Spinal Disorders & Back Pain For discussion of all spinal cord injuries, spinal issues, back-related pain or problems.


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Old 11-04-2012, 05:15 AM #1
LucindaBelle LucindaBelle is offline
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Quote:
Originally Posted by Rrae View Post
Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae
Rae, I am new to the site but my very reason for joining is to get information about the pump OR stim unit. I am to the point of having to choose and all I have is the info from my doctors.
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Old 12-24-2012, 10:39 AM #2
WayneCaple WayneCaple is offline
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My name is Wayne,new to this site. My date for the pain pump is JAN. 7th, I wish I could talk to someone that already has one. Thanks for every ones help. Wayne
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ginnie (12-31-2012)
Old 12-31-2012, 10:35 AM #3
pebblebeach2 pebblebeach2 is offline
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I had a spinal cord stimulator implanted in 2006 and had it removed in 2011. Quite honestly for me it probably should have been removed a lot sooner then it was. I think I was kidding myself that it was working or having some affect on my pain.

I finally made the decision to have it removed because MRI's were not allowed with the implant and I felt the MRI was the best diagnostic test for me. CT scans didn't seem to give the same quality as the MRI's and for my health reasons contrast could NOT be used .

So I am now in the process of going for the Intrathecal Pain Pump. I had the trial portion done on 12/10/12 thru 12/13/12 and was happy with the results. I am not going for the permanent implant on 1/11/13.

In addition I was able to hook up with someone that had the permanent pain pump already done and was extremely happy with the results. The pain pump for the woman I spoke to was the last chance for her to find some sort of relief. So I was glad to hook up with for a few minutes to speak to her and know someone where it was successful.
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ginnie (12-31-2012)
Old 12-31-2012, 06:56 PM #4
Clerk10 Clerk10 is offline
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Smirk brand new candidate for spine stimulator

Hi all:

I just saw a dr regarding the St Jude Spinal stimulator and am quite concerned what I am reading. I have had multiple neck and back surgeries and find that pain medication no longer works. I have tried and done just about everything over 15 plus years including steriod injections, physical therapy and multiple surgeries...

I am overwhelmed and would love to hear from other members.
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Old 01-19-2013, 04:01 PM #5
Janeydon Janeydon is offline
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Confused Unsure wether I should have SCS

Hi I'm new to this so please forgive me if I've posted in the wrong place. I'm having a spinal cord stimulator implanted in march and I am a bit unsure if I should go through with it. I have failed back surgery syndrome from two michrodiscectomys , I have been on a lot of different pain medication combinations and at the moment I am taking 6 x 50 tramadol 8 paracetamol and 600 pregabalin and 20 amatriptaline daily which only just takes the edge of my pain. I have been on a 16 day pain management program which I found very helpful but I still suffer with a lot of sciatic pain in mostly my left leg but also my right, and also lower back pain. I am 40 in march of this year and I feel I can't continue on the amount of pain meds I take for the rest of my life. I had the SCS trial in dec 12 and it was successful it was a bit of a strange sensation but one which I could learn to live with, the best part was the fact that I had a full 6 hours sleep without being woke up in pain. I have read some information on the SCS implant but I am worried about complications etc and I would be grateful if there is anybody who can tell me of their experiences with it, like the op itself, the recovery period, the battery life and anything else you feel would help me with my decision. I live in lancashire England. Thank you for reading my post I appreciate any replies Janeydon
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Old 06-15-2013, 11:33 PM #6
Dolores123 Dolores123 is offline
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Quote:
Originally Posted by Janeydon View Post
Hi I'm new to this so please forgive me if I've posted in the wrong place. I'm having a spinal cord stimulator implanted in march and I am a bit unsure if I should go through with it. I have failed back surgery syndrome from two michrodiscectomys , I have been on a lot of different pain medication combinations and at the moment I am taking 6 x 50 tramadol 8 paracetamol and 600 pregabalin and 20 amatriptaline daily which only just takes the edge of my pain. I have been on a 16 day pain management program which I found very helpful but I still suffer with a lot of sciatic pain in mostly my left leg but also my right, and also lower back pain. I am 40 in march of this year and I feel I can't continue on the amount of pain meds I take for the rest of my life. I had the SCS trial in dec 12 and it was successful it was a bit of a strange sensation but one which I could learn to live with, the best part was the fact that I had a full 6 hours sleep without being woke up in pain. I have read some information on the SCS implant but I am worried about complications etc and I would be grateful if there is anybody who can tell me of their experiences with it, like the op itself, the recovery period, the battery life and anything else you feel would help me with my decision. I live in lancashire England. Thank you for reading my post I appreciate any replies Janeydon
Does anybody know of the long-term results of the spinal stimulators? Anbody who has had one in with success for over 2 years, 5 years, 10 years? I'm assuming that once the doctor's implant it, it's supposedly in for the rest of your life, but unfortunately, I haven't read anything about this. Their studies are for two years and that is nothing!
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Old 06-16-2013, 01:18 AM #7
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We do have a SCS & pain pumps as a sub forum under
Medications & Treatments
(For discussion about medications and treatments for any disease or health condition, including issues of medication toxicity.)
http://neurotalk.psychcentral.com/forum72.html
Sub-Forums: SCS & Pain Pumps
http://neurotalk.psychcentral.com/forum118.html
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Rrae (06-20-2013)
Old 06-20-2013, 04:26 PM #8
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Smile Hi Dolores!

Quote:
Originally Posted by Dolores123 View Post
Does anybody know of the long-term results of the spinal stimulators? Anbody who has had one in with success for over 2 years, 5 years, 10 years? I'm assuming that once the doctor's implant it, it's supposedly in for the rest of your life, but unfortunately, I haven't read anything about this. Their studies are for two years and that is nothing!
Welcome!
It's good that you are doing a lot of checking on this. Come on over to the SCS forum in which Jo*mar gave the link. You'll get TONS of great info (both positive and not so positive) I've had mine 3 yrs now and love what it has done for my RSD/neuropathy in both legs.
The only issue I'm having is back spasms. for some reason the muscles in my back are very maaad. I suspect it's because of a migrated lead that was removed 6 months after the implant.

See ya at the forum!
Again, here's the link, just click on it:
http://neurotalk.psychcentral.com/fo...ysprune=&f=118

Start a new thread when you get there. The 'New Thread' button is in the upper left corner of the screen..
Holler if you have questions

Caring,
Rhonda
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Old 06-10-2013, 10:38 AM #9
dollie75 dollie75 is offline
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Default scs

I had a scs implant on Jan 1,2013 it has been and up and down battle with me
I have had to have it reprogram several times and its still not working right
Still have alot of pain with this it worked good the first month so not sure what is going on with it I have another appt with company that put it in so
I guess we will go from there and I will let you know what happens





Quote:
Originally Posted by Rrae View Post
Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae
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Old 06-15-2013, 11:26 PM #10
Dolores123 Dolores123 is offline
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Quote:
Originally Posted by Rrae View Post
Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae
Yes, please have a spinal stimulator forum. I have been referred for the St. Jude stimulator. Don't like what I'm finding out about the subject. Dolores
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