Hello all,
I am new to this forum. I had a ROI-C implanted in the fall of 2010 and it has never optimally fused. Radiologist said it was less than optimal and unstable. I have the worst pain from it and occipital nerve pain, plus headaches.
I read that there was a way to have them removed and wondered if anyone has seen or heard of any outcomes with this?
Thank You!

Has there been any follow up imaging to see what & where the problem is and if it can be corrected?

Have you asked the drs about removal & possible outcomes of that?
There could be a concern of more internal scar tissue each time there is a surgery..

The latest flexion extension x-rays (odontoid radiograph) were from Nov. 2020 and Jan. 2021. The had me open my mouth during one of the pictures so they could see better. That is when it was noticed that the device was not optimally fused. I probably need to get another current CT scan.
The possibility of scar tissue is a definite concern. I have an appointment with a neurosurgeon scheduled soon. Hopefully he will discuss all risk/benefits with me. I will certainly ask him! What scares me the most is how they get the clips out. Any surgery is risky, but this to me, would be very complex.
MY headaches and occipital nerve pain are horrendous though! I have a big decision to make.