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Spinal Cord Stimulator/Pain Pump Information

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Old 02-08-2010, 08:40 AM   #1
Rrae
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Arrow Spinal Cord Stimulator/Pain Pump Information

Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae
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Old 02-08-2010, 01:37 PM   #2
Chemar
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Thumbs up

DocJohn has made a subforum on the medications forum specifically for SCS and Pain Pumps

http://neurotalk.psychcentral.com/forum118.html
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Old 03-03-2010, 11:50 AM   #3
staceyc
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Hello Rrea,
My doctor has suggested this for me. I'm trying to find people who have this done. Before I make any decisions about the spinal cord stimulator.
Can you tell me what your physical issues are and why you have decided to get this done?
thank you, staceyc
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Old 03-07-2010, 12:13 AM   #4
Rrae
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Default Hi Stacey

Click on the link in the post Chemar provided right above your post and it'll direct you straight to the new SCS forum.
Lots of folks willing to share!
I have sent you a visitor message

Hope to see you on the SCS forum!
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Old 03-15-2010, 09:30 AM   #5
mwest
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Hello, I have had back and leg pain for years and years. I have had the injections and the burning. That work for a few years but with the disc slowly disappearing one by one the shots just weren't working anymore. I had the SCS put in for 5 days. I knew it worked some but I didn't know just how much until they took it out. I had the permanent on put in last Tuesday.
I look into all 3 of them on the market that I could find and I liked the Boston Scientific the best. With luck that's the one my pain doctor likes to use also.
Putting it in is painful. But so were the shots, and the burning. My doctor is very good about not wanting me to feel pain so he did do the best he could about numbing me. He gave me pain pills to help afterwards. The first night was rough just like with any surgery. I have do have discomfort at both sights, but it's only been a week. I turn my unit on while I'm laying down. It's working very good so far. I go back to the doctor tomorrow to check everything out and have it fine tuned some.
After everything I've gone through so far with my back pain this seems to help.
What implant are you having put in?
Good luck.
Mary



Quote:
Originally Posted by Rrae View Post
Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae
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Old 03-15-2010, 11:21 AM   #6
Rrae
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Default Hi Mary!

Congrats on your successfull implant!! I've had mine for 3wks and like it alot! Yes, you will feel discomfort at the incision sites. I layed on ice the first week. It gets better every day. Just follow the restriction guidelines. I have the Medtronic Ultra (smallest model)

Sounds like you and I have the same pain issues (both legs mostly, but the SCS also has a program to cover my lower back)
I was thrilled about that!

Let me give you the link to the actual SCS forum here at NeuroTalk ..... just click on

http://neurotalk.psychcentral.com/forum118.html

Start a new thread there and lots of folks will chime in!
Hope to see you there!
Rae

PS What we are communicating on right now is just a link talking about the SCS forum, so not many folks will see your post here
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Old 04-21-2010, 07:42 PM   #7
sweetscnts17
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Default I have a question about nerostimulator

Hi I had a back fusion surgery about 9 weeks ago and and was diagnoised with complex regional pain syndrome due to the surgery.The pain runs down my leg and into my foot.I have had 8 nerve block shots and now the Dr is recommending me to get a nerostimulator.Has anyone had a back fusion surgery that led to Complex regional pain syndrome?If so did your Dr recommed the nerostimulator?My back surgon thinks I should wait it out before getting the stimulator and my pain mang Dr thinks I should have it done now.I dont want to jump the gun and just get it done but I also dont want to live with this pain.
Im currently taking Lyrca and Cybalta ,plus pain meds which include morphine patches.I have had a MRI and a cat scan that came up negative for any other problem than the complex reg pain.If anyone can answer these questions I would appreciate it.
Thanks,Val
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Old 04-22-2010, 07:51 AM   #8
Rrae
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Default Hello Val!

Hey, you have great questions! I hope you will get some good input....
I think you already know this, but in case you don't, here is the actual
link to get you over to the SCS forum,,,, click on:

http://neurotalk.psychcentral.com/fo...ysprune=&f=118

More folks will see your questions there!
Where we are now communicating is just a post informing people how to get TO the SCS forum!

Good Luck my friend!
My heart is with ya!

Rae
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Old 04-27-2010, 02:29 PM   #9
Mozena14
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Default Ans

Quote:
Originally Posted by Rrae View Post
Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae
I'm thinking about having ANS implant. Anyone here with this implant?
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Old 06-26-2010, 01:57 PM   #10
msdilbert2
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Default Great Idea! We all need to stick together and share experiences!!

Quote:
Originally Posted by Rrae View Post
Hello
I am wondering if there are many here who have interest in these implantable units for chronic pain?
It seems there are more and more folks coming to the board looking for info on these units. For some reason, especially lately, it seems doctors are practically forcing people to get these units.
I am scheduled to get the SCS later this month.
I usually post on the RSD forum, as there are quite a few folks there with the stimulators and/or pain pumps.

We have put in a request to open a new forum or subforum specifically for discussion on this topic.

Are there many here on the Spinal and Back Pain forum who would be interested in having this forum? If so, would you be willing to share your stories and experiences for the benefit of those seeking out this information.

Reason for asking, there are SCS posts scattered throughout a few other forums and it would be very convenient to have a forum that people could go to without having to do a 'search' on all the other forums.

People are very hungry for info on this!
Thank you all

Rae
New to site and already have had some questions answered. I also dont feel so alone when I read about others in similar situations. Thanks for sharing! Pam Z.
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