NeuroTalk Support Groups - Spinal Cord Compression

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Spinal Disorders & Back Pain (https://www.neurotalk.org/spinal-disorders-and-back-pain/)

- - Spinal Cord Compression - aniticipating surgery (https://www.neurotalk.org/spinal-disorders-and-back-pain/205191-spinal-cord-compression-aniticipating-surgery.html)

I am still working. Desk job, not too demanding, but-I am exhausted and useless by the time I get home. So frustrating. Seems everyday I am feeling worse than the day before..[/QUOTE]

I know exactly how that feels, as I too am working a "desk" job but feel completely exhausted and suffering overwhelming pain by the time I get home. I now have no life, other than popping pills to go to work and laying about trying not to suffer the pain when I get home. Sex life is gone and so has enjoyment of mostly anything else. Three years and counting...

Wow...we have very similar symptoms

Quote:

Originally Posted by jonlyn (Post 1073767)

Thank you for your response..
I am with the VA and seeing the head of neurosurgery in Durham NC on Wednesday...consult..
I really do no have that much pain... I have rt ankle, foot, and bottom part of my leg burns and itches... my entire rt side is weak with numbness, tingling and feels very heavy... I have a hard time typing, buttons, opening car door.. I drop things... almost dropped my granddaughter (11lbs)... difficulty with steps..mostly going down..I am unsteady.. when I sit for any length of time - I have an uncontrollable body spasm- like an uncontrollable stretch...weird.. nausea.. bladder urgency.. when I gotta go .. I gotta go right away.. but, no other b/b..

I have a lot of pain, and everything else you describe. Don't have a granddaughter, but I hope when I do, I'll be able to hold her. Almost dropped my 8 lb dog :) and I can't pick up the 15 lb one anymore. Had my first MRI a month ago and scheduled for C3-C7 decompression and fusion on 8/12. I hope it helps. I was told something similar i.e. "We expect you will have some relief, maybe, but not how much. But it will stop the progression." Comforting, isn't it? Prepare to be cut open, screwed together, and stuffed in a hard collar for 6+weeks and you might, maybe, get a little relief. Good luck to you.

Quote:

Originally Posted by MelodiB (Post 1085190)

I had C4 cord decompression and fusion in July, 2014...neurogenic bladder and bowel (I cath every 4 hours and bowel care every other day) rt side neuropathy, C4 incomplete paraplegia ASIA D
My symptoms are worse and now have a rolator and a wheel chair.
I spent a month in the Agusta VAMC Spinal Cord Injury Clinic.
So far two times I have endured Autonomic Dysreflexia. The most recent being just a couple days ago... BP was 220/190 with 138 pulse with mid and lower back pain / per ER no infections, no gall stones, no kidney stones and bladder is fine.. even checked for pulomnary emboli due to hx..

What could be wrong?

Hi jonlyn,
I was just reading your update post and previous posts.
Wow, you've had a shocking year. I can't help with your questions, but I just wanted to say that I'm sorry it's turned out so badly.

I'm not sure if this is of any help but there are some "triggers" mentioned on this site. You probably are aware of all those triggers though.

http://emedicine.medscape.com/articl...view#aw2aab6b4
Autonomic Dysreflexia in Spinal Cord Injury
Causes of Autonomic Dysreflexia

http://emedicine.medscape.com/articl...9-overview#a30
Autonomic Dysreflexia in Spinal Cord Injury
Prevention of Autonomic Dysreflexia

Quote:

Originally Posted by jonlyn (Post 1139168)

jonlyn,

From what I read; your having endured just a few days ago, Autonomic Dysreflexia itself will cause the blood pressure to go up dangerously over the 200 mark.

So sorry to learn of your worsening symptoms.

Gerry