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Spinal Disorders & Back Pain For discussion of all spinal cord injuries, spinal issues, back-related pain or problems. |
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07-22-2018, 07:23 AM | #5 | ||
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I completely see and relate to what you are explaining about one person’s reaction to pain compared to another’s. However, as I pointed out in my letter of complaint to the nasty neurologist, my responses to symptoms have always been commensurate to what has then been proven. I have just always had a lot wrong with me from infancy onwards. Recently I saw an ENT consultant about possible vestibular disorder such as Menieres or other rarer conditions such as Cogan’s. He listened to my very flatly told account and I could tell he decided he liked me and I was going to be good for his students. So he sent me off for a full vestibular work out but nothing showed up because, as I’d said to him, my problems seem to relate to my central and peripheral nervous systems and dryness and autonomic dysfunction of Sjögren’s rather than my vestibular system. But he then wrote to me saying that he had reformatted the “normal sinus CT his colleague had commissioned and discovered a “high rising venous bulb on my left jugular which is a structural abnormality and would explain my pulsatile tinnitus and possibly my vertigo attacks too. Unfortunately due to being on the jugular vein it is inoperable but that’s just life! So I take these examples and feel more confident that if I say my arms feel tingly and leaden and my finger tips burn - I should be trusted and believed! I do not have heightened sensitivity to pain or sensory changes but no do I ignore them if they negatively impact on my life! So your response has confirmed to me that this confidence is well placed. Thanks so much!
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If you get lemons, make lemonade Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases |
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