Originally Posted by jonlyn

Thank you for your response..
I am with the VA and seeing the head of neurosurgery in Durham NC on Wednesday...consult..
I really do no have that much pain... I have rt ankle, foot, and bottom part of my leg burns and itches... my entire rt side is weak with numbness, tingling and feels very heavy... I have a hard time typing, buttons, opening car door.. I drop things... almost dropped my granddaughter (11lbs)... difficulty with steps..mostly going down..I am unsteady.. when I sit for any length of time - I have an uncontrollable body spasm- like an uncontrollable stretch...weird.. nausea.. bladder urgency.. when I gotta go .. I gotta go right away.. but, no other b/b..

Originally Posted by MelodiB

I have a lot of pain, and everything else you describe. Don't have a granddaughter, but I hope when I do, I'll be able to hold her. Almost dropped my 8 lb dog and I can't pick up the 15 lb one anymore. Had my first MRI a month ago and scheduled for C3-C7 decompression and fusion on 8/12. I hope it helps. I was told something similar i.e. "We expect you will have some relief, maybe, but not how much. But it will stop the progression." Comforting, isn't it? Prepare to be cut open, screwed together, and stuffed in a hard collar for 6+weeks and you might, maybe, get a little relief. Good luck to you.

Originally Posted by jonlyn

I had C4 cord decompression and fusion in July, 2014...neurogenic bladder and bowel (I cath every 4 hours and bowel care every other day) rt side neuropathy, C4 incomplete paraplegia ASIA D
My symptoms are worse and now have a rolator and a wheel chair.
I spent a month in the Agusta VAMC Spinal Cord Injury Clinic.
So far two times I have endured Autonomic Dysreflexia. The most recent being just a couple days ago... BP was 220/190 with 138 pulse with mid and lower back pain / per ER no infections, no gall stones, no kidney stones and bladder is fine.. even checked for pulomnary emboli due to hx..

What could be wrong?