Hi,
I will try to make this as short as possible. I have had central nervous symptoms for years and for several years I was diagnosed as having MS by an incompetent neuro and now am undiagnosed. My issues are:

Cervical Syrinx W/o chairi herniation as per MRI
Mild scoliosis
Bilateral Tarlov cysts as per lumbar MRI
Bilateral thoracic meningoceles in thoracic spine was seen on lumbar Mri
Bilateral cervical meningoceles in cervical spine as per cervical MRI
DDD since my 20's. I am 52 now
Loss of lordis curve
Numerous sensation issues, pain issues, spasm issues,reflex issues,weakness issues etc.

I do not have a diagnosis of anything yet but will be seeing neuro to follow up on new MRI results.

Do all of these spinal issues point to anything specific or ring any bells? The meningocles and tarlov cysts were found after rheumatologist ordered new MRI,s due to back and neck pain getting much worse over the last year so now will take all of these new findings back to neuro.

When I google these terms together spinal neurofibroatosis comes up a lot
Thanks for taking the time to read my post,
Babs in Houston

Hi Babs ~ It would be better if you could post your latest MRI report. Then we can read that and try to make some sense of it. If you would post your latest report, we can decipher it for you.

Hope to hear more from you. God bless and talk to you soon. Hugs, Lee

Hi Leesa,
Thanks so much! Here are all of my current MRI results. Hope this helps

Lumbar MRI w/o contrast

FINDINGS:
Transitional vertebral body is present. This study will be interpreted with presumption that the last
disc level labeled as L5-S1. Using this, spinal cord terminates at L1 level. Incidental note is made of small bilateral Tarlov cysts at second sacral level the largest of which measures 18 x 13 mm.

Note is made markedly diffusely heterogeneous bone marrow pattern which may be seen in the setting of developmental or metabolic disorder including resulting in marrow reconversion. Clinical correlation is recommended. Consider short term follow up study in six months to document stability.

Note is made of several small T1 and T2 hyperintense lesions within several lumbar vertebral bodies most compatible with small hemangiomas versus lipid rests.

There is no evidence of marrow edema. There is no evidence of acute fracture.

Incidental note is made of small bilateral lateral meningoceles at T9-T10 and T10-T11 levels. Consider follow up with a dedicated MRI of the thoracic spine.

The visualized osseous elements are intact with no evidence of fracture or spondylolisthesis. The normal lordotic curvature of the lumbar spine is well maintained. The conus medullaris and cauda equina are within normal limits.

Evaluation of individual levels presents as follows:
At L5-S1 there is no disc herniation or bulge present. Canal and foramina are patent.
At L4-L5 annular tear is seen. There is a small central disc herniation which is in contact with the
ventral thecal sac. Canal and foramina are patent. Moderate hypertrophic facet disease is present.
At L3-L4 disc bulge indents the ventral thecal sac. Foramina are mildly narrowed. Canal is patent.
Mild hypertrophic facet disease is seen.
At L2-L3 there is no disc herniation or bulge present. Canal and foramina are patent.
At L1-L2 there is no disc herniation or bulge present. Canal and foramina are patent.
5 mm cortical cyst is present in the left kidney.

Cervical MRI W& w/o contrast
CLINICAL HISTORY: Recheck status of syrinx, rule out MS.
TECHNIQUE: MRI of the cervical spine was performed utilizing multiple sequences in axial and
sagittal planes without and with IV contrast material.
COMMENTS:
The visualized osseous elements are intact with no evidence of fracture or dislocation. The marrow signals are within normal limits. Note is made of a small spinal cord syrinx measuring approximately 1 mm in diameter extending from approximately level of C5-C6 through C7-T1 measuring 4 cm in craniocaudad dimension.

There is straightening of cervical lordosis compatible with muscle spasm.
Multilevel dehydration and desiccation is seen. There is no evidence for tonsilar herniation. Limited views of the posterior fossa reveal no abnormalities.
At C5-C6, moderate loss of disc space height is
noted.
Post gadolinium sequences reveal no evidence for abnormal enhancement.
Evaluation of individual level presents the following:
At C2-C3, there is no disc herniation or bulge present. Canal and foramina are patent.
At C3-C4, minimal disc bulge indents the ventral thecal sac. Canal and foramina are patent.
At C4-C5, disc bulge indents the ventral thecal sac. Canal and foramina are patent.
At C5-C6, broad-based disc herniation/protrusion is noted. It measures approximately 20 mm in transverse and 3 mm in AP dimension produces mild mass effect on the spinal cord with mild canal
stenosis. Both foramina are moderately stenotic. Uncovertebral joint hypertrophy contributes. Syrinx is noted at this level.
At C6-C7, central disc herniation is in contact with the cord. It measures 15 mm in transverse and 3mm in AP dimension. Canal is borderline stenotic. Foramina are remained patent. Small syrinx is noted at this level. Note is made of bilateral lateral meningoceles at this level. The one on the left
measures 7 x 4 mm. The one on the

CLINICAL HISTORY: Recheck status of syrinx, rule out MS.
TECHNIQUE: MRI of the brain was performed utilizing multiple sequences in axial, coronal and
sagittal planes without and with IV contrast material. Diffusion-weighted sequences was performed.
COMMENTS:
Note is made of a 5 mm lesion in the posterior aspect of the pituitary gland which is bright on T1 with
a drop in signal on FLAIR and low signal on T2-weighted sequence. This may represent lipoma
versus small hemorrhagic pituitary adenoma. The lesion does not appear to be enhancing. Consider
further evaluation with dedicated pituitary MRI pre and postcontrast. The corpus callosum and
cerebellar tonsils are of normal configuration and position. There are no intra or extra-axial
collections. There is no mass effect or midline shift. There is no evidence of hematoma formation.
There is no hydrocephalus.
The parasellar areas are unremarkable. Pituitary stalk is midline. Optic chiasm is within limits of
normal.
The visualized arterial structures demonstrate normal appearing flow voids. The seventh and eighth
nerve bundles are visualized and are unremarkable in appearance.
There is evidence of mild mucosal thickening involving ethmoid and maxillary sinuses compatible
with chronic sinusitis.
Diffusion-weighted sequence demonstrates no evidence of restriction.
Post gadolinium images demonstrate no evidence for abnormal enhancement.

This is a lot to wade through and I very much appreciate everyone taking the time to look at this. I have been in so much pain and very little help with managing the pain from the muscle spasms and arthritis. I also have a large hard swollen/not red area where my rib connects to my sternum on the right side about 2 inches below the collar bone. My right shoulder and now the chest area are hurting all of the time.

I am also having huge waves of muscle weakness that come out of the blue and last about a minute. They come down both side and back of neck down the arms and all the way through my hands and across my chest. There is some tingling involved and it is so bad when it happens I cant do anything with my arms and hands. Its happened 4 times in the last 8 months. My husband saw the last one and it scared us both.

Just wondering if all of this fits into some category its just all a big painful mess and has really gotten bad the last several months.