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C5 palsy

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Old 08-15-2021, 04:38 PM #1
adn21 adn21 is offline
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What PT did you do? Everytime I've done it, it made my neck worse! I'm desperate to improve

[QUOTE=dexy77;950332][QUOTE=LindaH;948992
Hi,
I had a c4-6 fusion with a severe cord impingement c5 and woke up from surgery with no use of my lt arm and no hand grasp. Two weeks later i was in physical therapy and after 6months had 75% back and a few months later 100%. Work hard in therapy and give it time. Take care and hope this helps![/QUOTE]
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Old 02-12-2013, 08:43 PM #2
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I know what you are going thru as it has been 3 years since my surgery. I woke up and was parallyzed also. Couldnt put my contacts in, feed myself or anything. The doctor would only say give it time and never would talk to me about it. Never even recommended PT at first. Didnt even bother to talk to me after the surgery had the anesthesiolgist come talk to me. Anyways for the most part I can use my arm now though I still have trouble with arm heaviness and pain still. The doctor wants to do more sugery but at this point I am scared to to that. I was paralyzed for 2 months.
I hope your doctor talks with you and that you do better than I have done. Its not easy to find much information on this. Was in PT a couple months ago but that was a joke as all they did was basically a massage.
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Old 07-13-2020, 01:11 PM #3
Mike4638 Mike4638 is offline
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Just wondering if my symptoms are similar with others. My surgery was March 12th of this year my right arm is still 90% paralyzed my left probably 50 I see no improvement and almost four months after surgery anyone with this surgery have you had the same complications I keep getting sick of hearing from my doctor that I am on schedule and it takes 6 to 8 months. Just last few days I've felt twitches in my spine tingling that I haven't felt before I'm also wondering if this is common.

I to had C-5 surgery, now a 2nd for c-5 palsy... Rt arm nothing, left weak, 4 months in still being told to be patient... My wife feeds me, drink from straw, etc....
Last edited by Chemar; 07-13-2020 at 06:35 PM. Reason: posts merged
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Old 01-26-2022, 06:41 AM #4
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Quote:
Originally Posted by LindaH View Post
hi
i'm new to this forum, but have posted for years on the Parkinson's Forum. I am looking for any information on C5 palsy, and would like to hear from others with this condition.
About 2 months ago i had surgery on my cervical disks (C3-6) due to a herniation, that was close to bursting. the surgery went ok, but afterwards i lost the use of my right hand and arm.
The docs said this was a rare side effect of surgery on the C5 disk, snd should correct itself in time. They "hoped" that i would get full functioning back and i should be patient.

I did some research, but didn't find much -- i did find estimates between 4 months - 12+ months for recovery, and that no treatment is suggested
I was referred for PT and OT.

Again,they said be patient. I don't think the docs understand that how debilitating this condition can be. I'm trying to use my left hand as much as possible, but i need help now for just simple activities of daily living - ssuch as dressing, cooking, bathing. i've lost all of my independence. I'm worried that i could be in the 30% that one study predicted won't fully recover.

Has anyone else been diagnosed with C5 palsy, how was it treated and what was your outcome?
thanks,
linda h
I know exactly how you feel. After my neck surgery I lost my left shoulder. Its been over a year now. Shoulder joint is fine but cant lift it. It hangs. My arm, hand and fingers are fine. They are saying I have this dystonia now. I dont completely agree. I get it. This craps sucks but doctors just dont get it. Still working this out and trying to beat it. Life like this is terrible.
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