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Spinal Disorders & Back Pain For discussion of all spinal cord injuries, spinal issues, back-related pain or problems. |
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03-16-2012, 12:38 PM | #1 | ||
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Elder
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You stated that you had many doctors telling you that you need the surgery. Even though you said, you don't think you need a second opinnion. As long
as others have looked over your records, you can feel assurred that what they are telling you to do is correct. I was in danger of being paralized, and had to have surgery to prevent this. I was in the same kind of situation. I was a success for the proceedure I had. I do want you to know that all this can turn out OK, and that you can go back to being a full time mommy again. I wish you all the best. Please let us know how you are when you are recovering. ginnie |
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03-20-2012, 08:22 PM | #2 | ||
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"Thanks for this!" says: | ginnie (05-26-2012) |
03-21-2012, 09:30 AM | #3 | ||
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Elder
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Hi Mommy. I had a business where I looked down into a magnafier for thirty years. I destroyed my neck basically. I didn't quit when I should because it was my only income, I was a single mother, and I had no health insurance. so I worked with pain for many years. I didn't stop until I could not move my head up, down or any which way. At this time, or 6 years ago, they said I damaged C6-7, and it was bent to such a degree, I risked being paralized if I didn't do the surgery, and they told me, there was a risk of "doing" the surgery. What this surgeon did wrong, was he didn't tell me there were many other things wrong with my neck. He said he did all he could do. So I lived with the result until 22 months ago when my pain specialist did a Katemine infusion, with that screen he could see what was happening to my spine. He no longer could control my pain. I had reversed the curve of my spine altogether, and ruined all vertrebre above. they fell like dominos. So I had fusion C3-7, and had my neck given a new shape, to be what it should be. This took the very best neuro surgeon in my area to do this correction. Unfortunately with degenerative disk and joint disease, I am not stable in my neck today. C1-2 is hurting, and so are the ones below at T-1-3. The instabilty of the entire bracket does put pressure on the remaining verterbre. I am very careful in any activity. This first doctor, should have done the revisions needed all through my neck, he did not do this as I had no health insuance. He only corrected the immediate danger, and left the rest alone. I hadn't gone for the second opinion, which I am sure I would have been told there was more wrong with my neck to begin with. I was too in a hurry to get the pain over with. My moral of the story is to go for that second opinion, get your records, research the records, and understand all they want to do before you agree to the surgery. I feel very strong, that we need as patients to understand the whole situation and the proceedure before we do the surgery. I sure do wish you all the best, Nobody likes these kinds of situations. I will be here for you. ginnie
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"Thanks for this!" says: | Dr. Smith (03-21-2012) |
05-25-2012, 08:43 PM | #4 | ||
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I have arachnoid cyst with a herniated spinal cord. Can anyone assist me with finding a surgeon who has experience with this surgery? I am in the albany ny area.
I would assist any help I could get. |
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05-25-2012, 10:49 PM | #5 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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Is it specific referrals/recommendations you're looking for? First, I'd google: how to find best spine surgeon and read up on it. Then I'd email those that turn up in searches, ask all my doctors, their staffs, my insurance company, and try Angie's List: http://www.angieslist.com/companylis...e-and-neck.htm Doc
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Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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"Thanks for this!" says: | ginnie (05-26-2012) |
05-26-2012, 08:39 AM | #6 | ||
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Elder
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Welcome to Neuro Talk. Glad you found this site. Doc smiths post is right about how to find help. Go for more than one opinion and don't give up. things can turn out OK. I will be thinking about you. ginnie
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"Thanks for this!" says: | Dr. Smith (06-28-2012) |
07-09-2013, 09:43 PM | #7 | ||
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I am having trouble getting a doctor to do help me. Have seen 2 neurosurgeons in St. Louis area. One said, good luck I am not the doc for you, you need a REAL SPECIALST, good luck finding someone here in MO that will touch you!! The other said to come back in 6 months to see if my symptoms progress. *** Both are willing to say its spinal cord herniation, but neither will touch me. It shows clearly on MRI and myleogram so why not fix it before it gets worse!!! Have contacted Mayo clinic today, for a third opinion. Waiting for call back. I have been battling severe lower back pain for about a year now. I am 38 with 2 kids and was in great shape until this last year. There are some days I can hardly walk the pain is so bad. Been to the ER in tears begging to be admitted and they shoved me out the door with pain meds, they didnt even touch my pain. Did weeks of physical therapy, no help. Did steroid injections, no help. Tons of meds, no help. I just want to be fixed!!!!! I am too young not to be able to walk. Any suggestions or advice would be appreciated. |
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07-10-2013, 07:39 AM | #8 | ||
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Elder
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I wound up in Columbia Missouri, Mayo clinic sent me there for treatment. Try Columbia University medical center, 1 hospital drive in Columbia. They do lots of research and it is also a teaching institute. I engaged in a trial study there, and found the care to be excelent. This facility was better, than in St.Louis, Barns hospital. I wish you all the best. ginnie
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"Thanks for this!" says: | kccb (07-10-2013) |
11-16-2013, 12:27 PM | #9 | ||
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I am in St. Louis and just received my MRI results. Starting in square one… I would love to understand personal experience with the local neuro docs. Have a consult next week with a doc that has repaired 4 cord herniations. 4.---to say I am very concerned would be an understatement. |
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11-16-2013, 01:29 PM | #10 | ||
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