Spinal Disorders & Back Pain For discussion of all spinal cord injuries, spinal issues, back-related pain or problems.


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Old 09-29-2006, 09:50 PM #1
Dinkie Dinkie is offline
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Default Hi Everyone Long time no see...

It has been ages it seems. It is nice to see so many I have known and so many new members here.

I registered some time ago but have not been here to post. Not a whole lot new going on for a person in spinal woes for more then eighteen years. Me thinks all have given up on me. lol But...that's just life. For me anyway. I am non operable and have had to learn to deal. Some weeks are worse then others. At times I have to rely on a wheelchair at other times I can walk short distances. One just never knows what the next day may bring huh?

Anyone heard from our dear Dawnbugs? I have wondered how she is doing.

Gene I read your post about Holly. I am so sorry this has happened to her. Can I give you a word of advice?

When I was very little, a man tried to molest me. I was only five. He caught me in my backyard also and he put his hand down my pants while trying to take me into a garage. I was quite the little screamer and fighter and got away. He went to prison. For years after, I dreamed of this man chasing me, and just when he reached out his arms to grab me, I floated up in the clouds out of his reach and to safety. Please consider getting Holly some therapy, to help her address what has happened to her. She was afraid to tell you, she must certainly have some feelings about this that she should not be having.

On to my little munchkins...

Emily has been doing great with the exception of her losing some walking ability. She can still walk but can not go the distance she used to. The wheelchair is her friend on outings now.

Nolan has had some great difficulties. He has had shunt failures four times in the past eighteen months. He will be going into the hospital the first week of November to have a third ventricalostomy. There is only a fifty percent chance that this surgery will work for him, however right now, we have a little boy who is always sick, always has spinal headaches, and always feels like he has to throw up. If the surgery works, he may no longer need a shunt. We are being optimisic about the surgery. You know, we look at the glass half full rather then half empty. I am not impressed with the percentages of it working, but it is a risk that we must take at this point.
He had tibial osteotomies ten weeks ago. One leg has healed the other, there is non union. He will have to face having a fusion in that leg once he has recuperated from the brain surgery.

It is never ending for this poor little munchin it seems.

My own problems, as always, feel so trivial in comparison.

I hope you all have a great weekend and hope to be able to stop in here more often. Take Care All...

Anna
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Old 09-29-2006, 11:25 PM #2
moose53 moose53 is offline
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((((((Dinkster))))))!!



As I live and breathe--she's back!!

Sounds like you've had bad and good, just like everybody. I'm so sorry that Nolan's been having such a rough time of it. You really hate to see the kids suffer...

I was thinking about Dawn a couple of days ago. I lost all my addresses during the last time that one of those wonderful Microsoft 'critical' updates kicked my computer to the curb. Thankfully, they no longer support my computer -- so I'm safe now

I hope -- I more than hope -- I *PRAY* with all my being that the upcoming surgeries for Nolan solve all his problems. It would be fantastic to not have the shunt anymore, wouldn't it.

There's been so much unbelievable research in the past 10/20 years. I can't wait to see what's coming for the kids. I'd love to hear no more shunts for any kid. No more headaches. No more pain.

You're such an incredible Mother, Anna. I thank G-d everyday that he found you to guide your kids to the best lives they can possibly have.

BIG HUGS (and love). And special prayers for Nolan.

Barb
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Old 09-29-2006, 11:51 PM #3
LindaM LindaM is offline
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LindaM LindaM is offline
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((Anna))
So good to "see" you as always.
Thanks so much for the update as you are always on my mind and in my heart.
LindaM(suede)
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Old 10-01-2006, 10:15 PM #4
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Fancylady_2006 Fancylady_2006 is offline
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Smile How good it is to hear from you~

Hi Anna,
I'm so glad you posted. I have often thought of you and your family and wondered how things were going with you. I do understand why you wouldn't have much free time. I have had a few more surgeries too. I'm still getting over the one I had Sept. 5, and another one coming up in Oct 24 th. I guess the worse thing that has happen in our family is I lost my husband to cancer in July. I so depented on him with my flare ups and I done all I could for him until he died in my arms at home, as he would have wanted.

Life is so different now, and I am planning on moving to town. It's hard to start all over again after being married 47 yrs. The heartache and pain are hard to face without him here. My memories are here, but the country can be lonesome in the winter. Nothing is the same, I don't have much family I can depend on either. I am going to help with hospice as soon as I get back ln shape again. I actully feel called to it.

You sure are an angel Anna for all you live with all the time. Come in and keep us posted when you can. We all care and want to talk with you.
Blessings,
Billie
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