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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Spinal Disorders & Back Pain (https://www.neurotalk.org/spinal-disorders-and-back-pain/)
-   -   Spinal Cord Stimulator/Pain Pump Information (https://www.neurotalk.org/spinal-disorders-and-back-pain/114113-spinal-cord-stimulator-pain-pump-information.html)

MrsPooh523 07-09-2011 01:49 PM
Interested in learning more
 
Quote:
Originally Posted by Rrae (Post 619254)
Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae
Hi Rrae,
I would be very interested in learning more about this. I am going in this Wed to the hospital for another EMG and MRI w/ contrast of spine and brain to determine why my nerve pain still exists after a double level fusion...I hope it does not come down to me needing an implant device...uggh!
Thanks!

dhigley 08-22-2011 08:43 PM
My husband had a SCS implanted 12 weeks ago. So far not so good. We have a follow up appointment this upcoming Monday with a spinal pain institute that we met with before he had his implant. We were told the implant would help with a minimum of 40% of his pain. To date my husband can't even turn it on because now he has an extreme amount of pain at the top of his back where he has never had pain before but where the top incision was done to feed the leads for the implant down. My husband had the trial done before the permanent implant and the trial worked well which is why he went ahead with the permanent implant. If you have more specific questions give me a message.

Quote:
Originally Posted by Rrae (Post 619254)
Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae

dhigley 08-22-2011 08:53 PM
Mary,

I am interested to know how your spinal cord stimulator is working. My husband had one implanted 12 weeks ago and so far he hasn't be able to use it. He is having an extreme amount of pain at the top of his back where they did the top incision for the leads. Any information would be very helpful.

Dani

Quote:
Originally Posted by mwest (Post 632800)
Hello, I have had back and leg pain for years and years. I have had the injections and the burning. That work for a few years but with the disc slowly disappearing one by one the shots just weren't working anymore. I had the SCS put in for 5 days. I knew it worked some but I didn't know just how much until they took it out. I had the permanent on put in last Tuesday.
I look into all 3 of them on the market that I could find and I liked the Boston Scientific the best. With luck that's the one my pain doctor likes to use also.
Putting it in is painful. But so were the shots, and the burning. My doctor is very good about not wanting me to feel pain so he did do the best he could about numbing me. He gave me pain pills to help afterwards. The first night was rough just like with any surgery. I have do have discomfort at both sights, but it's only been a week. I turn my unit on while I'm laying down. It's working very good so far. I go back to the doctor tomorrow to check everything out and have it fine tuned some.
After everything I've gone through so far with my back pain this seems to help.
What implant are you having put in?
Good luck.
Mary:)

hskers33 09-24-2011 04:13 AM
Has anyone recommended changing to a different brand of SCS? That suggestion was just made to me. If you don't mind me asking, are you suffering from CRPS or another condition?

Mandyk 09-24-2011 10:08 PM
Hi, I have had my implant for about 2 yrs now,but latley I've been having alot pain and swelling around my battery pack. Has this happened to anyone else?

Rrae 09-26-2011 11:55 AM
Hello!
 
Quote:
Originally Posted by hskers33 (Post 808670)
Has anyone recommended changing to a different brand of SCS? That suggestion was just made to me. If you don't mind me asking, are you suffering from CRPS or another condition?
Welcome to NT!
We now have a forum specific to SCS/Pain Pump discussion! Here is the link to get you there
http://neurotalk.psychcentral.com/fo...ysprune=&f=118
It's a very active forum and lots of info!

We were actually just discussing the issue of changing manufacturers.
I hope to see you there!

:hug: Rae :hug:

Lindaky 04-04-2012 08:21 AM
Quote:
Originally Posted by Rrae (Post 619254)
Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae
My Dr is sceduling me with a Pain Mainagement specialist and since we have tried everything else I am thinking this could be our next option. Not really sure how I feel about it yet. Kind of scary!

eva5667faliure 04-11-2012 09:38 PM
hi everybody

can anyone have a pain pump
inserted in a noninvasive manner
info appreciated

thank you

ginnie 04-12-2012 09:57 AM
Hi Eva
 
I am not sure Eva. I do know there are several kinds. The SCS which is written about alot on the forum, and then there is the morphine pump. A friend of mine has this, and it never gave her problems, just relief. It was inserted into her stomach, and the refill is injected monthly into a spot through her skin. It doesn't hurt her. I am not sure there in a non invasive kind of pump. I will get on line and see what I can find out. If I had a choice, I would have this morphine pump. I was turned down for the SCS for what ever reasons they had. At the time I had no insurance, which was part of the problem. In fact finding any specialist was difficult.
I will try to find out more for you Eva. ginnie

hiatthome 05-27-2012 09:50 PM
On my second battery, may need another
 
Hi,

I had a pain stimulator implant in 2008 and it worked great for the targeted area for a while. I recently had everything taken out so MRI's could be done and then they put a new IPG with paddles in the epidural space. Because the new paddles didn't work for my migraines and neck pain, they did help my shoulder and limbs, I had a modification to treat two more areas. With the new areas the battery isn't working as expected so the relief is minimal. Now they are playing with programming and if that doesn't work I may need either a second small battery or a replacement to a bigger battery like the one I had in the first place. While looking for answers I see the company that makes my stimulator is having big problems. I trusted them because they did a good job the first time and the rep. is awesome but I should have done my research, they were bought out a few years ago and seem to have continuous problems (search FDA recalls before you pick).


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