentions "seniors". There's no mention about people under the age of 65 with disabilities or other medical conditions. So, this product is only being recommended for senior citizens?
__________________
Gina congenital hydrocephalus, porencephalic cyst, epilepsy, lumbar spinal stenosis, degenerative disc disease |
|||
Reply With Quote |
09-11-2006, 10:18 PM | #14 | ||
|
|||
Member
|
True, life alerts are mostly used by senior citizens, but I woldn't think you would be discrimiated against just because you are not a senior cetizen yet. Personal freedom that comes along with a device like that doesn't discriminate.
Hope you consider this as an option. |
||
Reply With Quote |
09-11-2006, 10:28 PM | #15 | |||
|
||||
In Remembrance
|
I'm thinking about it, but I want to get as much information as possible
before making a decision, y'know? I'm pretty sure I'll get one, I'm just not sure when it will be.
__________________
Gina congenital hydrocephalus, porencephalic cyst, epilepsy, lumbar spinal stenosis, degenerative disc disease |
|||
Reply With Quote |
09-11-2006, 11:19 PM | #16 | ||
|
|||
Member
|
Hope it works out for you, I am a driven advocate for the hydrocephallic community, can you tell yet?
|
||
Reply With Quote |
09-12-2006, 06:15 AM | #17 | |||
|
||||
In Remembrance
|
Quote:
Thanks!
__________________
Gina congenital hydrocephalus, porencephalic cyst, epilepsy, lumbar spinal stenosis, degenerative disc disease |
|||
Reply With Quote |
09-14-2006, 10:52 AM | #18 | ||
|
|||
Member
|
|
||
Reply With Quote |
09-14-2006, 11:17 AM | #19 | |||
|
||||
In Remembrance
|
I'm sure that it was his choice. After all, "you're disabled, you can't take
care of yourself!" And, SSDI doesn't help by giving us an amount that we can barely live off of, without helping us find a place of our own. Shouldn't they (SSDI) be showing us which programs we are eligible for, in order to pay for Medicare and housing? Instead, they basically tell us, "here's the money you'll get for the rest of your life, now you're on your own."
__________________
Gina congenital hydrocephalus, porencephalic cyst, epilepsy, lumbar spinal stenosis, degenerative disc disease |
|||
Reply With Quote |
09-14-2006, 12:34 PM | #20 | ||
|
|||
Member
|
Quote:
My sister is a whole other story that I don't EVEN want to get into. I bet you are the only one who does the houswork, too, aren't you. My sisters (yes, I said sisters, the one who is opioniated and a mess worse than I am supposedly in) and one who just HAD to move back home because she was transferred. (I can't wait until JANUARY! I wish I was moving, but I am not.) |
||
Reply With Quote |
Reply |
|
|