wonder if anyone else is having issues like mine and could maybe help a bit.

I have been having issues since 2013 with lower back and leg pain. It was also complicated with Chronic Migraine Syndrome, and some kind of odd shakes in my arms and chest when trying to go to sleep, and issues with the vision of my right eye, bell's palsy attacks, lately also issues with bladder regularity and BMs (including fresh blood after voiding).
I went for xrays, CTs, EEG, 2 colonoscopies, and MRIs of the lumbar spine and brain. I have seen like 5 different specialists and 5 regular practitioners

My neurologist told me that my MRI was inconclusive. I was told in 2013 that I had Fibrolipoma of the filum terminale, and that there was nothing surgically that could be done.This summer I asked to receive a copy of the MRI results and it stated that I had the Fibrolipoma of the filum terminale from L3 and down.

Not understanding what this meant, I did a google search. It lead me almost instantly to pages about Tethered Cord Syndrome and a list of symptoms. I have almost all of the symptoms.

Worst is the pain in my back and legs, and the restricted mobility. I have been on several different types of medications for pain and muscle relaxants, and have had trips to the er for shots of torridol and morphine when the pain was the worst. I was told in 2013 that I had Fibrolipoma of the filum terminale, and that there was nothing surgically that could be done.

What I am wondering is.... has anyone else on here gone through this? Was it hard to get neurologists to realize that you suffered this way? Has anyone had this and recovered (without surgery obviously)? If you are Canadian... was it hard to get CPP to cover disability for this?