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Old 06-09-2013, 05:14 PM #1
billygee billygee is offline
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Default Update. Results from 2nd opinion.

Patient has had an extensive work up for polyneuropathy including a nerve biopsy, without a diagnoisis emerging.Nerve conduction data apparently showed axonal neuropathy and the biopsy showed axonal loss without inflammation or vasculopathy.Lumbar MRI shows rather severe, but not catastrophic canal stenosis at L1-2 and L2-3.The usual and some unusual--- lab stidies were normal.He does not decribe claudication like symptoms.Only minor loss of appreciation of pin in the 5th fingers bilaterally.Thigh strength and bulk appear to be normal but there is abvious atrophy and weakness of the anterior tibial muscles and both calves.Kness jerks are present, ankle jerks absent,plantar absent.Sensory loss to temperture and vibration in a stocking pattern.
Impression: To 1st neurologist did not think that the lumbar stenosis was severe enough to account for the patients findings.I think we all have seen with this degree of stenosis who have no disability, so I understand his caution on this point.
I am never the less inclined to attribute his Syndrome to lumbar stenosis.The normal hand function is a point against polyneuropthy, as are the preserved knee jerks.Certainly lumbar stenosis can account for the nerve conduction and biopsy results, via Wallerian degneration of nerve fibers.I referred the paitent to a spine surgeon for consideration of surgery.The decision will be difficult. It almost seems that the two Neurosurgeons aren't on the same page.
I had talked to the spine surgeon and the surgery would take about 3hrs and he doesn't think it would help.

Last edited by billygee; 06-10-2013 at 11:24 AM.
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Old 06-11-2013, 06:56 AM #2
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Leesa Leesa is offline
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Leesa Leesa is offline
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Hmm ~ So what's the final decision on this? Have you been back to the spine surgeon yet? If the spine surgeon doesn't think surgery will be successful, why NOT? Did he give you a reason?

What if this gets worse? They'd HAVE to do surgery then! So why can't they do it BEFORE it gets that bad?

Just curious. And worried about you too! Hugs, Lee
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recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability.



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Old 06-11-2013, 01:31 PM #3
billygee billygee is offline
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Leesa, I'm not sure what to make of this.The 2nd neurologist I saw said I have polyneuropathy.But if I read he notes right now he against polyneuropathy???.He did mention that they won't do surgery as a experiment but I ask so whats next for me a wheel chair in 2-5 yrs or so then he referred me to a spine surgeon.The surgeon said surgery won't do anything to fix the neuropathy or the drop foot.At this point i'll make a appt to see the 1st neurologist and ask to be straight with me whats going on.Bill. BTwW everyone on this board have been great and i'm getting a lot of good info.

Last edited by billygee; 06-11-2013 at 02:01 PM.
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