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Old 09-09-2006, 09:09 AM #1
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Thumbs down SSDI and living independently

I've been on SSD since '98 and I get only a little over $600 a month. I
can't even afford the monthly Medicare Part B deductible, which is why
I'm still on my father's medical insurance as a "disabled dependent".
Which is another way of saying that my parents don't believe that I can
take care of myself. So, I've lived with my parents for 40 years because
I can't afford any place else to live.

What I really need is more money from SSD ($1000 a month would be nice!)
I need to be able to afford Medicare Part B and a place to live in MD. I don't
want to live with a roomate, because after 40 years with my parents, I just
need my space. And, since my asthma is affected by my mother's smoking,
her chemical cleansers, and houseplants, I could really use some fresh air.

My mother's name is also on my bank accounts and credit cards, so I can't
even buy anything without her knowing about it.

Is there something wrong with me wanting to have a life of my own without
my parents hanging over my shoulder all the time?! There has to be
a way for me to get out of this house and live on my own, but I haven't
found it yet.

Thanks for letting me rant.
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Gina

congenital hydrocephalus, porencephalic cyst,
epilepsy, lumbar spinal stenosis, degenerative
disc disease
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Old 09-09-2006, 02:24 PM #2
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Gina,

No, there's nothing wrong with you for wanting to live independently.

I'm not sure how SSD works (since I've not been on it) yet, I'm hopeful, someone else who does understand SSD will post. This is what I don't know: Whether SSD adjusts the monthly amt. if someone could find a place to live on one's own.

Maybe you've already checked out the following, I dunno, so I'll go ahead and post them:

http://www.dors.state.md.us/dors
http://www.mcil-md.org/services.htm
http://www.nod.org/index.cfm?fuseact...Page&pageId=17
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Old 09-09-2006, 04:25 PM #3
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Would this site help at all? Perhaps you have already been thru it.

http://www.ssa.gov/disability/profes...ical-Adult.htm


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Old 09-09-2006, 06:57 PM #4
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Smile Thanks!

I think I remember the blue book from when I started with SSDI. If
I'm remembering this correctly, it was one of the reasons I was able
to get Disability, because Epilepsy (which I have) was listed in it. I
don't remember if hydrocephalus was listed, but that was another
reason that I was able to get SSDI-because I already had a "permanent
medical condition". (They were wording it differently, but I don't remember
the term(s) they used).

I'll look through all the links and hopefully, I'll find something that will help
me.

Thanks, ladies!
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Gina

congenital hydrocephalus, porencephalic cyst,
epilepsy, lumbar spinal stenosis, degenerative
disc disease
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Old 09-09-2006, 11:45 PM #5
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Default BrainDrain....

I really feel sorry for you... I really wish I can help you.

How is the blown circuit issues (?) from the last board going, did you convince your mom and dad to look into things so your house won't blow a fuse. (I don't remember what went on with that.)

I am absolutely not siding with your parents. I see your point totally. You need space and CLEAN air to BREATHE. You are INTITLED to that. You know, if your mom and dad are that desperate to keep you home, is there a possibility that something was available within walking distance of your house.
Or hey! What about creating an "appartment", you'll still keep your mom and dad happy by being there, but you really aren't. Maybe if your mom and dad upgrade things like appliances you can take the old appliances and make your own space to live.

I, too, am permanetly (for the time being) stuck at home, but I don't mind with my beloved dog who is such a joy. I want to spread out sooner or later, but I want to be arround for Cocoa since no one is arround that much, except me.

Though, you would think your parents would applaud your desires to be on your own reguardless of anything. I've been trying for some time, but when my sister found out, she totally went bellistic on me and pretty much said I had no business moving out on my own. (Even if it wasn't that far, probably not even a BLOCK away.

It gets better, my own DAD refuses to see things my way and expects me to stay here the rest of my life. I know my mom has faith in me because she supports my desires to be a singer. She knows I am under a great deal of stress being "on the system" and she knows that I deserve better. (Like I said before my dad "twisted" her arm to see things his (and his "know it all" buddies') way about MY life.

Good luck, hon.
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Old 09-10-2006, 07:25 AM #6
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He looked at the board, but nothing else has been said since, so I'm not sure
if he's doing anything about it. Although, he's been "b--ching" (my mother's
word) about my mother's smoking in the house. I can't seem to get it through
to either of them that the smoking is not the only trigger I have. Even if she
quit tomorrow , there are so many other things in the house that
can trigger an attack that the only way for me to be able to breathe is if I
moved out. Oh, get this: my brother and his wife are ones who agree that
I should move out, but my mother won't listen.

Round and round we go...
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Gina

congenital hydrocephalus, porencephalic cyst,
epilepsy, lumbar spinal stenosis, degenerative
disc disease
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