[Silver]

Hi Everyone,
I am a new member and wanted to introduce myself yesterday, however after reading so many of your post I could not see to type through the tears. My deepest sympathy goes out to each and every one that is in so much pain.
My journey began 5 years ago when my neurologist diagnosed me with Post-Polio Syndrome, and after a Zillion test sent me to my !st Neurosurgeon, who wanted to start removing the tumors. The 2nd Neurosurgeon wanted to remove the nerve root mass and untether my cord. The 3rd Neurosurgeon said he did not want to do any surgery. I opted to see a Spine orthopedic group that specializes in therapy without meds.. However they decided I would benefit from a spinal block….
It paralyzed me from the waist down…after lying in a hospital bed for days I began to wiggle a toe. They transferred me to a Re-Hab facility (they were great) and help me tremendously. I was sent home in a wheel chair, and a physical therapist and a home health care nurse that came several times a week.
After months of therapy I am walking again. I thought I wanted the feeling back until I got it…because the trauma caused to my spinal cord the nerve pain is undescrible, plus an added bonus I was left with hypersensitivity.

Needless to say I am afraid of surgery at this time; I’ve been twice since then for therapy. Nothing is working not even Meds…any suggestions..

As for me, after 14 MRI’s 2 Myleograms, 2 Cat Scans and numerous X-rays are the radiologist reports are as follows:
C4-C5 Right Para central disk protrusion
T1- round structure outside left neural foramen
T1-T2 a conus mass of high signal intensity
T-3 Tarlov Cyst
T11-T12 Cystic mass within the distal portion of the cord which is intramedullary. Posterior bulge created by this
L2-L3 Central disc protrusion – disc desicoationonois which flatten the central surface of the thecal sac and compress the L3 nerve root causing left neural foraminal stenosis and lateral recess encroachment an 8mm rounded intrathecal density of the thecal sack represents neurofibroma
L2-L3 asymmetric disc bulge
L3-L4 Facet joint sclerosis and disk bulge
L4-L5 and S1 Facet joint sclerosis and disk bulge
L4 – In the Psoas Muscle a neurofibroma
L5 – Intradural lesion oval is heterogeneous represents a neuofibroma
S1- Nerve root abnormal mass may be neurofibroma this is Intradural
Distal Cord: Cystic mass in the distal cord may represent a syrinx or arachnoid cyst there is also a fibrolipoma of filum terminal.
Low lying Conus (Tethered Cord) The conus is low lying and terminate just above the L3 – L3 level associated with a fibrolipoma of the filum terminale, the conus terminating at the l2 cerebral body.
Abnormal fluid collection lower spinal cord/conus medullaris maybe a syrinx, associated cord atrophy above this level
Asymmetry of the piriformis muscles.
Sorry this was so long…