Spinal Disorders & Back Pain For discussion of all spinal cord injuries, spinal issues, back-related pain or problems.


advertisement
Reply
 
Thread Tools Display Modes
Old 05-25-2021, 10:53 AM #1
cheryl0331 cheryl0331 is offline
Junior Member
 
Join Date: May 2021
Posts: 6
cheryl0331 cheryl0331 is offline
Junior Member
 
Join Date: May 2021
Posts: 6
Default ROI-C Complications

Hello all,
I am new to this forum. I had a ROI-C implanted in the fall of 2010 and it has never optimally fused. Radiologist said it was less than optimal and unstable. I have the worst pain from it and occipital nerve pain, plus headaches.
I read that there was a way to have them removed and wondered if anyone has seen or heard of any outcomes with this?
Thank You!
cheryl0331 is offline   Reply With QuoteReply With Quote

advertisement
Old 05-25-2021, 12:07 PM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Location: USA
Posts: 26,987
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Location: USA
Posts: 26,987
My Mood: ROI-C Complications
15 yr Member
Default

Has there been any follow up imaging to see what & where the problem is and if it can be corrected?

Have you asked the drs about removal & possible outcomes of that?
There could be a concern of more internal scar tissue each time there is a surgery..
__________________
NT helpful FAQs -https://www.neurotalk.org/faq.php
NT Search - https://www.neurotalk.org/search.php
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Jomar is offline   Reply With QuoteReply With Quote
Old 05-26-2021, 03:12 PM #3
cheryl0331 cheryl0331 is offline
Junior Member
 
Join Date: May 2021
Posts: 6
cheryl0331 cheryl0331 is offline
Junior Member
 
Join Date: May 2021
Posts: 6
Default Hi Jomar

The latest flexion extension x-rays (odontoid radiograph) were from Nov. 2020 and Jan. 2021. The had me open my mouth during one of the pictures so they could see better. That is when it was noticed that the device was not optimally fused. I probably need to get another current CT scan.
The possibility of scar tissue is a definite concern. I have an appointment with a neurosurgeon scheduled soon. Hopefully he will discuss all risk/benefits with me. I will certainly ask him! What scares me the most is how they get the clips out. Any surgery is risky, but this to me, would be very complex.
MY headaches and occipital nerve pain are horrendous though! I have a big decision to make.
cheryl0331 is offline   Reply With QuoteReply With Quote
Reply

Tags
headaches, outcomes, pain, read, roi-c

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Complications tkayewade SCS & Pain Pumps 3 05-06-2013 12:43 PM
post-op complications chloecasey Thoracic Outlet Syndrome 5 04-09-2013 10:56 AM
complications since 1990 New Member Introductions 3 12-16-2011 01:38 AM
TOS complications? DOCJDH Thoracic Outlet Syndrome 3 02-25-2011 09:11 PM
Anyone have any of these complications SCourcier Reflex Sympathetic Dystrophy (RSD and CRPS) 11 05-09-2009 08:31 PM


All times are GMT -5. The time now is 10:26 PM.

Powered by vBulletin • Copyright ©2000 - 2021, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2021 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.