Spinal Disorders & Back Pain For discussion of all spinal cord injuries, spinal issues, back-related pain or problems.


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Old 06-26-2010, 12:57 PM #1
msdilbert2 msdilbert2 is offline
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Default Great Idea! We all need to stick together and share experiences!!

Quote:
Originally Posted by Rrae View Post
Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae
New to site and already have had some questions answered. I also dont feel so alone when I read about others in similar situations. Thanks for sharing! Pam Z.
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Rrae (06-26-2010)
Old 07-07-2010, 07:16 PM #2
Anthony77 Anthony77 is offline
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Default failed back surgery syndrome

My father had a spinal fusion about a year ago. Now, he suffers from severe peripheral neuropathy in his feet, pain in his legs, and pain at the surgery site. I am searching for ways to help him, but it's hard because he has almost given up. He feels he has tried everything, although I point out all kinds of things he hasn't tried. Anyway, I got him to start taking Brewer's Yeast today. Has anyone had any experience with this or b12. I wish b12 was in the BY, but that's the way it goes. What should I do to help him?
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Old 07-08-2010, 06:47 AM #3
glenntaj glenntaj is offline
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Default Anthony--

--you posted this in the useful websites portion of the spinal forum--specifically, in the area that deals with spinal stimulators--so only people looking for that very particular information are likely to see it.

I'd re-post your query in the spinal forum proper, or in the peripheral neuropathy forum, and then you are likely to get more responses:

http://neurotalk.psychcentral.com/forum22.html

http://neurotalk.psychcentral.com/fo...sprune=-1&f=20
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Old 02-15-2011, 04:48 PM #4
ginnie ginnie is offline
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Default try again

So sorry to hear your dad is suffering. I want you to keep going and get another opinion. I had failed neck surgery, fusion with plate at C-6-7. The next six years were a living hell. My pain specialist finally said, lets try to see the best neuro surgeon. I wound up with a big surgery, as I had also reversed the curve of my spine. C-4-5 was kinda folded over on itself. My first neuro said he couldn't help me anymore and I had given up hope. The Dr. I saw those six years didn't think there was hope eithor. I had the surgery Aug. 29. This is a great success. My pain is very little conpared to what it was. I was fused C3-7 and my neck was given back its shape. I believe in hope, that medicine can do alot. Even with failed surgery, there can be hope in a future surgery. I didn't think there could either. I was wrong, and I have a life without the terrible pain. Surgery was hard, no joke, really hurt, but here I am in a new year, and I am off almost all my meds. Maybe it would be good for his spirit if you tried just one more time. ginnie
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Old 02-15-2011, 04:51 PM #5
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Default anthony

I posted you without putting your name on it. See below for a reply aimed at your dad. Ginnie
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Old 08-01-2010, 07:36 AM #6
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Default

Quote:
Originally Posted by msdilbert2 View Post
New to site and already have had some questions answered. I also dont feel so alone when I read about others in similar situations. Thanks for sharing! Pam Z.
I looked into this also. I have Neuropathy due to failed back surgery now with the extra bonus of severe osteoporosis in the lumber spine. At 47 it seems very overwhelming.

I've checked with a couple of people that i know that have implants, and it doesn't look like that's the answer. If you have any other info to share please do. Most people can't begin to imagine how difficult it is or how painful it can be. Best of luck to you.
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Old 08-04-2010, 04:51 PM #7
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Default don't count it out

I felt the same way about SCS, but after the trial I found that it would work for me, 65/45 was my guess A trial is a trial, If you are like me I will try anything once, I understand the pain, I think everyone at this site does !!!




Quote:
Originally Posted by im4dexter View Post
I looked into this also. I have Neuropathy due to failed back surgery now with the extra bonus of severe osteoporosis in the lumber spine. At 47 it seems very overwhelming.

I've checked with a couple of people that i know that have implants, and it doesn't look like that's the answer. If you have any other info to share please do. Most people can't begin to imagine how difficult it is or how painful it can be. Best of luck to you.
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Old 07-05-2011, 09:44 AM #8
thecooleygirl thecooleygirl is offline
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Default Have SCS since 2003

I've had my scs since 2003. I've had 8 back surgery's and 2 two scs surgerys. If it wasn't for the scs, I wouldn't be able to walk, work or exercise. Unfortunately I now have the Thoracic problems with disc, which this unit does not help. Mine controls both legs, and lower back. The arachnoiditis I suffer from is almost painless, unless I totally over due it, due to the scs. If I don't have it on, withing 1 hour I"m in a level 10 pain. So yes, this unit is wonderful.
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Old 05-27-2012, 09:50 PM #9
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Default On my second battery, may need another

Hi,

I had a pain stimulator implant in 2008 and it worked great for the targeted area for a while. I recently had everything taken out so MRI's could be done and then they put a new IPG with paddles in the epidural space. Because the new paddles didn't work for my migraines and neck pain, they did help my shoulder and limbs, I had a modification to treat two more areas. With the new areas the battery isn't working as expected so the relief is minimal. Now they are playing with programming and if that doesn't work I may need either a second small battery or a replacement to a bigger battery like the one I had in the first place. While looking for answers I see the company that makes my stimulator is having big problems. I trusted them because they did a good job the first time and the rep. is awesome but I should have done my research, they were bought out a few years ago and seem to have continuous problems (search FDA recalls before you pick).
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Old 06-25-2012, 08:16 PM #10
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Unhappy Is an SCS a good idea for chronic back pain

Hi all,

Im after some advice if anyone could help?
I suffer from chronic lower backpain with peripheral pain in my legs, does anyone know if the SCS will have any affect on my back pain as ive heard it is good for peripheral but might not work on the main back pain...

Anyone have any thoughts?
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