Spinal Disorders & Back Pain For discussion of all spinal cord injuries, spinal issues, back-related pain or problems.


advertisement
Reply
 
Thread Tools Display Modes
Old 05-05-2011, 01:49 AM #1
JAP III JAP III is offline
New Member
 
Join Date: May 2011
Posts: 4
10 yr Member
JAP III JAP III is offline
New Member
 
Join Date: May 2011
Posts: 4
10 yr Member
Default SCS Forum

Quote:
Originally Posted by Rrae View Post
Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae
Yes I would like to see more on SCS as my Dr. is suggesting this may be an option for me to consider
JAP III is offline   Reply With QuoteReply With Quote
Old 05-05-2011, 02:51 AM #2
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Welcome to NeuroTalk:

Here is our SCS forum which discusses SCS and other implantable devices for back pain:

http://neurotalk.psychcentral.com/forum118.html
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 07-09-2011, 01:49 PM #3
MrsPooh523 MrsPooh523 is offline
New Member
 
Join Date: Jul 2011
Posts: 2
10 yr Member
MrsPooh523 MrsPooh523 is offline
New Member
 
Join Date: Jul 2011
Posts: 2
10 yr Member
Red face Interested in learning more

Quote:
Originally Posted by Rrae View Post
Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae
Hi Rrae,
I would be very interested in learning more about this. I am going in this Wed to the hospital for another EMG and MRI w/ contrast of spine and brain to determine why my nerve pain still exists after a double level fusion...I hope it does not come down to me needing an implant device...uggh!
Thanks!
MrsPooh523 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Rrae (09-26-2011)
Old 08-22-2011, 08:43 PM #4
dhigley dhigley is offline
New Member
 
Join Date: Aug 2011
Posts: 2
10 yr Member
dhigley dhigley is offline
New Member
 
Join Date: Aug 2011
Posts: 2
10 yr Member
Default

My husband had a SCS implanted 12 weeks ago. So far not so good. We have a follow up appointment this upcoming Monday with a spinal pain institute that we met with before he had his implant. We were told the implant would help with a minimum of 40% of his pain. To date my husband can't even turn it on because now he has an extreme amount of pain at the top of his back where he has never had pain before but where the top incision was done to feed the leads for the implant down. My husband had the trial done before the permanent implant and the trial worked well which is why he went ahead with the permanent implant. If you have more specific questions give me a message.

Quote:
Originally Posted by Rrae View Post
Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae
dhigley is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Rrae (09-26-2011)
Old 09-24-2011, 10:08 PM #5
Mandyk Mandyk is offline
Junior Member
 
Join Date: Sep 2011
Location: South Carolina
Posts: 19
10 yr Member
Mandyk Mandyk is offline
Junior Member
 
Join Date: Sep 2011
Location: South Carolina
Posts: 19
10 yr Member
Default

Hi, I have had my implant for about 2 yrs now,but latley I've been having alot pain and swelling around my battery pack. Has this happened to anyone else?
Mandyk is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Rrae (09-26-2011)
Old 04-04-2012, 08:21 AM #6
Lindaky Lindaky is offline
Junior Member
 
Join Date: Apr 2012
Posts: 17
10 yr Member
Lindaky Lindaky is offline
Junior Member
 
Join Date: Apr 2012
Posts: 17
10 yr Member
Default

Quote:
Originally Posted by Rrae View Post
Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae
My Dr is sceduling me with a Pain Mainagement specialist and since we have tried everything else I am thinking this could be our next option. Not really sure how I feel about it yet. Kind of scary!
Lindaky is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (04-12-2012), Rrae (04-21-2012)
Old 04-11-2012, 09:38 PM #7
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
Grand Magnate
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
eva5667faliure eva5667faliure is offline
Grand Magnate
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default

hi everybody

can anyone have a pain pump
inserted in a noninvasive manner
info appreciated

thank you
__________________
someone who cares
eva
eva5667faliure is offline   Reply With QuoteReply With Quote
Old 04-12-2012, 09:57 AM #8
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi Eva

I am not sure Eva. I do know there are several kinds. The SCS which is written about alot on the forum, and then there is the morphine pump. A friend of mine has this, and it never gave her problems, just relief. It was inserted into her stomach, and the refill is injected monthly into a spot through her skin. It doesn't hurt her. I am not sure there in a non invasive kind of pump. I will get on line and see what I can find out. If I had a choice, I would have this morphine pump. I was turned down for the SCS for what ever reasons they had. At the time I had no insurance, which was part of the problem. In fact finding any specialist was difficult.
I will try to find out more for you Eva. ginnie
ginnie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-23-2012), Rrae (04-21-2012)
Old 06-29-2012, 06:41 AM #9
Wish I was paifree Wish I was paifree is offline
New Member
 
Join Date: Jun 2012
Posts: 5
10 yr Member
Wish I was paifree Wish I was paifree is offline
New Member
 
Join Date: Jun 2012
Posts: 5
10 yr Member
Default I was told don't do it

My Dr talked to me a few months ago about getting the stimulator put in so I talked tommy pain management about it he says he doesn't recommend it for me said to be honest it will work for a little bit but then won't help me so it would be a waste of time getting. Now again yesterday my surgeon said something about it again he went from talking about fixing my incomplete fusion to have the stimulator put in even wrote my pain management dr a note for me to give him about it. My husband, mother and everyone else said don't get it. Now far as the pump goes my mothers dr wanted her to get that but she declined because she did some searching on it and found out they have to cut out a space in your back for the box and you will go through more problems with it then you already have.

Quote:
Originally Posted by Rrae View Post
Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae
Wish I was paifree is offline   Reply With QuoteReply With Quote
Old 07-18-2012, 10:22 PM #10
nastyy13 nastyy13 is offline
Junior Member
 
Join Date: Jul 2012
Location: staten island ny
Posts: 6
10 yr Member
nastyy13 nastyy13 is offline
Junior Member
 
Join Date: Jul 2012
Location: staten island ny
Posts: 6
10 yr Member
Thumbs up

Quote:
Originally Posted by Wish I was paifree View Post
My Dr talked to me a few months ago about getting the stimulator put in so I talked tommy pain management about it he says he doesn't recommend it for me said to be honest it will work for a little bit but then won't help me so it would be a waste of time getting. Now again yesterday my surgeon said something about it again he went from talking about fixing my incomplete fusion to have the stimulator put in even wrote my pain management dr a note for me to give him about it. My husband, mother and everyone else said don't get it. Now far as the pump goes my mothers dr wanted her to get that but she declined because she did some searching on it and found out they have to cut out a space in your back for the box and you will go through more problems with it then you already have.
I have a SCS..I don't know your situation but this device gave me my life back. If you doctor believes you are a candidate..Go for it. If facet blocked shots -Epidurils - and Radiofrequency ablation cant control your pain..Maybe a SCS is the way to go. At least try the 5-7 day SCS trial..the lead or leads will be placed in your spine and you will have a temporary. Wire sticking out of your back. You will have the opportunity to feel the benifits of the device...it is a bit painful at the entry point..but if your pain was close to the horror I felt before the implant. You may benifit from the SCS like I did..My permanent implant was placed on 6-1-2012..my stitches removed ON 6-13-2012 BACK TO WORK ON 6-18...Priceless....good luck.
nastyy13 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Rrae (06-20-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Anyone who has had spinal cord stimulator staceyc Spinal Disorders & Back Pain 33 01-18-2016 11:46 AM
Spinal Cord stimulator vs Pain Pump CZZ74 Reflex Sympathetic Dystrophy (RSD and CRPS) 22 01-01-2013 07:55 PM
Spinal Cord Stimulator abrown176 New Member Introductions 5 01-31-2010 06:39 PM
Spinal fluid leak with spinal cord stimulator lynnieg Spinal Disorders & Back Pain 0 12-14-2009 12:53 PM
Spinal cord stimulator MominPainRSD Reflex Sympathetic Dystrophy (RSD and CRPS) 26 01-26-2009 08:22 PM


All times are GMT -5. The time now is 02:12 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.