Spinal Cord Stimulator/Pain Pump Information

Rrae · 03-15-2010, 10:21 AM

Congrats on your successfull implant!! I've had mine for 3wks and like it alot! Yes, you will feel discomfort at the incision sites. I layed on ice the first week. It gets better every day. Just follow the restriction guidelines. I have the Medtronic Ultra (smallest model)

Sounds like you and I have the same pain issues (both legs mostly, but the SCS also has a program to cover my lower back)
I was thrilled about that!

Let me give you the link to the actual SCS forum here at NeuroTalk ..... just click on

http://neurotalk.psychcentral.com/forum118.html

Start a new thread there and lots of folks will chime in!
Hope to see you there!
Rae

PS What we are communicating on right now is just a link talking about the SCS forum, so not many folks will see your post here

dhigley · 08-22-2011, 08:53 PM

Mary,

I am interested to know how your spinal cord stimulator is working. My husband had one implanted 12 weeks ago and so far he hasn't be able to use it. He is having an extreme amount of pain at the top of his back where they did the top incision for the leads. Any information would be very helpful.

Dani

Quote:

Originally Posted by mwest

Hello, I have had back and leg pain for years and years. I have had the injections and the burning. That work for a few years but with the disc slowly disappearing one by one the shots just weren't working anymore. I had the SCS put in for 5 days. I knew it worked some but I didn't know just how much until they took it out. I had the permanent on put in last Tuesday.
I look into all 3 of them on the market that I could find and I liked the Boston Scientific the best. With luck that's the one my pain doctor likes to use also.
Putting it in is painful. But so were the shots, and the burning. My doctor is very good about not wanting me to feel pain so he did do the best he could about numbing me. He gave me pain pills to help afterwards. The first night was rough just like with any surgery. I have do have discomfort at both sights, but it's only been a week. I turn my unit on while I'm laying down. It's working very good so far. I go back to the doctor tomorrow to check everything out and have it fine tuned some.
After everything I've gone through so far with my back pain this seems to help.
What implant are you having put in?
Good luck.
Mary

sweetscnts17 · 04-21-2010, 06:42 PM

Hi I had a back fusion surgery about 9 weeks ago and and was diagnoised with complex regional pain syndrome due to the surgery.The pain runs down my leg and into my foot.I have had 8 nerve block shots and now the Dr is recommending me to get a nerostimulator.Has anyone had a back fusion surgery that led to Complex regional pain syndrome?If so did your Dr recommed the nerostimulator?My back surgon thinks I should wait it out before getting the stimulator and my pain mang Dr thinks I should have it done now.I dont want to jump the gun and just get it done but I also dont want to live with this pain.
Im currently taking Lyrca and Cybalta ,plus pain meds which include morphine patches.I have had a MRI and a cat scan that came up negative for any other problem than the complex reg pain.If anyone can answer these questions I would appreciate it.
Thanks,Val

Rrae · 04-22-2010, 06:51 AM

Hey, you have great questions! I hope you will get some good input....
I think you already know this, but in case you don't, here is the actual
link to get you over to the SCS forum,,,, click on:

http://neurotalk.psychcentral.com/fo...ysprune=&f=118

More folks will see your questions there!
Where we are now communicating is just a post informing people how to get TO the SCS forum!

Good Luck my friend!
My heart is with ya!

Rae

dspine · 04-24-2014, 03:59 PM

Quote:

Originally Posted by sweetscnts17

Hi I had a back fusion surgery about 9 weeks ago and and was diagnoised with complex regional pain syndrome due to the surgery.The pain runs down my leg and into my foot.I have had 8 nerve block shots and now the Dr is recommending me to get a nerostimulator.Has anyone had a back fusion surgery that led to Complex regional pain syndrome?If so did your Dr recommed the nerostimulator?My back surgon thinks I should wait it out before getting the stimulator and my pain mang Dr thinks I should have it done now.I dont want to jump the gun and just get it done but I also dont want to live with this pain.
Im currently taking Lyrca and Cybalta ,plus pain meds which include morphine patches.I have had a MRI and a cat scan that came up negative for any other problem than the complex reg pain.If anyone can answer these questions I would appreciate it.
Thanks,Val

Hello sweetscnts17,i am really sorry you are going through so much pain,i had my back fusion 4 yrs ago,still suffering.My nerostimulator was a failure,they were going for at least 50%pain relief i only recieved 5%.But from what i read it has been a relief for some,i think it has to do with the Dr doing it.It is up to you to go through it you are the one in pain,and if it works out great no more pain meds that slowly kill you.GOOD LUCK

Mozena14 · 04-27-2010, 01:29 PM

Quote:

Originally Posted by Rrae

Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae

I'm thinking about having ANS implant. Anyone here with this implant?

msdilbert2 · 06-26-2010, 12:57 PM

Quote:

Originally Posted by Rrae

Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae

New to site and already have had some questions answered. I also dont feel so alone when I read about others in similar situations. Thanks for sharing! Pam Z.

Anthony77 · 07-07-2010, 07:16 PM

My father had a spinal fusion about a year ago. Now, he suffers from severe peripheral neuropathy in his feet, pain in his legs, and pain at the surgery site. I am searching for ways to help him, but it's hard because he has almost given up. He feels he has tried everything, although I point out all kinds of things he hasn't tried. Anyway, I got him to start taking Brewer's Yeast today. Has anyone had any experience with this or b12. I wish b12 was in the BY, but that's the way it goes. What should I do to help him?

glenntaj · 07-08-2010, 06:47 AM

--you posted this in the useful websites portion of the spinal forum--specifically, in the area that deals with spinal stimulators--so only people looking for that very particular information are likely to see it.

I'd re-post your query in the spinal forum proper, or in the peripheral neuropathy forum, and then you are likely to get more responses:

http://neurotalk.psychcentral.com/forum22.html

http://neurotalk.psychcentral.com/fo...sprune=-1&f=20

ginnie · 02-15-2011, 04:48 PM

So sorry to hear your dad is suffering. I want you to keep going and get another opinion. I had failed neck surgery, fusion with plate at C-6-7. The next six years were a living hell. My pain specialist finally said, lets try to see the best neuro surgeon. I wound up with a big surgery, as I had also reversed the curve of my spine. C-4-5 was kinda folded over on itself. My first neuro said he couldn't help me anymore and I had given up hope. The Dr. I saw those six years didn't think there was hope eithor. I had the surgery Aug. 29. This is a great success. My pain is very little conpared to what it was. I was fused C3-7 and my neck was given back its shape. I believe in hope, that medicine can do alot. Even with failed surgery, there can be hope in a future surgery. I didn't think there could either. I was wrong, and I have a life without the terrible pain. Surgery was hard, no joke, really hurt, but here I am in a new year, and I am off almost all my meds. Maybe it would be good for his spirit if you tried just one more time. ginnie

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