NeuroTalk Support Groups - Spinal Cord Stimulator/Pain Pump Information

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- - Spinal Cord Stimulator/Pain Pump Information (https://www.neurotalk.org/spinal-disorders-and-back-pain/114113-spinal-cord-stimulator-pain-pump-information.html)

failed back surgery syndrome

My father had a spinal fusion about a year ago. Now, he suffers from severe peripheral neuropathy in his feet, pain in his legs, and pain at the surgery site. I am searching for ways to help him, but it's hard because he has almost given up. He feels he has tried everything, although I point out all kinds of things he hasn't tried. Anyway, I got him to start taking Brewer's Yeast today. Has anyone had any experience with this or b12. I wish b12 was in the BY, but that's the way it goes. What should I do to help him?

--you posted this in the useful websites portion of the spinal forum--specifically, in the area that deals with spinal stimulators--so only people looking for that very particular information are likely to see it.

I'd re-post your query in the spinal forum proper, or in the peripheral neuropathy forum, and then you are likely to get more responses:

http://neurotalk.psychcentral.com/forum22.html

http://neurotalk.psychcentral.com/fo...sprune=-1&f=20

Quote:

Originally Posted by msdilbert2 (Post 669032)

New to site and already have had some questions answered. I also dont feel so alone when I read about others in similar situations. Thanks for sharing! Pam Z.

I looked into this also. I have Neuropathy due to failed back surgery now with the extra bonus of severe osteoporosis in the lumber spine. At 47 it seems very overwhelming.

I've checked with a couple of people that i know that have implants, and it doesn't look like that's the answer. If you have any other info to share please do. Most people can't begin to imagine how difficult it is or how painful it can be. Best of luck to you.

don't count it out

I felt the same way about SCS, but after the trial I found that it would work for me, 65/45 was my guess A trial is a trial, If you are like me I will try anything:) once, I understand the pain, I think everyone at this site does !!!

Quote:

Originally Posted by im4dexter (Post 680878)

Quote:

Originally Posted by Rrae (Post 619254)

Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae

I dont hear much about the implants, would also like to know more about them, getting my first lumbar fusion soon

I am interested in the spinal cord stimulator.My doctor
has suggested this option for me.I would like to hear
from people who have them
Thanks
MZ33

Hi MZ33 and welcome to NeuroTalk! :)

You've posted your question on a "sticky" thread ('Sticky' threads are created by moderators or administrators, and remain 'stuck' to the top of the listing, even if they haven't had any posts recently. Their purpose is to keep important information visible and accessible at all times) and these threads often don't get the traffic that other forum threads get so I copied your post into it's own thread on the Spinal Disorders forum. Here is a link......http://neurotalk.psychcentral.com/thread143383.html

Quote:

Originally Posted by Rrae (Post 619254)

Hi Rae,
I'm new to this forum but found it in my quandry to try SCS. The Ins. Co. actually requests a Psyc eval in order to proceed? So after a few sessions, I came to a roadblock but not from my Psy eval. Can I get an MRI with this stimulator in place?
I Don't think so! I've worked in radiology for 30+ years. I've had everything from radio-ablation to a laminotomy in 2004. I've found norco to be my friend in keeping my legs and lo back pain at bay and under control.
I do think that some of these Pain Doc secialists get a tad negative of not gettin their patients off the pain meds, But my Neury Doc thought that I was on a manageable amount...about 60 - 75 mg a day, prior to my surgery in 04 I was on 100 norco and 100 methadone a day:( But I could function and have a quality of life.

Oh by the way... Great idea to have a specific forum for SCS. Good luck, I'll be back:)
MK

So sorry to hear your dad is suffering. I want you to keep going and get another opinion. I had failed neck surgery, fusion with plate at C-6-7. The next six years were a living hell. My pain specialist finally said, lets try to see the best neuro surgeon. I wound up with a big surgery, as I had also reversed the curve of my spine. C-4-5 was kinda folded over on itself. My first neuro said he couldn't help me anymore and I had given up hope. The Dr. I saw those six years didn't think there was hope eithor. I had the surgery Aug. 29. This is a great success. My pain is very little conpared to what it was. I was fused C3-7 and my neck was given back its shape. I believe in hope, that medicine can do alot. Even with failed surgery, there can be hope in a future surgery. I didn't think there could either. I was wrong, and I have a life without the terrible pain. Surgery was hard, no joke, really hurt, but here I am in a new year, and I am off almost all my meds. Maybe it would be good for his spirit if you tried just one more time. ginnie:hug::hug:

I posted you without putting your name on it. See below for a reply aimed at your dad. Ginnie