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Old 04-13-2011, 01:11 AM #1
KayeVculek KayeVculek is offline
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Exclamation Need info on my condition and what type of surgery I will have

Hi Im new to all this so please forgive me if I don't understand it all.

Im a 28 year old female and Im in extreme pain. Pain so bad that Im on Dilautin, Morphine, and when I have a good pain day I take Percocet.

I have L4-L5 and L5-S1 Disc Herniations with prominet left lateral recess (whatever prominet left lateral recess means..) the disc bulge causing severe left neural foraminal stenosis with mass effect on the exiting L5 nerve root.

I have been told that I need surgery for sure by my Military doctor (husband is a SGT in the US ARMY currently deployed to Iraq).

I see the Neuro Surgeon in a few days. Where Im hoping we can set up surgery right away because as soon as we set it up my husband will be on a flight back to the states to help take care of me and our 4 beautiful children. I also am excited about the possibility of being out of extreme pain.

I am curious to opinions of people who would know or who have had a condition similar to mine on what kind of surgery I would have. A minimally invasive surgery doesn't sound like that would fit what I have. Im trying to prepare myself and everyone and to have a heads up would be nice to know. I know eventually it is up to my dr but I am going to beg him for surgery. I can hardly walk. I wear a back brace and use a cane. I sleep 3-4 hours a night. I have had some loss of bladder control. I can no longer drive or do anything. I feel helpless. I have tried cortizone shots, PT, chiropractors, walking (ouch! did this every day for 3 weeks and didnt help at all), massages, and now I just want surgery.. I feel desperate for it!

So does anyone know what kind of surgery would best fit what I have?
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Old 04-13-2011, 12:38 PM #2
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I moved this over from the chronic pain forum, I think you'll get more replies here on Spinal.
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Old 04-13-2011, 09:23 PM #3
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I have a herniated disc at L5/s1.. Probably a few above it are giving me problems. If I were to opt for surgery, I'm sure it would be fusion time again. I had 4 level cervical fusion. The lumbar would be a longer, slower, possibly more painful recovery. Instead of a collar, a body type brace. Going into summer, that would be hot. I'm looking into spinal cord stim to hold off on the surgery.

Please thank you husband for serving, I hope all goes well for all of you.
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Old 04-13-2011, 10:30 PM #4
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Quote:
Originally Posted by KayeVculek View Post
Hi Im new to all this so please forgive me if I don't understand it all.

Im a 28 year old female and Im in extreme pain. Pain so bad that Im on Dilautin, Morphine, and when I have a good pain day I take Percocet.

I have L4-L5 and L5-S1 Disc Herniations with prominet left lateral recess (whatever prominet left lateral recess means..) the disc bulge causing severe left neural foraminal stenosis with mass effect on the exiting L5 nerve root.

I have been told that I need surgery for sure by my Military doctor (husband is a SGT in the US ARMY currently deployed to Iraq).

I see the Neuro Surgeon in a few days. Where Im hoping we can set up surgery right away because as soon as we set it up my husband will be on a flight back to the states to help take care of me and our 4 beautiful children. I also am excited about the possibility of being out of extreme pain.

I am curious to opinions of people who would know or who have had a condition similar to mine on what kind of surgery I would have. A minimally invasive surgery doesn't sound like that would fit what I have. Im trying to prepare myself and everyone and to have a heads up would be nice to know. I know eventually it is up to my dr but I am going to beg him for surgery. I can hardly walk. I wear a back brace and use a cane. I sleep 3-4 hours a night. I have had some loss of bladder control. I can no longer drive or do anything. I feel helpless. I have tried cortizone shots, PT, chiropractors, walking (ouch! did this every day for 3 weeks and didnt help at all), massages, and now I just want surgery.. I feel desperate for it!

So does anyone know what kind of surgery would best fit what I have?
Whatever type of surgery your surgeon feels competent doing for your condition! Whatever that is, with loss of bladder control, every day you hesitate you increase your chance for permanent loss/dysfunction.
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Old 04-13-2011, 11:08 PM #5
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Thanks so much.. if anyone else has anymore insight I would love to hear it. I have been researching as much as I can online but I read so many different things... people saying to do surgery, and those saying not to. I of course with loss of bladder control want surgery and my regular doc says I need it.

I actually meet with my Neuro Surgeon tomorrow. Im excited. His office told me today when I called to get some information that it is possible after the doctor reviews my MRI and sees me that he will schedule surgery for next week.

Im just wondering what type of surgery it will be. A laminectomy/disectomy?? Thats what some others who have had back surgery told me it would probably be. Im also wondering about recovery time. The Army is sending home my hubby for the surgery and to take care of me... Hopefully soon!

The thing is right now Im in what would seem like the most uncomfortable position on my hardwood floor laying on my back with my knees and legs propped up using a cardboard box with a pillow on top, with my computer sitting on my stomach and another pillow under my head. I also just took a 8mg Dilautin about 20 minutes ago and this is the most comfortable I have felt all day.

No one should ever have to live like this. I feel like I should be ina nursing home. 28 years old and going on 70.. I know its just back surgery but it I HOPE is going to save my life.

Shout out to my husband Sgt Brad Vculek, a bad *** soldier in Iraq right now! Im glad babe you joined this site for suppourt. You are wonderful and I can't wait to see your beautiful face. Be safe .. we love you and are so proud of you.
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"Thanks for this!" says:
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Old 04-15-2011, 01:26 PM #6
Colin Street Colin Street is offline
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I had a similar -though not identical - condition, discs etc pressing on the spinal nerve itself. I was given a spinal decompression op. as an emergency four years and a half years ago. The result was partial success: I regained bowel control, the condition stopped getting worse, but there was no improvement in my walking ability, which remains poor, or pain (which remains ever-present though not as bad as yours). It seems that the spinal cord has suffered damage and cannot regenerate/repair itself. Have been given various medicines for pain relief but none worked so now I take nothing.

I realise this is probably not what you would like to hear but it is my real experience. Best wishes for successful treatment and to your husband.
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Old 04-16-2011, 05:54 PM #7
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Quote:
Originally Posted by KayeVculek View Post
Thanks so much.. if anyone else has anymore insight I would love to hear it. I have been researching as much as I can online but I read so many different things... people saying to do surgery, and those saying not to. I of course with loss of bladder control want surgery and my regular doc says I need it.

I actually meet with my Neuro Surgeon tomorrow. Im excited. His office told me today when I called to get some information that it is possible after the doctor reviews my MRI and sees me that he will schedule surgery for next week.

Im just wondering what type of surgery it will be. A laminectomy/disectomy?? Thats what some others who have had back surgery told me it would probably be. Im also wondering about recovery time. The Army is sending home my hubby for the surgery and to take care of me... Hopefully soon!

The thing is right now Im in what would seem like the most uncomfortable position on my hardwood floor laying on my back with my knees and legs propped up using a cardboard box with a pillow on top, with my computer sitting on my stomach and another pillow under my head. I also just took a 8mg Dilautin about 20 minutes ago and this is the most comfortable I have felt all day.

No one should ever have to live like this. I feel like I should be ina nursing home. 28 years old and going on 70.. I know its just back surgery but it I HOPE is going to save my life.

Shout out to my husband Sgt Brad Vculek, a bad *** soldier in Iraq right now! Im glad babe you joined this site for suppourt. You are wonderful and I can't wait to see your beautiful face. Be safe .. we love you and are so proud of you.
I feel so bad for you having to go through this at a young age with your husband away in Iraq. Stay strong and try to keep positive thoughts that this will be a road bump in your long happy life.

I had a ACDF on my C5, C6, C7 exactly 6 weeks ago. I can tell you about recovery (and my aunt had her lower back done (3 level fusions) 12 weeks ago. I'm 40 years old, she is 62. We both agree that the first 2 weeks are the worst. That is the minimum time you will need your husband there to help you. I wasn't even washing my own hair until about week 4. You will need to stock up on things and plan ahead (lots of premade freezer meals, I made lots of soups and cassaroles and froze them for after surgery). But you will get better. I'm just starting to get my normal strength back at week 6. I still get tired easily, and sore when I over do it, but I do feel better now.

I was where you were at. Taking very high doses of narcotics to stay out of pain waiting for doctor's, tests, and surgery date. Then I had to wean myself off all the narcotics. Do yourself a favor, try not to get up too high on the narcs before surgery, it's harder afterwards with rebound pain coming down.

I wish you all the best, and hope you are out of pain soon.... oh yeah... ice packs and heating pads will be your best friend!!! start trying them now!
Take care & God bless....
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Old 04-17-2011, 11:45 AM #8
Laurie64 Laurie64 is offline
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Help It doesn't sound like you'll have a choice on the surgery....

Quote:
Originally Posted by KayeVculek View Post
Hi Im new to all this so please forgive me if I don't understand it all.

Im a 28 year old female and Im in extreme pain. Pain so bad that Im on Dilautin, Morphine, and when I have a good pain day I take Percocet.

I have L4-L5 and L5-S1 Disc Herniations with prominet left lateral recess (whatever prominet left lateral recess means..) the disc bulge causing severe left neural foraminal stenosis with mass effect on the exiting L5 nerve root.

I have been told that I need surgery for sure by my Military doctor (husband is a SGT in the US ARMY currently deployed to Iraq).

I see the Neuro Surgeon in a few days. Where Im hoping we can set up surgery right away because as soon as we set it up my husband will be on a flight back to the states to help take care of me and our 4 beautiful children. I also am excited about the possibility of being out of extreme pain.

I am curious to opinions of people who would know or who have had a condition similar to mine on what kind of surgery I would have. A minimally invasive surgery doesn't sound like that would fit what I have. Im trying to prepare myself and everyone and to have a heads up would be nice to know. I know eventually it is up to my dr but I am going to beg him for surgery. I can hardly walk. I wear a back brace and use a cane. I sleep 3-4 hours a night. I have had some loss of bladder control. I can no longer drive or do anything. I feel helpless. I have tried cortizone shots, PT, chiropractors, walking (ouch! did this every day for 3 weeks and didnt help at all), massages, and now I just want surgery.. I feel desperate for it!

So does anyone know what kind of surgery would best fit what I have?
I am 5 mos post op from multi-level cervical fusion, and my friend is 4 mos post op on a lumbar fusion. My friend had incisions on both the front and back and required two surgeries in the same week to complete the work, compared to my one surgery. She recovered okay from the back surgery but had complications as did I. One thing we both had in common were falls during recovery either due to pain, pain meds or just plain fatigue. Her complications from the falls were so severe that she has been out of work for 4 months; for me, I'm left with knee injuries
Also, the surgery corrects the medical issues but when they say be realistic about your expectations on the pain, that's true. It's a very long, long road to getting the pain under control. At 5 mos out, I'm still in daily pain. I wish you luck.
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Old 05-04-2011, 07:50 AM #9
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Quote:
Originally Posted by KayeVculek View Post
Hi Im new to all this so please forgive me if I don't understand it all.

Im a 28 year old female and Im in extreme pain. Pain so bad that Im on Dilautin, Morphine, and when I have a good pain day I take Percocet.

I have L4-L5 and L5-S1 Disc Herniations with prominet left lateral recess (whatever prominet left lateral recess means..) the disc bulge causing severe left neural foraminal stenosis with mass effect on the exiting L5 nerve root.

I have been told that I need surgery for sure by my Military doctor (husband is a SGT in the US ARMY currently deployed to Iraq).

I see the Neuro Surgeon in a few days. Where Im hoping we can set up surgery right away because as soon as we set it up my husband will be on a flight back to the states to help take care of me and our 4 beautiful children. I also am excited about the possibility of being out of extreme pain.

I am curious to opinions of people who would know or who have had a condition similar to mine on what kind of surgery I would have. A minimally invasive surgery doesn't sound like that would fit what I have. Im trying to prepare myself and everyone and to have a heads up would be nice to know. I know eventually it is up to my dr but I am going to beg him for surgery. I can hardly walk. I wear a back brace and use a cane. I sleep 3-4 hours a night. I have had some loss of bladder control. I can no longer drive or do anything. I feel helpless. I have tried cortizone shots, PT, chiropractors, walking (ouch! did this every day for 3 weeks and didnt help at all), massages, and now I just want surgery.. I feel desperate for it!

So does anyone know what kind of surgery would best fit what I have?
Hi there. We have a LOT in common....I am 25 with spinal stenosis, DDD, torn and bulging disks in lumbar and cervical spine. Surgeons have told me I need a FUSION and a LAMINECTOMY on my spine however, I cannot find a surgeon that will operate due to my age and the large risks associated with it. I also have three children under the age of three...there are no words to describe how incredibly hard it is to take care of young children when you can hardly take care of yourself.

I have taken a turn for the worse over the past year but before then I was working in orthopedics and one thing I will tell you is that MANY of my patients did NOT get relief from surgery. Many of them regret getting it and had to have 2 or 3 fusions before relief was finally felt. Spinal surgery is very delicate and may not be a complete fix for you. Just make sure you weigh all of your odds before deciding firmly on something...you cant change your mind once its been done.

You cant understand what its like to be so young and feel like your life is over until you have been in those shoes...and I am walking in them with you right now. If you need an ear im here.
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Old 05-17-2011, 07:01 AM #10
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I stepped in a hole. Crushed sciatic nerver. had op back surgery had put rods
july 30 2009. pain for over a year ever none med. then feb 9 2011 had scs put in. it not working real well. now i will op to fix the lead. this workcomp and takes for ever to get cleared. i'm and vet from vietnam. tell your better half best of luck prayers with him
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