Help me I am so discouraged!!
 

:confused:That is sooo where I am right now also. I just had a second injection in to my left SI joint on Friday. Today is Sunday and I can't hardly stand the pain. No position is comfortable. I am doing anything I can to find out more about this surgery, cuz I am afraid that if I have it done, I will 1) feel worse than I do now or 2) be unable to do the few things that I can still do now.
My life for the last year has been so down hill. I am only 50 years old and my 77 year old father has a more fulfilling life than I do!! I don't feel well enough physically to do anything. This pain is life draining. But I also don't want to end up in some rehab center at this age. I want to LIVE again!!!
Some one there please give us a ray of hope. Also discouraged...Cindy

Hello all this is my first post. I'm guessing from previous that most members are in the US. I live in the UK so as you probably know the whole medical treatment system is totally different.

I am 30 yrs old and have suffered from SI pain for about 8 years. I don't think it was a direct result of some injury, it just kind of crept up on me It has been getting progressively worse to the point now I take pain medication almost every day. I would say that mostly the pain is bearable but now and then I have episodes where I am in agony, I cannot get in or out of bed or vehicles, it is extremely painful to walk, I cannot bend or raise legs to put socks etc on and strong painkillers don't really seem to help. These extreme episodes used to be few and far between but are becoming more and more frequent.

I have been treated by two chiropractors and two physiotherapists over the years and whilst they provide a little bit of short term improvement, I have still noticed worsening of the condition overall. The past few times I've seen my GP I have just been prescribed more painkillers and muscle relaxants (which only help to a certain degree), but never any diagnostics or long-term solutions. I use a SI belt now and then but find it only decreases pain by approximately 10%, if that.

On my last visit to my GP I basically said "enough is enough', please refer me to a specialist, which they have and I have my appointment on the 26th Oct.

Sorry for the long post but my question to fellow sufferers is what would the long term prognosis be for this condition? I have a job which is physically demanding at times and although I have never had any time off because of my pain, I am now starting to notice it affecting my work. I hate to think what position I'll be in if the condition continues to get worse at the rate it has been.

Many thanks.

mbhall99 and kaydee

I would love to know your experience with Vicki Sims.. did it help??? very desperate miself.. Please share ur experiences. Thank you. GB

My low back sacorilliac Pain
 

My symptoms began in 2008 after a jumped a farm terrace on a snowmobile. The snowmobile and I were airborn, as the sled hit the ground, I hit the seat, in the seated position, I hit hard, it jarred my upper body. I have suffered from low back pain ever since. I am unable to sit stand or walk without pain.
On July 1st of 2011, I went golfing after 3 holes, I was unable to continue due to severe pain in my lower back on the right side of my spine.
On July 3rd I began limping, which is a new symptom. The pain was servere, I called our local Dr on July 5th, went to see him, he scheduled me for an epidural injection as I had 1 in 2010.
July 18 MRI showed a 2mm buldge at L4~L5 but was not erffecting the sciatic nerve some mild degeneration.........
July 29 I went to my Dr in Des Moines ~ still in pain
August 5 ~ Epidural same place, this one seemed to help a bit
Sept 23rd went to the local Dr, again severe pain
Sept 30th Epidural same place
Oct 13 back to my Dr in West DesMoines, no improvement my right foot is now numb and pins and needles, also the right side of my female area is numb ....
Oct 31st went to an Orthopedic Surgeon ~ he looked at my MRI, and had bacck xrays taken, he didn't feel surgery was necessary as the nerves were not affected buldge on my disk and he suggested another MRI
Nov 7 MRI ~ now shows 2 perferated discs and 2 buldges ~ none of which show they are touching or pinching the nerve also some narrowing of the spinal canal
Nov 29th went to a neurosurgeon, he set me up for an EMG
Nov 30th EMG
Dec 1st back to the neurosurgeon~ EMG showed the nerves were working properly
I showed him om my back where the pain is the worst, he said, "that's your SI joint" ...
Wow! After all of this.... he recommends an xray of my right hip/pelvis
Dec 6th xrays
Dec 9th ~ my Drs nurse called, they xrays do not show any issues

Tomorrow, I go back to my Dr ..... I have no idea what is next. I have had no "life" since Sept 23rd, pain, depression, confused, what is wrong with me, why do I limp so terribly, why am I in so much pain, and nothing shows up on xrays or MRI????

Any suggestions?

Hello!
 

Hi, I hope you don't mind me replying, my name's Charlotte and I was diagnosed with Sacroiliac Joint Dysfunction a few months ago, I'm only seventeen years old so it's really difficult to keep up a part time job, and college and applying for uni this year whilst getting on with my ack problem. It's apparently quite rare for someone to get it so young. I really struggle with it and was in hospital for three weeks, they told me it was all in my head and they had done EVERY hospital check, but referred me to the pain clinic and within half an hour I was diagnosed, it was really hard for me, being a teenager and taking tramadol like their smarties is horrilble, it really gets me down and even though I try joke about it it makes me want to cry as I can't do normal things like every other teenager on the planet. I had my injections 2 days ago and they have stopped the backache, but i'm really worried because my stomach has bloated and become rock hard and I have a constant ache in it. I'm really struggling and will ring the hospital tomorrow if it doesn't calm down. I was so happy to find this forum as no-one I know has this disease and so it makes me feel like I'm not alone!!!:)

Botox injections instead, after ten years it's not SI
 

Hi. I've been getting injections for over ten years and they really didn't help. All this time I was told and thought I had lumbar spine problems and other SI issues but this year my pain doctor hit the spot. It is piriformis syndrome. The medicare approved solution is very painful surgery to cut the muscle. The actual best method as I understand it is a simple botox injection. I am changing to a doctor that has lapriscopy in his office because the surgery center and hospital won't allow the injection and I don't want my pain doc shooting blind. Will post with results in a couple weeks. I haven't been able to sit, walk, stand, or even lay comfortably for a very long time. I've missed funerals, weddings, church, and countless other things. I hope and pray this is the cure!

Welcome to the room and the forums
bellatrixblack, and hiatthome

I have had these symptoms for over a year. But just started to do physical therapy yesterday. I also do messages because I have fibromyalgia. I hope that bella, you will work through the issues. And come back often. Being so young you can handle this. Please do call the hospital and your doctor tomorrow if you haven't already. They need to know what is going on.

Also see if your doc would allow you to do some PT to get some exercises to see if you can get some other relief.

Donna:grouphug:

I've had SI joint pain for years & years. Chiropractor visits didn't help very much. The very best thing I've found is these exercises:

Well, it won't let me post the link. Google Richard DonTigny and click on the Kalindra rounds.

Doing some of them every night keeps the worst of the pain away.

Hope this helps you! :)

I've dealt with severe SI joint instability for six years. Mine was because of a work related injury. I knew something was wrong because I could not place any weight on my left leg. That night I went to see my Dr. who took me off work for one week and gave me pain pills. The next day my daughter called my name ( I twisted ) her direction and down I went. My whole back gave out. I spent the next three day in the ER with clean MRI'S, XRAYS, etc. They just said "we don't know what is wrong with you."

Because of the " I don't know " the Workers comp company denied my claim and my doctors were denied any treatment. So, we were foreced to sell our house ( before we lost it ) and move.

After we had moved I started my own rehab program at the gym. Something was really wrong! It kinda fealt like a wrench was turned sideways in my pelvis and I could not stand without a weight belt around my hips.

Anyhow, because of money issues I was forced into finding another job. With the help of body bracing ( anything that kept my pelvis from moving ) I worked for about six months. Then It gave out again.

We never understood waht was going on because every one said ( pt's,chiro's) it was my lower disc. And the spine doctor would always say it was not. So, I was left with no answers at all.

Then one day somebody told me about this PT that helps people at the hospital. When he first saw my pelvis he said " your sacrum is twisted "

After all this time:mad: I've been working with him for three years and I am better..but, not good enough for our needs. I still can't sit for over twenty minutes, etc. With the help of a personal trainer I was able to get my muscles back working again. But,,,,nothing is keeping my si from moving around. I've had several injections that have helped for short periods of time.

Two neurosurgeons have said I have "sacroiliitis" over these last three years. But.. the treatment is always the same. Injections just don't help instability.

I started working with another doctor that deals with lumbosacral issues. And after doing several test he wanted me to have a CT guided injection deep inside both si joints. This test not only helped it showed my whole issue!
According to the CT scan I have severe scoliosis and bone spurring in both joint. The DR the did the CT scan and injection said he knows of a doctor at UCLA that can help me? He said I have severe SI joint instability causing the scoliosis.

Sorry for the rant and any spelling issues.

I really don't know what way to turn? I want my life back

sacroiliac joint
 

His guys

I have had possibly some sort of SI problem for 3 months now, i had had lower back ache for a month or so but thought nothing of it, as everyone gets back ache, then one evening went for a quiet drink with my friends, returned home about ten, started to play poping some bubble wrap with my feet, within an hour I could nt move, my partner had to assist in getting me to and of the loo.

Was in complete agony in my entire lower body lower back, hips, bum, thigh and calfs with sharp shooting stabbing pain radiating all over in about 3-5 places at anyone one point in both hips, thighs, calfs and bum and bed riden unable to move for about a week or 2.

after a week or 2 complete bed rest, I attempted work, I work as a designer which envolves sitting straight for 8.5hrs a day, this was impossible as I could only manage about 20 mins at a time before I was reduced to tears, so after 2 days was off work again and back to the docs.

after a while I finally managed to return to work on reduced hours, slowing uping my hours as time went by from 3-6.

have seen 4 different doctors and a physio, and have good and bad days. Im finally booked in for an MRI just to double check that, I am receiving the best treatment, and that it is SI problem and not a disk, due to teh amount of nerve pain im getting, as after last week my first full week of 8.5 hours sat solid and physio on friday my nerve pain returned with vengeance, so have been of work since. I currently have no life, as I only have so many hours of activity I can do, so my hours have been spent trying to work meaning, no cleaning doing the washing or cooking when i return home, you can imagine the state of me and my house.

I live of tramadol, and naproxen which makes me out of my nut and sick, but I have no option. I have already lost out on promotion due to this problem and being of my head attempting an interview. I need to get better asap so I can think about getting a new job. It gets you very very down and I spend most of time, either a. of my nut or b. in pain and crying. This is also not helping at work because it has left me with a shorter fuse then normal.

Im so desperate to return to normal life asap and even sat her for 20 min typing this has given me my nerve pain back down my legs I only find laying helps to ease it, well somtimes, But as you can imagine, you can't lay at work, can't lay to do washing/clean, lay to meet your friends at the pub or club. Im so sick of this and just want to know if other sufferers have found any treatments that really help, get ride of this problem.

I have been called the durecell bunny before, as im the sort of person who is always doing something up and about, cleaning, sorting seeing freinds, love to go out and dance the night away, to having active fun jumping around playing with kids. For me this life im leading at the moment would be my idea of hell on earth. being pretty much bed/sofa bound, im not a lay and watch tv person.

If anyone has tried any treatments that help to mend this problem, I would love to know about it. I really am desperate to get myself better asap