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09-12-2006, 06:15 AM | #1 | |||
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In Remembrance
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Thanks!
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Gina congenital hydrocephalus, porencephalic cyst, epilepsy, lumbar spinal stenosis, degenerative disc disease |
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09-14-2006, 10:52 AM | #2 | ||
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09-14-2006, 11:17 AM | #3 | |||
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In Remembrance
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I'm sure that it was his choice. After all, "you're disabled, you can't take
care of yourself!" And, SSDI doesn't help by giving us an amount that we can barely live off of, without helping us find a place of our own. Shouldn't they (SSDI) be showing us which programs we are eligible for, in order to pay for Medicare and housing? Instead, they basically tell us, "here's the money you'll get for the rest of your life, now you're on your own."
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Gina congenital hydrocephalus, porencephalic cyst, epilepsy, lumbar spinal stenosis, degenerative disc disease |
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09-14-2006, 12:34 PM | #4 | ||
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My sister is a whole other story that I don't EVEN want to get into. I bet you are the only one who does the houswork, too, aren't you. My sisters (yes, I said sisters, the one who is opioniated and a mess worse than I am supposedly in) and one who just HAD to move back home because she was transferred. (I can't wait until JANUARY! I wish I was moving, but I am not.) |
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09-14-2006, 12:45 PM | #5 | |||
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In Remembrance
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Actually, I haven't been able to do the housework for months, because my
legs just won't hold me up. The washer/dryer is in the basement and I can't get down the steps. I can't even stand up long enough to wash the dishes. (Yes, we have a dishwashing machine, but it still has to be loaded/unloaded). Now, my mother's counting on this procedure that I'm supposed to have soon (burning the nerve endings in my lower back) to take the pain away. (Translation: I'll be doing all the housework for them in no time ) What she fails to understand is that my walking/balance is only one of the problems I'm having. It would help if I could breathe without having to use the nebulizer machine 3 times a day! Did I mention that I don't use the machine as much when I'm by myself? Coincidence...??
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Gina congenital hydrocephalus, porencephalic cyst, epilepsy, lumbar spinal stenosis, degenerative disc disease |
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09-14-2006, 10:13 PM | #6 | ||
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I would almost suggest this, but I don't want to hurt your feelings and or ego, but if I do, tell me. Have you ever tried thoose appartments (i think) that are considered "assisted living", no, not a "retirement vilage" or whatever, but think of how much freedom you could get from that, and I would be since it's "assited living" there are ways you could get out of your town or even on short trips. I think my issues are only based on my dad's know-it-all friends, and like I said, what my dad hears from his friends, concerning me, goes. . The only reason why I don't drive is basically from a very traumatic learning expireince in driver's ed. (Don't ask.) That means, I am free "to do the housework" like my sisters and my dad expects. (I mean everything) My mom and I are basically the only ones who do it. (I wish they could live in my shoes for a week!) (((((HUGS))))) |
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09-14-2006, 10:24 PM | #7 | |||
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In Remembrance
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do if they suddenly developed hydro...or any other neurological condition, for that matter. Actually, the subject of assisted living did come up (I forget how), but to make a long story short, I'm "not disabled enough". As I understand it, the program is for severely disabled people and I don't fall into that category.
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Gina congenital hydrocephalus, porencephalic cyst, epilepsy, lumbar spinal stenosis, degenerative disc disease |
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