Hello anmnw
 

Hi and welcome to neuro talk. I am sorry you are going though all the issues with your spine. Most of us are not professional, but we look up things and research it to try and help. I understand nobody in your medical community you have talked to so far is willing to discuss this issue with you. I have been looking up this condition the last week with Leesa. It would be a good time to gather your records, insist upon another opinion, and get some answers. Bring someone with you to the new appt. List your symptoms, write your questions, and insist someone speak with you. If you say where in the country you are, there may be people on line to help you find another physician in your area. This myelomalacia can have some consequences and you need someone to guide you. If you want all the information about it, it would arm you, so when you did go to the doctor again, you would have the knowledge to address the condition and understand the doctor. In this case please google up myelomalacia. Medical Web. MD and many other sites have this condition explained. This can be a serious condition, but I don't know the finer points or much more than what the web sites told me. We will be here to support you. Let me know if there is anything more I can do. I do care. ginnie

Dear anmnw,
I also am new to the board, but the people are godsends. I asked a few questions and they took the time to help, so listen to them, they know what they're talking about. So thank you everyone, especially ginnie and lisa for everything!!!!

Even my mind is going downhill, i meant leesa not lisa, so sorry!!!!!!!
Thanks kim

This is what I found about myelomalacia ~ I found it on this site, but it originally came from Wikipedia. It explains it alot better than I can and it also explains EXTREME cases too, so don't be alarmed about it. If you have any questions, please let me know. But it CAN cause problems with the bowel and bladder. So please check with your doctor or see a specialist as soon as possible. ;) Hugs, Lee


Myelomalacia:

MRI image shows spinal bleeding (myelomalacia).Myelomalacia is a pathologicalterm referring the softening of the spinal cord.[1] Hemorrhagic infarction (bleeding) of the spinal cord that can occur as a sequel to acute injury, such as that caused by intervertebral disc extrusion (being forced or pressed out) is the cause of myelomalacia. [2] The disorder causes flaccid paraplegia (impairment of motor function in lower extremities), total areflexia (below normal or absence of reflexes) of the pelvic limbs and ****, loss of deep pain perception caudal (in the coccyx) to the site of spinal cord injury, muscular atrophy (wasting away of muscle tissue), depressed mental state, and respiratory difficulty due to intercostal (muscles that run between the ribs) and diaphragmatic paralysis.

I was diagnosed with myelomalacia in 2006. Previously had had sudden increase in nerve pain and deterioration of walking ability. I had a spinal decompression operation with laminectomy (L4/5) the same year. Since that time my condition has stabilised, I can't detect any further deterioration, but no improvement either. Nothing was said about bleeding.

I did have bowel trouble around the same time and also intermittently since the operation, but this has recently been diagnosed as due to ulcerative colitis, an Inflammatory Bowel Disease, which has no known cause and 'flares up' between periods of remission.

myelomalacia
 

Jeesh. This is old. Anyone out there?:eek:

Hi crwriter

Welcome to NeuroTalk :).

You could raise your concerns about myelomalacia in the General Health Conditions & Rare Disorders forum (https://www.neurotalk.org/forum2/).

You might get more responses there.

Best wishes.

I was diagnosed myelomalacia for a couple of years. In my case it turned out to be due to damage to the spinal cord although the NHS will not acknowledge it as such mainly I believe because the damage was caused by a badly aimed I injection though I cannot claim this is typical so no further info from me