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Spinal Disorders & Back Pain For discussion of all spinal cord injuries, spinal issues, back-related pain or problems. |
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09-05-2013, 07:32 PM | #1 | ||
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Newly Joined
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I have had the implant for 10 months and as of last week had it removed do to a bad experience..... I had to much upper back pain do to the paddle implanted there. I never fully recovered from having it implanted. It did work for my leg pain but but I couldn't deal with the pain from it. In my buttocks where they had put the battery pack was always pretty sore also. I am not a big person and I don't know if that is why it was so painful but I couldn't exercise much because it was extremely painful after. I would not go through this again, nor would I recommend it to any one without reading and reading the forums, to make a more valuable decision.
I am still in more pain but I will get to the bottom of this pain, but would love to chat with others...... Lu Quote:
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09-06-2013, 08:17 PM | #2 | |||
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Grand Magnate
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I am so sorry to hear that your experience went this way. Thank you so much for sharing it because people really need to hear both sides. You are so right in saying that much research must be done before deciding on the implant. So, last week is when you had it removed. I was wondering if you did a trial implant prior and if so, how did it go? Come on over to the actual SCS forum and share this with us! Here's the shortcut link to take you there: http://neurotalk.psychcentral.com/fo...ysprune=&f=118 When you get to the forum, click on the 'New Thread' box near the upper left corner so you can start a thread of your own. That way more people will see it. Share your experience over there. I really think it's important that people read your experience. Lots of great people at the SCS forum, so come check it out! It's great to have you! Rae btw, the SCS forum can be found via the main menu here at NT. It is listed as a 'sub-forum' under 'Medications & Treatments' |
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12-18-2013, 09:07 AM | #3 | ||
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Junior Member
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12-18-2013, 12:06 PM | #4 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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This is a very old thread/post. There has been a separate sub-forum for SCS & Pain Pumps in the Medications & Treatments forum for a while now. Doc
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Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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"Thanks for this!" says: | Rrae (12-22-2013) |
01-09-2015, 02:45 AM | #5 | ||
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Newly Joined
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Hi guys in 1978 I was injured while I was serving in the army. This involved damage to upper and lower spine, along with my right collar bone joint being dislocated at the neck end. As the years have gone by my symptoms have worsened. I now have a spinal fusion in my neck C6/7. I also have had the collar bone shoulder end surgically removed and have torn my right bicep tendon completely shredded so the bicep sits in a ball above my elbow. The surgeon advised that there is nothing more he can do.
I am seriously considering getting a spinal stimulator. My pain specialist advises that first there is a trial where electrodes are implanted in the upper and lower neck. After implantation the wires stick out of the back and are connected to a battery that sends out high frequency signals. The levels are changed each day in effort to find the greatest pain relief level. If we can get more than 50% pain relief then back into hospital to run the leads under the skin and down to the newly implanted battery. My question is as follows, Is the pain of going through implantation justified by longer term relief. I would appreciate as much input as possible so I can make an informed decision. Your assistance appreciated. |
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"Thanks for this!" says: | Lara (01-09-2015) |
01-09-2015, 03:02 AM | #6 | ||
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Legendary
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Hello Custer.
Welcome to the NeuroTalk Support Groups. I'm sure you'll get lots of support and information from the members here. There is also the SCS & Pain Pumps Forum as well as Chronic Pain Forum as well if you ever need that. take care. |
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01-09-2015, 09:38 AM | #7 | ||
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Grand Magnate
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Welcome Custer.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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"Thanks for this!" says: | Rrae (01-11-2015) |
02-19-2015, 09:06 AM | #8 | ||
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02-19-2015, 09:35 AM | #9 | ||
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I am new to these things, hope i am doing it right.
Help! I am in a dilemma, I am moving ever closer to having a spinal stimulation implant fitted, probably late April or May I have at least three more hospital appointments before I know if I am to be accepted for it. I have also been given some reading about what to expect, the implications are quite far reaching, things like no driving for six months, no lifting except something like a kettle, and no raising your arms above shoulder height, this is because it is possible to pull the leads out. After everything has settled down, it must not be switched on whilst driving or operating machinery, my hobby is wood turning both these things cause me pain so I can only switch it on after the event. All the time it is on you feel an electrical tingling sensation. So my question is has anyone on here got any experience on this implant or know anyone who has it and are they happy with it? I need to decide pretty soon if indeed it is offered to me as a candidate. |
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12-11-2015, 12:03 AM | #10 | ||
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Member
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Hi I'm also interested in this subject. Although I'm only 4 weeks post Laminectomy and know it will take quite some time to repair I would be fooling myself to say I'm not wondering if this surgery has worked. It's hard when the pain is the same as before sharply in the shin and hip/thigh. Lyrica is at 375mg and I don't want to keep that up for too long. It will be interesting to speak with the surgeon next week for his expectations of recovery and or what is next.
Ps beautiful day here laying down listening to good music. Phil Sent from my iPad using Tapatalk |
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