NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Social Security Disability (https://www.neurotalk.org/social-security-disability/)
-   -   SSDI and living independently (https://www.neurotalk.org/social-security-disability/615-ssdi-living-independently.html)

Braindrain 09-14-2006 12:45 PM

Actually, I haven't been able to do the housework for months, because my
legs just won't hold me up. The washer/dryer is in the basement and I can't
get down the steps. I can't even stand up long enough to wash the dishes.
(Yes, we have a dishwashing machine, but it still has to be loaded/unloaded).

Now, my mother's counting on this procedure that I'm supposed to have
soon (burning the nerve endings in my lower back) to take the pain away.
(Translation: I'll be doing all the housework for them in no time:rolleyes: )

What she fails to understand is that my walking/balance is only one of the
problems I'm having. It would help if I could breathe without having to use
the nebulizer machine 3 times a day!:rolleyes: Did I mention that I don't
use the machine as much when I'm by myself? Coincidence...??:rolleyes:

sjp_fanatic 09-14-2006 10:13 PM

Quote:

Originally Posted by Braindrain (Post 5992)
Actually, I haven't been able to do the housework for months, because my
legs just won't hold me up. The washer/dryer is in the basement and I can't
get down the steps. I can't even stand up long enough to wash the dishes.
(Yes, we have a dishwashing machine, but it still has to be loaded/unloaded).
Oh sheesh..... my dad's theory on this one... for me, if you can't stand. Sit.

Now, my mother's counting on this procedure that I'm supposed to have
soon (burning the nerve endings in my lower back) to take the pain away.
(Translation: I'll be doing all the housework for them in no time:rolleyes: )
I feel badly for you... Don't you get some "help" from your own parents in chiping in with the housework?

What she fails to understand is that my walking/balance is only one of the
problems I'm having. It would help if I could breathe without having to use
the nebulizer machine 3 times a day!:rolleyes: Did I mention that I don't
use the machine as much when I'm by myself? Coincidence...??:rolleyes:

I've got alergies, extreme cigarette smoke (no one smokes here), cat dander (I don't own cats and if I don't touch one or rub my face in one, I am ok) food alergies, and seasonal alergies are my biggest issues.

I would almost suggest this, but I don't want to hurt your feelings and or ego, but if I do, tell me. Have you ever tried thoose appartments (i think) that are considered "assisted living", no, not a "retirement vilage" or whatever, but think of how much freedom you could get from that, and I would be since it's "assited living" there are ways you could get out of your town or even on short trips.

I think my issues are only based on my dad's know-it-all friends, and like I said, what my dad hears from his friends, concerning me, goes. :( . The only reason why I don't drive is basically from a very traumatic learning expireince in driver's ed. (Don't ask.)

That means, I am free "to do the housework" like my sisters and my dad expects. (I mean everything) My mom and I are basically the only ones who do it.

(I wish they could live in my shoes for a week!) (((((HUGS)))))

Braindrain 09-14-2006 10:24 PM

Quote:

Originally Posted by sjp_fanatic (Post 6203)
(I wish they could live in my shoes for a week!) (((((HUGS)))))

You have no idea how many days/nights I've wondered what they would
do if they suddenly developed hydro...or any other neurological condition,
for that matter.

Actually, the subject of assisted living did come up (I forget how), but
to make a long story short, I'm "not disabled enough". As I understand
it, the program is for severely disabled people and I don't fall into that
category.

sjp_fanatic 09-14-2006 10:39 PM

Quote:

Originally Posted by Braindrain
Actually, the subject of assisted living did come up (I forget how), but
to make a long story short, I'm "not disabled enough". As I understand
it, the program is for severely disabled people and I don't fall into that
category.

Even with everythng else you have? The back thing has to be something an issue....

((((HUGS)))

Braindrain 09-14-2006 11:27 PM

It is, but since I'm going to have the nerves in my lower back cauterized
soon, it may not be considered a "major issue". Especially if my walking
and balance/coordination improve afterwards. I won't know how much
improvement I'll get until after the procedure.

sjp_fanatic 09-15-2006 10:07 PM

Quote:

Originally Posted by Braindrain (Post 6234)
It is, but since I'm going to have the nerves in my lower back cauterized
soon, it may not be considered a "major issue". Especially if my walking
and balance/coordination improve afterwards. I won't know how much
improvement I'll get until after the procedure.

I wish I could help further, but I have ran out of suggestions. But, do let us know what happens with your battle to gain freedom. You so deserve it!

Braindrain 09-15-2006 10:09 PM

I will and thanks!:)

sjp_fanatic 09-18-2006 10:23 PM

Hey, I just thought of something... you know how there is a little slip of paper in with a ss check how it says something about helping you safeguard yourself against getting your power, heat, and maybe gas shut off... maybe when you get back on your feet and have absolutely HAD IT putting up with everybody but YOU running your life, you could look into that. What do you have to loose? I am not sure how much it will deduct from your monthly check if it does, but you have obviously tried your hardest to live ON YOUR OWN. It's just a suggestion.

The only thing that could be a problem is transportation. But if you made friends with some kindhearted neighbors, that is a whole other story.

Then again, I bet rent somewhere goes tward gas, heat, and electricity anyway.

Just a suggestion for when you get back on your feet. I have faith you can do this on your own. (I just know it!! :) )

I bet you allmost anything that people who feel "stuck" with you are going to complain because they "have to" make thier house accomadatable to you so you can be the "housekeeper". For years, my own DAD had enough nerves to pretty much say to my face (without actually saying it, of course "rolls eyes".) that I was the reason we weren't very well off all the time. (Like i can help it! please....) BTW. It's been a very long time since my last operation. But yet, allowed his "prized chiildren" to go to universities. (Granted they weren't the BIG ones like, U of M.) But yet, I am the one who got blamed for not being so well off all the time.

Good luck.

Braindrain 09-19-2006 05:02 AM

Quote:

Originally Posted by sjp_fanatic (Post 8329)
Hey, I just thought of something... you know how there is a little slip of paper in with a ss check how it says something about helping you safeguard yourself against getting your power, heat, and maybe gas shut off...

My money is directly deposited into my checking account-I never see an
actual check. It's a nice thought, though.:)

sjp_fanatic 09-19-2006 10:01 AM

Quote:

Originally Posted by Braindrain (Post 8391)
My money is directly deposited into my checking account-I never see an
actual check. It's a nice thought, though.:)

I see... I just did that last year. It's nice, one less thing to worry about! :) I just hope if I remember correctly, you said something about your mom's name on YOUR account. I hope she doesn't have access to YOUR money and she withdraws it whenever she feels. (That would be terriable.)

(I think someone was added to MY account because of the fact the people at my bank are complete morons and always had one of the numbers wrong on my account. (I mean the balance wither it was begining balance, total withdraws, not enought deposit, or ending balance.... I don't remember.) But it has ALWAYS been the banks fault. Except one time, wich was an accident. And I have gotten one "suprise" wich recently came back in my favor!

(I just hope she doesn't take it upon herself to withdraw YOUR money for HER use. That would be terriable! I never really understood how that could work.)

How do you like that, I'm the one who gets punished for something the bank did? Nice, right?


All times are GMT -5. The time now is 11:47 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.