Spinal Disorders & Back Pain For discussion of all spinal cord injuries, spinal issues, back-related pain or problems.


advertisement
Reply
 
Thread Tools Display Modes
Old 03-11-2012, 03:22 PM #1
MalindaK MalindaK is offline
Junior Member
 
Join Date: Feb 2012
Location: PNW
Posts: 74
10 yr Member
MalindaK MalindaK is offline
Junior Member
 
Join Date: Feb 2012
Location: PNW
Posts: 74
10 yr Member
Default

Sounds like you have been through more with your PS than I have with 3 spine surgeries and PS.

I learned from a very good PT that stress can make your pain more difficult. Sounds simplistic but he taught me how to breath. I was holding my breath when I hurt. So deep slow breathing and visualizing no pain (which isn't easy) helps it to calm down. I also go to a really good pain Doc. She's an anesthesiologist pain specialist. And we keep a good supply of icyhot in the house.

I thought I would be in a wheel chair until I met her. I seldom take pain pills now. I am so glad. I wish you could find one specialist who could coordinate your care and give you relief.

Here's hoping you get the help you need.


Quote:
Originally Posted by msabona View Post
I'm a 39 year old male. I was very active prior to the chronic pain. I'm at my wits end. My anxiety and depression are at their worst. I'm now in psychotherapy, but I don't think one hour a week of talking about how my pain is degrading my mental capacity is helping me. I'm not criticizing all therapy; it's just not helping me with pain. I need to find a way to stop the pain or I fear that I will simply give up on everything.

My pain is in my right buttock daily, and often travels down into my right hamstring. After golfing 18 holes, my pain will manifest itself in my groin for up the three days.

I wake up every day at a 2/3 on the pain scale. Sitting in an office chair or in a car cause my pain to rapidly increase from a 2/3 to an 8/9. When I say rapidly I mean 10 to 30 minutes. My right butt muscles spasm randomly every day from one spasm episode to multiple episodes lasting anywhere from 1 to 10 seconds. The spasms do not trigger painful sensations. I take Baclofen to stop the spasms but the pain is not relieved.

My relentless journey to find the reason and cure for this pain includes:

Imaging
Over the last 4 years I’ve had several MRIs (with and without contrast) of my lower back, right hip and hemi-pelvis, x-rays of lumbar spine, ultrasound of ischial bursa area, and whole body bone scans. The MRIs show:

L4-L5: minimal posterolateral disk bulges are identified bilaterally. There are no focal significant disk herniations or evidence of central canal stenosis. There is mild narrowing of the neural foramina bilaterally.

L5-S1: There is a small broad-based posterior central disk protrusion at this level. There is no evidence for compromise of central canal or nerve roots. There is no significant foraminal narrowing.

Treatments

Over the last 4 years I’ve tried the following treatments, and have summarized each treatment’s effectiveness.

Cold and Heat Therapy: Doesn’t relieve the pain.

Piriformis Stretching and Neural Flossing: Provides immediate relief, but only temporarily.

Core muscle strengthening: Doesn’t relieve the pain.

Psoas muscle release: Doesn’t relieve the pain.

Piriformis muscle release: Provides immediate relief, but only temporarily.

About 3 months of weekly Physical Therapy: Doesn’t relieve the pain.

TENS unit: Delays the onset of the pain, but causing skin irritation and discomfort.

Sitting on a 70cm exercise ball versus office chair: Doesn’t relieve the pain.

Sitting on a FitBall disk on top of office chair: Doesn’t relieve the pain.

Sitting on pillow on top of office chair: Doesn’t relieve the pain.

About 3 years of weekly Chiropractic manipulation: Doesn’t relieve the pain. I did learn that I had fallen arches, specifically on the same side as the pain. I have ortho inserts and wear them daily now.
Acupuncture (3 visits): Doesn’t relieve the pain.

CT-guided Epidural steroid injections in L4, L5, S1: First injection relieved the pain for 6 months, second injection relieved the pain for 3 months and third injection relieved the pain for 2 weeks.

CT-guided Ischial bursa injection: Doesn’t relieve the pain.

CT-guided Piriformis injections (steroid and Botox): First steroid injection relieved the pain for a couple of months; second steroid injection relieved the pain for 2 weeks. Botox injection doesn’t relieve the pain.

RF Ablations of T-11 through L3 twice with 3 month periods (Sept 5 and Dec 2, 2011), Doesn’t relieve the pain.

Pain Management

Ibuprofen/Aleve/Tylenol: Doesn’t relieve the pain. Took Ibuprofen almost every day for 1 year and ended up with Gastritis. I stopped taking NSAIDs. I cured my Gastritis by drinking Aloe Vera Gel over a 3-week period.

Darvocet 10MG: Decreased the pain by 1-2 points for 30 to 60 minutes.

Hydrocodone/APAP 10MG: Decreased the pain by 2-3 points for 30 to 60 minutes.

Oxycodone/APAP 10MG: Decreases the pain by 4-5 points for 1 to 1.5 hours.

Lyrica: No pain relief.

Gabapentin: Couldn't tolerate.

Topirimate: Only been taking it for one month. Haven’t noticed any pain relief from it.

Lidoderm Patch: Just started wearing these five days ago. Doesn't relieve the pain when sitting, however, when I wear the patch and don’t sit upright I feel great.

Baclofen: Stops the buttock muscle spasms but doesn’t relieve the pain.

Lidocaine: Had 10cc injected about ½ inch below the skin above the center of the Piriformis (my wife is in the medical field) and all of my pain went away for about 45 minutes. I even went for a long drive after making sure my leg wasn’t numb and no pain was triggered.

I’m now thinking of having Piriformis Release Surgery. I live in Milwaukee, WI. Does anyone have any advice for my after reading my story? My anxiety and depression are winning the battle at the moment. It’s affecting my work and my family life. I’m losing myself. I’m not suicidal because I have kids that need and deserve their father, but if it wasn’t for them there would be no reason to continue this suffering.

I've attached a .zip file of my scans in case I'm lucky enough for someone to come across this post, read my images, and find something helpful.
MalindaK is offline   Reply With QuoteReply With Quote
Old 04-23-2012, 09:56 PM #2
South Side Jimmy South Side Jimmy is offline
New Member
 
Join Date: Apr 2012
Posts: 1
10 yr Member
South Side Jimmy South Side Jimmy is offline
New Member
 
Join Date: Apr 2012
Posts: 1
10 yr Member
Default

Hi. I am 47 y/o and also live in WI. I have a horrid pain in my right buttox.I do believe I have piroformis syndrome. I have had it for eight years and it is ruining my life. My wife is leaving me after 26 years because this has changed me dramatically. I have had several MRI's, at least 4 cortisone injections into the piroformis with diminishing relief. (5 months max) I have some relief with Tramadol & Hydrocodone. Stretches & Chiro SI joint manipulation also helps. I want Piro release as well. Have you found a diagnosis? I'd go to Mayo and get fresh start. Yours sounds worse than my pain. I was going to try Mayo but just lost my job and quite likely the cabin too. No wonder I'm slightly depressed. Having a bone scan tomorrow & some x-rays hunched over. Sitting is terrible.
South Side Jimmy is offline   Reply With QuoteReply With Quote
Old 11-08-2023, 02:52 PM #3
CSOF CSOF is offline
Newly Joined
 
Join Date: Nov 2023
Posts: 1
CSOF CSOF is offline
Newly Joined
 
Join Date: Nov 2023
Posts: 1
Default

I read your post from 2010. Do you mind sharing how you have been doing since the original post? Could I contact you directly?
CSOF is offline   Reply With QuoteReply With Quote
Old 02-03-2012, 01:57 PM #4
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Re: welcome Deetee

Welcome to Neuro Talk. You have found a site that should help you to find some answers about this condition. This is the first time I have heard of piriformis syndrome. I will look it up however. There will be others that know alot more about it that I do. You will find help and compassion here, and a few new friends. Feel free to explore all the forums and join in any conversation you want to. I hope someone will help you out soon with your questions. ginnie
ginnie is offline   Reply With QuoteReply With Quote
Old 02-14-2012, 10:22 AM #5
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Good morning and welcome deetee

Happy Valentines day, and welcome to Neruo Talk. You will find alot of people who will address some of your medical issues. I am sorry that pain has brought you here, but you found a good group of caring individuals. I wanted to stop in and Welcome you here. I hope you get lots of replies and some good information. ginnie
ginnie is offline   Reply With QuoteReply With Quote
Old 11-13-2014, 08:53 PM #6
lynn777jewel's Avatar
lynn777jewel lynn777jewel is offline
Junior Member
 
Join Date: Nov 2014
Location: Huntsville, TX
Posts: 6
8 yr Member
lynn777jewel lynn777jewel is offline
Junior Member
lynn777jewel's Avatar
 
Join Date: Nov 2014
Location: Huntsville, TX
Posts: 6
8 yr Member
Default Piriformis

My husband was diagnosed with piriformis syndrome.
lynn777jewel is offline   Reply With QuoteReply With Quote
Old 01-30-2016, 11:46 PM #7
old guy old guy is offline
New Member
 
Join Date: Jan 2016
Posts: 1
8 yr Member
old guy old guy is offline
New Member
 
Join Date: Jan 2016
Posts: 1
8 yr Member
Default piriformis

after taking anti imflamitories a few days to relive pain i decided to stop. because they inhibit healing and repair. I also started taking a gram of magnesium a day im seeing a sudden steady improvement
old guy is offline   Reply With QuoteReply With Quote
Old 07-23-2016, 08:04 PM #8
cmbuett cmbuett is offline
Newly Joined
 
Join Date: Jul 2016
Posts: 1
5 yr Member
cmbuett cmbuett is offline
Newly Joined
 
Join Date: Jul 2016
Posts: 1
5 yr Member
Default Piriformis Pain

Hello,
My name is Christina, 28 yrs old. I had no idea people were going through the same thing as me! Some days I think I'm going crazy and others I fear that the pain will never go away. I was diagnosed with performs syndrome about 3 years ago. I used to be very active with things like acrobatics, dance, yoga, and weight lifting. Since my injury I have gone through 3 rounds of physical therapy with only minimal results. I've also tried chiropractic and massage therapy. I have been in pain every day for almost 3 years and it has taken a toll on my body. I've had problems with over compensation and it's hard to get through basic activities like sitting, driving, and walking. I just wanted to give some support to others who are going through this and seek out some support of my own. I would truly not wish this on anyone.
cmbuett is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Stiff-Person-Syndrome/Stiff-Man-Syndrome? Any info? sharry50 Autoimmune Diseases 4 04-21-2012 01:10 AM
Reflex sympathetic dystrophy secondary to piriformis syndrome: a case report Sandel Reflex Sympathetic Dystrophy (RSD and CRPS) 15 02-01-2012 03:32 PM
Sicca Syndrome/Sjogrens Syndrome darlindeb25 Autoimmune Diseases 4 04-01-2010 06:53 AM
TOS 101 - It's a SYNDROME beth Thoracic Outlet Syndrome 11 07-28-2007 03:28 PM


All times are GMT -5. The time now is 01:07 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.